Tag Archives: Joseph Lister

Recommended March Releases: Magnusson, May, Moor and More

March has been a huge month for new releases. With so many authors feeling let down about book tours and events being cancelled, it’s a great time for bloggers to step in and help. I attended two virtual book launches on Twitter on the 19th and have another one coming up on the 31st. I also have three more March releases on order from my local indie bookstore: Greenery by Tim Dee, tracking the arrival of spring; Footprints by David Farrier, about the fossil traces modern humans will leave behind; and The Bass Rock by Evie Wyld, a novel about violence against women set on the Scottish coast in three different time periods.

Today I have short reviews of five March releases I recommend (plus a bonus one now out in paperback): a Victorian pastiche infused with Scottish folklore, an essay collection about disparate experiences of motherhood, a thriller about victims of domestic violence, poems in graphic novel form, a novel about natural and personal disasters in Australia, and a lovely story of friendship and literature changing a young man’s life forever. All:

 

The Ninth Child by Sally Magnusson

(Published by Two Roads on the 19th)

Like Hannah Kent’s The Good People and Sarah Perry’s The Essex Serpent, this is an intense, convincing work of fiction that balances historical realism with magical elements. In mid-1850s Britain, in the wake of a cholera epidemic, there is a drive to ensure clean water. Alexander Aird, hired as the on-site physician for the Glasgow waterworks, moves to the Loch Katrine environs with his wife, Isabel, who has had eight miscarriages or stillbirths. With no living babies requiring her care, Isabel spends her days wandering the hills and meets a strange scarecrow of a man, Reverend Robert Kirke … who died in 1692.

A real-life Episcopalian minister, Kirke wrote a book about fairies and other Celtic supernatural beings and, legend has it (as recounted by Sir Walter Scott and others), was taken into the faery realm after his death and continued to walk the earth looking for rest. It takes a while for Isabel to learn the truth about Kirke – though her servant, Kirsty McEchern, immediately intuits that something isn’t right about the man – and longer still to understand that he wants something from her. “Whatever else, Robert Kirke could be relied on to ruffle this mind of hers that was slowly opening to experience again, and to thinking, and to life.”

This was a rollicking read that drew me in for its medical elements (premature birth, a visit to Joseph Lister, interest in Florence Nightingale’s nursing methods) as well as the plot. It often breaks from the omniscient third-person voice to give testimonies from Kirsty and from Kirke himself. There are also amusing glimpses into the Royal household when Victoria and Albert stay at Balmoral and return to open the waterworks during the “heaviest, windiest, most umbrella-savaging, face-slashing deluge that Scotland had experienced in twenty years.” Best of all, it gives a very different picture of women’s lives in the Victorian period.

My thanks to the publisher for the proof copy for review.

 

The Best Most Awful Job: Twenty Writers Talk Honestly about Motherhood, edited by Katherine May

(Published by Elliott & Thompson on the 19th)

These are essays for everyone who has had a mother – not just everyone who has been a mother. I enjoyed every piece separately, but together they form a vibrant collage of women’s experiences. Care has been taken to represent a wide range of situations and attitudes. The reflections are honest about physical as well as emotional changes, with midwife Leah Hazard (author of Hard Pushed) kicking off with an eye-opening rundown of the intimate scarring some mothers will have for the rest of their lives. We hear from a mother of six who’s “addicted” to pregnancy (Jodi Bartle), but also from a woman who, after an ectopic pregnancy, realized “there are lots of ways to mother, even if your body won’t let you” (Peggy Riley, in one of my two favorite pieces in the book).

Women from BAME communities recount some special challenges related to cultural and family expectations, but others that are universal. An autistic mother (Joanne Limburg) has to work out how to parent a neurotypical child; queer parents (including author Michelle Tea) wonder how to raise a son at a time of toxic masculinity. There are also several single mothers, one of them disabled (Josie George – hers was my other favorite essay; do follow her on Twitter via @porridgebrain if you don’t already).

What I most appreciated is that these authors aren’t saying what they think they should say about motherhood; they’re willing to admit to boredom, disappointment and rage: “motherhood is an infinite, relentless slog from which there is no rest or recuperation … a ceaseless labour, often devoid of acknowledgment, recognition and appreciation” (Javaria Akbar); “I step barefoot on a rogue piece of Lego and it’s game over. I scream” (Saima Mir). These are punchy, distinctive slices of life writing perfectly timed for Mother’s Day. I plan to pass the book around my book club; mothers or not, I know everyone will appreciate it.

My thanks to the publisher for the proof copy for review.

