Tag Archives: ALS

Four Recommended May Releases

Here are four enjoyable books due out next month that I was lucky enough to read early. The first two are memoirs, the third is an audacious poetry book by an author new to me, and the last is the sophomore novel from an author I’ve loved before. I’ve pulled 250-word extracts from my full reviews and hope you’ll be tempted by one or more of these.


Last Things: A Graphic Memoir of Loss and Love by Marissa Moss

(Coming from Conari Press on May 1st [USA]; June 8th in UK)

“You’re not aware of last things,” Moss, a children’s book author/illustrator, writes in this wrenching memoir of losing her husband to ALS. We look forward to and celebrate all of life’s firsts, but we never know until afterwards when we’ve experienced a last. The author’s husband, Harvey Stahl, was a medieval art historian working on a book about Louis IX’s prayer book. ALS is always a devastating diagnosis, but Harvey had the particularly severe bulbar variety, and his lungs were quick to succumb. His battery-powered ventilator led to many scares – one time Moss had to plug him into the wall at a gas station and rush home for a spare battery – and he also underwent an emergency tracheotomy surgery.

This is an emotionally draining read. It’s distressing to see how, instead of drawing closer and relying on each other, Marisa and Harvey drifted apart. Harvey pushed everyone away and focused on finishing his book and returning to his academic duties. He refused to accept his limitations and resisted necessary medical interventions. Meanwhile, Moss struggled with the unwanted role of caregiver while trying not to neglect her children and her own career.

I’ve read several nonfiction books about ALS now. Compared to the other two, Moss gets the tone just right. She’s a reliable witness to a medical and bureaucratic nightmare. At the distance of years, though, she writes about the experience without bitterness. I can see this graphic novel being especially helpful to older teens with a terminally ill parent.

My rating:

 

My Life with Bob: Flawed Heroine Keeps Book of Books, Plot Ensues by Pamela Paul

(Coming from Henry Holt on May 2nd [USA]; June 13th in UK)

I hold books about books to high standards and won’t stand for the slightest hint of plot summary, filler or spoilers. It’s all too easy for an author to concentrate on certain, often obscure books that mean a lot to him/her, dissecting the plots without conveying a sense of the wider appeal. The trick is to find the universal in the particular, and vice versa.

Pamela Paul, editor of the New York Times Book Review, does this absolutely perfectly. In 1988, as a high school junior, she started keeping track of her reading in a simple notebook she dubbed “Bob,” her Book of Books. In this memoir she delves into Bob to explain how her reading both reflected and shaped her character. The focus is unfailingly on books’ interplay with her life, such that each one mentioned more than earns its place.

A page from my 2007 reading diary. Lots of mid-faith-crisis religion titles there. Starting in 2009, I think, I’ve kept this information in an annual computer file instead.

So whether she was hoarding castoffs from her bookstore job, obsessing about ticking off everything in the Norton Anthology, despairing that she’d run out of reading material in a remote yurt in China, or fretting that her husband took a fundamentally different approach to the works of Thomas Mann, Paul always looks beyond the books themselves to interrogate what they say about herself.

This is the sort of book I wish I had written. If you have even the slightest fondness for books about books, you won’t want to miss this one. I’ve found a new favorite bibliomemoir, and an early entry on the Best of 2017 list.

My rating:

 

Nature Poem by Tommy Pico

(Coming on May 9th from Tin House Books)

Tommy “Teebs” Pico is a Native American from the Kumeyaay nation and grew up on the Viejas Indian reservation. This funny, sexy, politically aware multi-part poem was written as a collective rebuttal to the kind of line he often gets in gay bars, something along the lines of ‘oh, you’re an Indian poet, so you must write about nature?’ Au contraire: Pico’s comfort zone is the urban, the pop cultural, and the technologically up-to-date – his poems are full of textspeak (“yr,” “bc” for because, “rn” for right now, “NDN” for Indian), an affectation that would ordinarily bother me but that I tolerated here because of Pico’s irrepressible sass: “I wd give a wedgie to a sacred mountain and gladly piss on the grass of / the park of poetic form / while no one’s lookin.”

Some more favorite lines:

“How do statues become more galvanizing than refugees / is not something I wd include in a nature poem.”

“Knowing the moon is inescapable tonight / and the tuft of yr chest against my shoulder blades— / This is a kind of nature I would write a poem about.”

