The Wellcome Book Prize (for health- and medicine-related books) and the Barbellion Prize (for representations of disability and/or chronic illness) are much missed, but I continue to be drawn to their highlighted themes in my reading. This is the first year that I’ve been aware of July as Disability Pride Month, though it’s been a thing since 1990 in the USA and 2015 in the UK. My first set of July releases – I have reviews of three novels coming up tomorrow – consists of a nonlinear memoir interrogating life with chronic pain and a chronically ill poet’s collection in which an old dog is an example of grace through suffering.

The Body Alone: A Lyrical Articulation of Chronic Pain by Nina Lohman

For well over a decade, Nina Lohman has endured Chronic Daily Headaches – when a doctor presented her with this phrase, she remarks, it was not so much a diagnosis as a description. Having a clinical term for her extreme pain did nothing to solve it; no treatment she has tried has helped much either, from pharmaceuticals to acupuncture. (Doctors think they’re breaking new ground if they suggest ice packs or elevating her neck.) Like Meghan O’Rourke’s The Invisible Kingdom, this documents a quest with no natural end. Lohman’s health fluctuates, and medical professionals and family and friends minimize her pain because she is able to pass as well, to carry out the daily tasks of raising two children.

The subtitle is apt for a work that is fragmentary and not driven by chronology. Had Cataloguing Pain not already been taken (by Allison Blevins), it might have been a perfect title. Some of Lohman’s short pieces read like poems, including erasure poems based on her medical notes. Repeated headings demonstrate a desire to organise her illness so as to make sense of it: “A Primer,” “Classifications” and “Perhaps” musings. She dwells on the names of things – shades of colours, groups of animals – while she longs for a vocabulary tailored to her own circumstances. Imagined monologues by doctors, friends and her husband (“He”) show pain has not turned her insular; she has empathy even when people act in hurtful ways.

One aspect of the book that I found particularly interesting is that Lohman, though not raised with Christian beliefs, studied theology at university level. Doctrines of the Fall bringing anguish and the Cross offering atonement are logical to her yet feel irrelevant to her situation. She bristles when a religious friend suggests that pain might be “her cross to bear.” Lohman admits she has given up hope on ever being free of pain, so finds resonance with poet Christian Wiman, who has been living with cancer for decades and whose work is equally infused with pain and faith.

It’s a journalistic as well as personal narrative, in the tradition of Anne Boyer, Sinéad Gleeson and Susan Sontag, shifting between modes and registers as Lohman gives a history of opiates, records of her pregnancies, and précis of philosophical understandings of suffering. “Theorizing can only take me so far,” she acknowledges, toward comprehending bodily experiences that defy language. And yet she employs words exquisitely, marshalling metaphors though they’re inadequate. The tone flows from enraged to resigned to cynical and back as she depicts the helplessness of women in a medical system that ignores their pain. Especially if you have enjoyed work by any of the authors I mention above, I highly recommend this debut: it’s sure to be one of my books of the year.

Published by the University of Iowa Press. With thanks to Nectar Literary for the free advanced e-copy for review.

The Soul We Share: Life with Earth and an Old Brown Dog by Ricky Ray

New England poet Ricky Ray describes himself as an “eco-mystic” and is the author of several previous works. Maura Dooley chose this as the Aryamati Collection Prize winner in 2023. As in Birds Knit My Ribs Together by Phil Barnett, nature is a source of comfort in a life complicated by chronic illness. In “Pain: 8 on a Scale out of 10,” Ray explains how “Some days, I never make it out of my head, / that coal-eyed melon … The impinged nerves crack their whips / within my animal pelt”. An accidental overdose and depression are matter-of-fact components of the poet’s history. While uxorious, he regrets that he may never become a father. And yet this couplet expresses deep pleasure in life:

(Dis)ability

Some days, my body is so beautiful

I can’t believe I get to live here.

His elderly rescue dog Addie is his beloved companion, and the delight she takes in physical existence despite advancing cancer is a model to him: “she still has a lot / to teach me about aging, about ignoring it, about how to throw my body— / even when it fails me, even when it hurts like hell—headlong into joy.” Multiple poems remember particular walks with her, such as in a Connecticut forest. He even gets a tutorial from her in how to dig a hole. Later on, he remarks as if to her, “Forgive me, I’m human, / we’re slow to learn, quick to forget— / it could be said we live too long / to appreciate each drop of time in the heart’s well.”

If his primary engagement with the nonhuman world is via a pet, Ray also widens the scope to include environmental plight: “you look up and extinction’s / already guzzling half the bestiary, / You think, / God, what have I done? / And the God in you answers: / harm, now what will you do?” This sense of responsibility meeting resolution echoes throughout the book. Ache is a spur to seek remedies; “I learned that hurt inducts all painfolk as conspirators // in the craft of healing.” The prose poems were a bit long and ranty for me (e.g., “Identity Earth: A Brief Biography of Our Planetary Self” goes on for more than six pages) and overall I found the book a little sentimental and New Age-adjacent. However, the poems about Addie are undeniably touching, and perfect for fans of Mary Oliver’s Dog Songs.

With thanks to Fly on the Wall Press for the free copy for review.

Have you read anything to tie into Disability Pride Month?