Tag Archives: Lyme disease

20 Books of Summer, 18–20: Ayanna Lloyd Banwo, Sarah Hall, Meghan O’Rourke

Whew, it’s the final day of the challenge and I’ve managed to finish and write up a last batch of two novels and one nonfiction work: a magic realist tableau of love and death in Trinidad, a fateful romance set against the backdrop of the construction of an English dam in 1936, and a personal and cultural record of chronic illness and its treatment in contemporary America.

 

When We Were Birds by Ayanna Lloyd Banwo (2022)

I was sent a copy as part of the McKitterick Prize shortlist. The setting of a cemetery, Fidelis in Port Angeles, Trinidad, had vaguely attracted me even before its nomination. Emmanuel Darwin has turned his back on his Rastafarian upbringing to cut off his dreadlocks and work as a gravedigger (any contact with the dead is anathema in the religion). Meanwhile, Yejide, who lives in the hills, is losing her mother, Petronella, and gaining a legacy she’s not sure she wants: the women of her family are caretakers of the souls of the dead, keeping them alive in exchange for protection. Like the corbeaux, dark counterparts of tropical parrots, they tread the border of life and death. As All Saints’ and All Souls’ Days draw closer, Darwin and Yejide together have to decide whether they will be swallowed by the graveyard or escape it. While this was atmospheric and had alluring elements, the speculative angle was not notably well realized and the particular form of patois – eschewing all possessives and most verb conjugations – drove me nuts. I skimmed this one. (Free from the Society of Authors)

 

Haweswater by Sarah Hall (2002)

I bought this in Cumbria one year and started reading it in Cumbria the next. Once I got home, however, there was little impetus to keep going. Were it not for the temporary local interest, I likely would not have finished this debut novel, which lurches between dry and melodramatic. As it is, I had to skim to the end. Had it been my first taste of Sarah Hall’s work, it might have put me off trying her again.

The frame is historical: Haweswater was indeed dammed to provide water for the city of Manchester in 1936, flooding the village of Mardale. Hall focuses on the people of Mardale, specifically the Lightburn family, who have persisted with farming despite its particular challenges in this hilly landscape. When Jack Liggett comes out from the City on behalf of the waterworks, he meets with hostility, including from the Lightburns’ daughter, Janet, who negotiates for their tenancy to continue until the dam is actually built. Then, well, you know, Romeo and Juliet and pride and prejudice and all that, and they start an affair. Hall has always written forthrightly about sex, starting here.

There’s a climactic final 60 pages in which three major characters die, two in symbolic acts of suicide, but it was a little too much tragedy, too late, for me after the dull midsection. I was intrigued, however, that a plot point turns on golden eagles being in the valley, as Wild Fell, another of my Haweswater-set reads, opens with the presence of the ghost of England’s last golden eagle, who vanished in 2015. This related snippet shows how over-the-top Hall’s use of dialect is: “Golden eagles wud be mor’less gone, gone or illegal these days, like, notta funni bizniz t’be gittin’ mixed up in, eh? What kinda daft bugger d’yer take mi for?” It’s like Thomas Hardy rustics – hard to take seriously. (Anne-Marie Sanderson’s haunting song “Haweswater” is based on the novel.) (Secondhand – Clutterbooks, Sedbergh, 2022)

 

The Invisible Kingdom: Reimagining Chronic Illness by Meghan O’Rourke (2022)

Well before I was a devoted follower of the Barbellion Prize for books on disability and chronic illness, I was interested in these topics. For much of her forties and fifties, my mother struggled with fibromyalgia, one of a suite of illnesses misunderstood or even dismissed by the medical profession (as O’Rourke puts it, with a tongue-in-cheek nod to Jane Austen: “it is a truth universally acknowledged among the chronically ill that a young woman in possession of vague symptoms like fatigue and pain will be in search of a doctor who believes she is actually sick”). I hope this National Book Award nominee goes some way toward convincing skeptics that these are real conditions to be addressed by listening to patients and treating them holistically.

In 2012 the author became seriously ill and spent much of her thirties in a fog of pain, spending the equivalent of several days per month at doctors’ appointments and agreeing to ever more bizarre treatments in her desperation. Some of her issues were autoimmune and/or genetic: Hashimoto’s (thyroid), Ehlers-Danlos, POTS, endometriosis. She also dealt with infertility at the same time as she was trying to get well enough to contemplate having children. For her, the turning point was when she was diagnosed with Lyme disease and put on antibiotics. (Later she would travel to London to get fecal microbiota transplants to restore her microbiome.) Chronic Lyme is similar to long COVID, the true extent of which we’re only just beginning to understand; reading a list of the symptoms, I was tempted to remotely/retrospectively diagnose a few people I know with one or the other. It can be ever so slightly miserable reading about navigating all of these conditions, though nowhere near as miserable as it must have been for O’Rourke to live through them, of course.