“I can’t write a nature poem bc English is some Stockholm shit, makes me complicit in my tribe’s erasure”

“It’s hard to unhook the heavy marble Nature from the chain around yr neck / when history is stolen like water. // Reclamation suggests social / capital”

My rating:

 

The Awkward Age by Francesca Segal

(Coming on May 4th from Chatto & Windus [UK] and May 16th from Riverhead Books [USA])

I adored Segal’s first novel, The Innocents, a sophisticated remake of Edith Wharton’s The Age of Innocence set in a contemporary Jewish community in London. I wasn’t as fond of this second book, but in her study of an unusual blended family the characterization is nearly as strong as in her debut. Julia Alden lost her husband to cancer five years ago. A second chance at happiness came when James Fuller, a divorced American obstetrician, came to her for piano lessons. He soon moved into Julia and sixteen-year-old Gwen’s northwest London home, and his seventeen-year-old son, Nathan, away at boarding school, came on weekends.

Julia is as ill at ease with Nathan as James is with Gwen, and the kids seem to hate each other. That is until, on a trip to Boston for Thanksgiving with James’s ex, Gwen and Nathan fall for each other. Awkward is one way of putting it. They’re not technically step-siblings as James and Julia aren’t married, but it doesn’t sit right with the adults, and it will have unexpected consequences.

The first third or so of the book was my favorite, comparable to Jonathan Safran Foer or Jonathan Franzen. Before long the romantic comedy atmosphere tips into YA melodrama, but for me the book was saved by a few things: a balance of generations, with Gwen’s grandparents a delightful background presence; the eye to the past, whether it be Gwen’s late father or the occasional Jewish ritual; the Anglo-American element; and a realistic ending.

My rating:


Have you read any May releases that you would recommend? Which of these do you fancy?

Reviews Roundup, August–September

One of my goals with this blog is to have one convenient place where I can gather together all my writing that has appeared in disparate online locations. To that end, once a month I’ll provide links to all the book reviews I’ve published elsewhere, with a rating (below each description) and a short taster so you can decide whether to click to read more. A couple of exceptions: I won’t point out my Kirkus Indie or BlueInk reviews since I don’t get a byline.

The Bookbag

dandelion angelDandelion Angel by C.B. Calico (& interview): This was inspired by a non-fiction work, Understanding the Borderline Mother by Christine Ann Lawson. The four mother/daughter relationships in this Germany-set novel – all marked to some extent by dysfunction, physical and/or verbal abuse, and borderline personality disorder – are based on Lawson’s metaphorical classifications: the hermit, the queen, the waif, and the witch. Looping back through her four storylines in three complete cycles, Calico shows how mental illness is rooted in childhood experiences and can go on to affect a whole family.

4 star rating

The Last Pilot by Benjamin Johncock: Cinematic descriptions of the California desert setting plus excellent characters and dialogue enliven this debut novel about a fictional test pilot and his family troubles during America’s Space Race. Johncock is British, but you can tell he’s taken inspiration from stories about the dawn of the astronaut age. If I allowed myself small points of criticism, I would say that it’s a challenge to accept the passage of time in the final 50 pages, and that a keen interest in astronauts is probably a boon to keep readers going through the test flight portions, which to me were less compelling than the domestic drama of Jim, Grace and Florence.

4 star rating

home is burningHome Is Burning by Dan Marshall: At age 25, Dan Marshall went home to Salt Lake City to care for a father with ALS and a mother with leukemia. He and his four hapless siblings (a Sedaris-like clan) approached caregiving with sarcasm and dirty humor. Gleefully foul-mouthed, his memoir lacks introspective depth. He hardly ventures deeper than initial descriptions like “My gay brother, Greg” and “My adopted Native American sister, Michelle.” And even when his sentiments about his father are sincere, they are conveyed via what sound like clichés: “I wanted my poor dad to get better, not worse.” But to my surprise, Marshall made me cry in the end.

3 star rating

Of Orcas and Men by David Neiwert: Inspired by personal sightings near his home in Seattle, Neiwert set out to learn everything he could about orcas. The result is a thorough study of whales’ behavior and interactions with humanity from native mythology through modern-day aquarium shows. Some specialist interest would probably be helpful to those attempting this book, although there are plenty of black-and-white photographs to keep even casual readers interested. “Recovering our humanity may be the real gift of the orcas, what they can teach us. It’s our choice whether to listen.”

3.5 star rating


BookBrowse

this is your lifeThis Is Your Life, Harriet Chance! by Jonathan Evison [a subscription service, but an excerpt is available for free]: A widow in her seventies relives the ups and downs of her life while on an Alaskan cruise to scatter her husband’s ashes. Chapters alternate between a third-person account of the cruise and a second-person survey of Harriet’s past, delivered in the format of TV’s This Is Your Life. The narration is fresh and effective because the gradual revelations undermine Harriet’s elderly persona in such surprising ways. She is an out-of-the-ordinary but believable protagonist who, like all of us, has a mixture of victories and disappointments behind her. This is a charming novel about learning to reckon with the past.

4 star rating

speak hallSpeak by Louisa Hall [subscription service, but the full text of my review will be available for free during the week starting September 25th as part of Editor’s Choice]: Hall interweaves disparate time periods and voices to track the development of artificial intelligence. The fact that all six narratives are in different documentary formats – memoirs, letters, the transcript of a dialogue, a diary, and so on – means they are easy to distinguish. One might argue that two of them (Alan Turing’s letters and Mary’s shipboard diary) are unnecessary, and yet these are by far the most enjoyable. They prove Hall has an aptitude for historical fiction, a genre she might choose to pursue in the future. A remarkable book interrogating how the languages we converse in and the stories we tell make us human.

4 star rating


BookTrib

you too can haveYou Too Can Have a Body Like Mine by Alexandra Kleeman: Think of Alexandra Kleeman as an heir to Dave Eggers and Douglas Coupland, with a hefty dollop of Margaret Atwood thrown in. Her first novel is a full-on postmodern satire bursting with biting commentary on consumerism and conformity. Television and shopping are the twin symbolic pillars of a book about the commodification of the body. In a culture of self-alienation where we buy things we don’t need, have no idea where food comes from and desperately keep up the façade of normalcy, Kleeman’s is a fresh voice advocating the true sanity of individuality. Don’t miss her incredible debut.

5 star rating


Foreword Reviews

Conflict Communication by Rory Miller: Based on “ConCom,” the police verbal de-escalation program Miller developed with Marc MacYoung, this book aims to introduce readers to more conscious methods of verbal communication that will sidestep instinctive reactions and promote peaceful solutions. The advice is practical and intuitive, yet picks up on tiny details that most people would not notice. Concise, helpful, and well-organized, this is strongly recommended for readers interested in the psychology of violence and improving communication skills.

4 star rating

detainedDetained by Brian Rees: Rees intersperses witty e-mail updates from his tours of Iraq and Afghanistan with clued-in commentary about war tactics, terrorism, Islam, and the benefits of transcendental meditation (TM) for soldiers with PTSD. The mixture of formats and topics generally works well, though the spiritual material deserves its own book. There’s no denying Rees’s expertise, and his fluid writing keeps the pages turning. This could make a fascinating companion volume for fans of recent war fiction such as The Yellow BirdsRedeployment, and War of the Encyclopaedists.

4 star rating

talk to me of loveTalk to Me of Love by Julia Anne Bernhardt: The poems in Bernhardt’s first collection range from erotic to spiritual as they investigate love in all its forms. Repetition, rhyme, and mantras produce hypnotic sonic effects and support the central message of the epigraph: “God is in the detail.” The everyday and the eternal mix here. This well-structured collection celebrates different types of love through meditative verse. The themes’ strength is enough to recommend it to readers of Jo Shapcott and Julia Copus.

4 star rating

The Hidden Treasure of Dutch Buffalo Creek by Jackson Badgenoone: Otherworldly ghost writers (the “Neverborn”) compose biographies for ordinary people in this playfully metafictional novel. James is a strong central character whose memories from the 1950s through the present give a sense of history’s sweep, while vivid descriptive language enlivens the settings. Although well written, the book as a whole is an unusual amalgam of spiritualism, historical nostalgia, and technology. James’s story might have been better told as a simple coming-of-age novel with flashbacks.

3 star rating


Nudge

common groundCommon Ground by Rob Cowen: An unassuming patch of edge-land outside Harrogate is Cowen’s nature paradise, providing him with wildlife encounters and imaginative scenarios. Essentially, what Cowen does is give profiles of the edge-land’s inhabitants: animal and human, himself included. For instance, he creates an account of the life and death of a fox; elsewhere, he crafts a first-person narrative by a deer being hunted in medieval times. These fictions emulating Watership Down or Tarka the Otter, though well written, are out of place. When the book avoids melodramatic anthropomorphizing, it is very beautiful indeed.

4 star rating


We Love This Book

where my heartWhere My Heart Used to Beat by Sebastian Faulks: In Faulks’s thirteenth novel, his trademark themes of war, love and memory coalesce through the story of a middle-aged psychiatrist discovering the truth about his father’s death. Reminiscent of Birdsong as well as John Fowles’s The Magus and Ernest Hemingway’s A Farewell to Arms, this does not have the power of Faulks’s previous work but is a capable study of how war stories and love stories translate into personal history. [A few extra thoughts at Goodreads.]