I knew the author for her exquisite memoir of losing her mother to cancer, The Long Goodbye. Here the writing is more functional and journalistic, but I was still impressed by the attention she pays and the connections she draws; she’s also a poet, so she’s open to emotions and keen to capture them in words. In the face of the unexplained, she contends, chronically ill people are searching for meaning and narrative (restitution, chaos or quest, as Arthur Frank named the three options). She probes her own psyche: “had I become trapped in my identity as a sick person, someone afraid of living? If my mission in life had been reduced to being well at all costs, then the illness had won.” There’s a good balance of research, personal experience and general reflection in this one. (Passed along by Laura – thank you!)

Related reads: Ill Feelings by Alice Hattrick, It’s All in Your Head by Suzanne O’Sullivan, Waiting for Superman by Tracie White

 

And that’s a wrap! My summer reading was a little scattered and not as thematic as initially planned, but I stuck to my pledge to read only print books that I owned, and then cleared half of them from my shelves through reselling or donating to the Little Free Library. I’ll definitely call that a win.

My favourite from the 20 was a novel, Search by Michelle Huneven, then Making the Beds for the Dead by Gillian Clarke (poetry), followed by two chef’s memoirs, A Cook’s Tour by Anthony Bourdain and Dirt by Bill Buford, and Dorthe Nors’ nature/travel essays. The one DNF and couple of skims are unfortunate, but these things happen.

Next year I fancy a completely open challenge – just, again, getting through books from my shelves. (Maybe all hardbacks?)

Recent Writing for BookBrowse, Shiny New Books and the TLS

Here are excerpts from (and links to, where available) some of my recent reviews for other places. A few of these books will undoubtedly be showing up on my end-of-year best lists in a couple weeks’ time.

 

BookBrowse

I was pleased to have three of the books I reviewed show up on BookBrowse’s list of the top 20 books of the year, as voted for by the site’s readers. What’s more, Educated was voted their top nonfiction book of the year and Where the Crawdads Sing (below) their #1 debut novel. (The third on the list was Unsheltered.)

 

Beauty in the Broken Places by Allison Pataki: Ernest Hemingway wrote that we are strong at the broken places, and Allison Pataki found that to be true when her husband, David Levy, a third-year orthopedic surgery resident in Chicago, had a near-fatal stroke at age 30. On June 9, 2015, Dave and five-months-pregnant Allison were on a flight from Chicago to Hawaii for their babymoon, planning to stop in Seattle to visit Dave’s brothers. But they never made it there. On the plane Dave told her he couldn’t see out of his right eye.The plane made an emergency landing in Fargo, North Dakota and Dave was rushed to a hospital for testing. Doctors found he had suffered a bithalamic midbrain ischemic stroke, even though he’d had no risk factors and this stroke type was virtually unknown in patients of his age. Pataki goes back and forth between the details of this health crisis and her past with Dave. Hers is a relatable story of surviving the worst life can throw at you and finding the beauty in it. 

 

Sick by Porochista Khakpour: Khakpour can’t remember a time when she didn’t feel unwell and like she wanted to escape. “I had no idea what normal was. I never felt good,” she writes in her bracing memoir. Related to this sense of not being at home in her body was the feeling of not having a place where she fit in. Throughout Sick, she gives excellent descriptions of physical and mental symptoms. Her story is a powerful one of being mired in sickness and not getting the necessary help from medical professionals. Lyme disease has cost her $140,000 so far, and a lack of money and health insurance likely delayed her diagnosis by years. There is, unfortunately, some inherent repetition in a book of this nature. At times it feels like an endless cycle of doctors, appointments, and treatment strategies. However, the overall arc of struggling with one’s body and coming to terms with limitations will resonate widely. 

 

Southernmost by Silas House: In Silas House’s sixth novel, a Tennessee preacher’s family life falls apart when he accepts a gay couple into his church. We go on a long journey in Southernmost: not just a literal road trip from Tennessee to Florida, but also a spiritual passage from judgment to grace. Reconciliation is a major theme, but so is facing up to the consequences of poor decisions. I found the plotting decisions rewarding but also realistic. The pattern of a narrow religious worldview ebbing away to no faith at all and eventually surging back as a broader and more universal spirituality truly resonates. I loved House’s characters and setups, as well as his gentle evocation of the South. His striking metaphors draw on the natural world, like “She had the coloring of a whip-poor-will” and “The sky is the pink of grapefruit meat.” It’s a beautiful, quietly moving novel of redemption and openness to what life might teach us. 