2 star rating


I also post reviews of most of my casual reading and skimming on Goodreads.

 

how to write a novelHow to Write a Novel by Melanie Sumner: Our would-be novelist is Aris (short for Aristotle) Thibodeau, 12.5 years old and as precocious as Flavia de Luce. Diane is her single mother, and Max her downright weird younger brother. Using Write a Novel in 30 Days!, Aris is turning her family’s life story into fiction. In some ways they are very out of place here in Kanuga, Georgia. The child’s wry look at family dysfunction reminded me of Sue Townsend’s The Secret Diary of Adrian Mole, Aged 13 ¾. I would probably read something else from Sumner, so long as it wasn’t quite as silly and YA geared as this.

3 star rating

The Art of Memoir by Mary Karr: I would recommend this to anyone who reads and/or secretly wants to write memoirs; for the latter group, there is a wealth of practical advice here, on topics such as choosing the right carnal details (not sexual – or not only sexual – but physicality generally), correcting your facts and misconceptions, figuring out a structure, and settling on your voice. Along the way Karr discusses a number of favorite memoirs in detail, sometimes even line by line: Wild by Cheryl Strayed, Stop-Time by Pat Conroy, A Childhood by Harry Crews, Maya Angelou’s books, Speak, Memory by Nabokov, and so on.

4.5 star rating

Emblems of the Passing World: Poems after Photographs by August Sander by Adam Kirsch: A charming mix of historical photographs (1910s–1950s Germany) and poems. Kirsch uses his poetry to bring these one-dimensional figures to life, imagining the stories behind their generic titles (“Office Worker” or “Farming Family”) and sometimes slyly questioning the political and status connotations of such designations. One of my favorites was “Student of Philosophy.” This book could draw people whose interests usually run more to nonfiction – especially social history – into giving poetry a try. Releases November 17th.

4 star rating

browsingsBrowsings by Michael Dirda: Dirda wrote this pleasant set of bibliophilic essays for the American Scholar website in 2012–13. He’s the American equivalent of the UK’s John Sutherland: an extremely well-read doyen of the classics with a special love for Victorian and Edwardian genre fiction, often as revived by small presses and specialist societies. At times Dirda’s interests can be a bit obscure for the average reader, and some of the essays feel redundant. Still, it’s easy to relate to his addictive book purchasing and hoarding.

3 star rating

The Communist Manifesto by Karl Marx and Friedrich Engels: I read this on the train to Manchester, appropriate reading when approaching one of the UK’s biggest centers of Victorian industry and the place where Marx and Engels met to discuss ideas in the mid-1840s. Like Darwin’s Origin of Species, another seminal Victorian text, this has so many familiar lines and wonderful metaphors that have entered into common discourse that I simply assumed it was composed in English. My eyes glaze over at politics or economics, so I valued this more for its language than for its ideas. Part II, “Proletarians and Communists,” is the most focused part if you want to sample it.

4 star rating

number 11Number 11 by Jonathan Coe: This is a funny and mildly disturbing state-of-England and coming-of-age novel. I’d only read one previous book by Coe, Expo 58; this is a better example of his usual pattern: multiple, loosely linked storylines. Here the theme is the absurdity of modern culture, encompassing many aspects: unjust wars, the excesses of the uber-rich, the obsession with celebrity, and suspicion and exclusion of those who are different from us. The number 11 keeps popping up, too. My favorite parts were a Survivor-type reality television show and a laughably over-the-top prize ceremony banquet. Releases November 11th.

4 star rating

my_family_and_other_superheroes_covercosta_quicksand coverMy Family and Other Superheroes by Jonathan Edwards: Edwards displays his proud Welsh heritage with poems reflecting on his family tree and the country’s landscape. One of my favorites was “View of Valleys Village from a Hill,” in which the narrator, with a God’s-eye view of his family, envisions messing around with them. The witty “In John F. Kennedy International Airport” imagines that Wales has been abolished and recreated in miniature in a small Kansas museum (a bit like Julian Barnes’s England, England).

4 star rating

The Whole & Rain-domed Universe by Colette Bryce: Many of these poems are about the author’s Irish family inheritance, both literal and figurative, as in “Heritance”: “From her? Resilience. Generosity. / A teacher’s gravitas. / Irish stew. A sense / of the ridiculous. High ceilings.” I loved the first line of “Signature” – “When I finally gave up and became my mother.” It’s particularly nice how enjambment often makes the thought go just that one line beyond what you expect. I’d read more from Bryce.

3.5 star rating