 

Unsheltered by Barbara Kingsolver: Kingsolver’s bold eighth novel has a dual timeline that compares the America of the 1870s and the recent past, revealing how they are linked by distrust and displacement. The book’s themes and structure emphasize similarities between two time periods that might initially appear very different. Chapters alternate between the story lines, and the last words of one chapter form the title of the next. It’s a clever and elegant connecting strategy, as is the habit of using variations on the title word as frequently as possible – something Jonathan Franzen also does in his novels. (I counted 22 instances of “shelter” and its variants in the text; how many can you spot?) Kingsolver can be heavy-handed with her messages about science, American politics and healthcare, etc. All the same, Unsheltered is a rich, rewarding novel and an important one for our time, with many issues worth pondering and discussing. 

 

Where the Crawdads Sing by Delia Owens: It’s easy to see why so many have taken this debut novel into their hearts: it’s a gripping mystery but also a tender coming-of-age story about one woman’s desperately lonely upbringing and her rocky route to finding love and a vocation. Not only that, but its North Carolina marsh setting is described in lyrical language that evinces Delia Owens’s background in nature writing, tempered with folksy Southern dialect. The title refers to places where wild creatures do what comes naturally, and throughout the book we are invited to ponder how instinct and altruism interact and what impact human actions can have in the grand scheme of things. In Kya, Owens has created a truly outstanding character. The extremity of her situation makes her a sympathetic figure in spite of her oddities. Crawdads is a real treat. 

 

 

Shiny New Books

 

Under the Rock by Benjamin Myers: When Myers moved to the Calder Valley of West Yorkshire from London over a decade ago, he approached his new patch with admirable curiosity, and supplemented the observations he made from his study window with frequent long walks with his dog (“Walking is writing with your feet”) and research into the history of the area. The result is a divagating, lyrical book that ranges from literature and geology to true crime but has an underlying autobiographical vein. This isn’t old-style nature writing in search of unspoiled places. Instead, it’s part of a growing interest in the ‘edgelands’ where human impact is undeniable but nature is creeping back in. Interludes transcribe his field notes, which are stunning impromptu poems. I came away from this feeling that Myers could write anything – a thank-you note, a shopping list – and make it profound literature. Every sentence is well-crafted and memorable. “Writing is a form of alchemy,” he declares. “It’s a spell, and the writer is the magician.” I certainly fell under his spell here. 

 

Nine Pints by Rose George: Nine Pints dives deep into the science and cultural history of blood. George’s journalistic tenacity keeps her pushing through the statistics to find the human stories that animate the book. In the first chapter we track the journey of a pint of blood that she donates in her hometown of Leeds. I was particularly interested, if morbidly so, in the chapter on leeches and bloodletting. Other sections journey further afield, chiefly to South Africa and India, to explore AIDS and menstruation taboos. The style can be choppy and repetitive, given to short sentences and identical paragraph openers, and there are a couple of places where the nine-chapter structure shows its weaknesses. While Nine Pints is quite uneven, it does convey a lot of important information about the past, present and future of our relationship to blood. 

 

 

Times Literary Supplement

 

Face to Face: True stories of life, death and transformation from my career as a facial surgeon by Jim McCaul: Eighty percent of a facial surgeon’s work is the removal of face, mouth and neck tumors in surgeries lasting eight hours or more. McCaul also restores patients’ appearance as much as possible after disfiguring accidents. Here he pulls back the curtain on the everyday details of his work life: everything from his footwear (white Crocs that soon become stained with blood and other fluids) to his musical choices (pop for the early phases; classical for the more challenging microsurgery stage). Like neurosurgeon Henry Marsh, he describes the awe of the first incision – “an almost overwhelming sense of entering into a sanctuary.” There’s a vicarious thrill to being let into this insider zone, and the book’s prose is perfectly clear and conversational, with unexpectedly apt metaphors such as “Sometimes the blood vessels can be of such poor quality that it is like trying to sew together two damp cornflakes.” This is a book that inspires wonder at all that modern medicine can achieve. 

 

On Sheep: Diary of a Swedish Shepherd by Axel Lindén: Lindén left city life behind to take on his parents’ rural collective in southeast Sweden. This documents two years in his life as a shepherd aspiring to self-sufficiency and a small-scale model of food production. Published diaries can devolve into tedium, but the brevity and selectiveness of this one prevent its accounts of everyday tasks from becoming tiresome. Instead, the rural routines are comforting, even humbling, as the shepherd practices being present with these “quiet and unpretentious and stoical” creatures. The attention paid to slaughtering and sustainability issues – especially as the business starts scaling up and streamlining activities – lends the book a wider significance. It is thus more realistic and less twee than its stocking-stuffer dimensions and jolly title font seem to suggest.