 

Keeper by Jessica Moor

(Published by Viking/Penguin on the 19th)

Val McDermid and Jeanette Winterson are among the fans of this, Penguin’s lead debut title of 2020. When a young woman is found drowned at a popular suicide site in the Manchester area, the police plan to dismiss the case as an open-and-shut suicide. But the others at the women’s shelter where Katie Straw worked aren’t convinced, and for nearly the whole span of this taut psychological thriller readers are left to wonder if it was suicide or murder.

The novel alternates between chapters marked “Then” and “Now”: in the latter story line, we follow the police investigation and meet the women of the refuge; in the former, we dive into Katie’s own experience of an abusive relationship back in London. While her mother was dying of cancer she found it comforting to have a boyfriend who was so attentive to her needs, but eventually Jamie’s obsessive love became confining.

I almost never pick up a mystery, but this one was well worth making an exception for. I started suspecting the twist at maybe the two-thirds point, but that didn’t detract from my enjoyment. Based on Moor’s year working in the violence against women sector, it’s a gripping and grimly fascinating story of why women stay with their abusers and what finally drives them to leave.

I picked up a proof copy at a Penguin Influencers event.

 

Poems to See by: A Comic Artist Interprets Great Poetry by Julian Peters

(To be published by Plough Publishing House on the 31st)

Peters is a comics artist based in Montreal. Here he has chosen 24 reasonably well-known poems by the likes of e.e. cummings, Emily Dickinson, Robert Frost, Seamus Heaney, Langston Hughes, Edgar Allan Poe, Christina Rossetti and W.B. Yeats and illustrated each one in a markedly different fashion. From black-and-white manga to a riot of color and music, from minimalist calligraphy-like Japanese watercolor to imitations of Brueghel, there is such a diversity of style here that at first I presumed there were multiple artists involved (as in one of my favorite graphic novels of last year, ABC of Typography, where the text was written by one author but each chapter had a different illustrator). But no, this is all Peters’ work; I was impressed by his versatility.

The illustrations range from realistic to abstract, with some more obviously cartoon-like. A couple of sequences reminded me of the style of Raymond Briggs. For “Caged Bird” by Maya Angelou, lines are inlaid on the squares of a painted patchwork quilt. Other sets look to have been done via wood engraving, or with old-fashioned crayons. You could quibble with the more obvious poetry selections, but I encountered a few that were new to me, including “Buffalo Dusk” by Carl Sandburg and “Conscientious Objector” by Edna St. Vincent Millay. Peters has grouped them into six thematic categories: self, others, art, nature, time and death. Teenagers, especially, will enjoy the introduction to a variety of poets and comics styles.

I read an e-copy via NetGalley.

  

The Inland Sea by Madeleine Watts

(Published by ONE/Pushkin on the 5th)

“Emergency police fire, or ambulance?” The young female narrator of this debut novel lives in Sydney and works for Australia’s emergency call service. Over her phone headset she gets appalling glimpses into people’s worst moments: a woman cowers from her abusive partner; a teen watches his body-boarding friend being attacked by a shark. Although she strives for detachment, her job can’t fail to add to her anxiety – already soaring due to the country’s flooding and bush fires.

Against that backdrop of natural disasters, a series of minor personal catastrophes play out. The narrator is obsessed with a rape/murder case that’s dominating the television news, and narrowly escapes sexual assault herself. She drinks to excess, keeps hooking up with her ex-boyfriend, Lachlan, even after he gets a new girlfriend, and seems to think abortion and the morning after pill are suitable methods of birth control. Irresponsible to the point of self-sabotage, she’s planning a move to London but in the meantime is drifting through life, resigned to the fact that there is no unassailable shelter and no surefire way to avoid risk.

The title comes from the quest of John Oxley (presented here as the narrator’s ancestor), who in 1817 searched for a water body in the Australian interior. Quotations from his journals and discussions of the work of Patrick White, the subject of Lachlan’s PhD thesis, speak to the search for an Australian identity. But the inland sea is also the individual psyche, contradictory and ultimately unknowable. Like a more melancholy version of Jenny Offill’s Weather or a more cosmic autofiction than Yara Rodrigues Fowler’s Stubborn Archivist, this is a timely, quietly forceful story of how women cope with concrete and existential threats.

My thanks to the publisher for the PDF copy for review.

 

And a bonus…

 

The Offing by Benjamin Myers (2019)

(Paperback published by Bloomsbury on the 5th)

With the Second World War only recently ended and nothing awaiting him apart from the coal mine where his father works, sixteen-year-old Robert Appleyard sets out on a journey. From his home in County Durham, he walks southeast, doing odd jobs along the way in exchange for food and lodgings. One day he wanders down a lane near Robin Hood’s Bay and gets a surprisingly warm welcome from a cottage owner, middle-aged Dulcie Piper, who invites him in for tea and elicits his story. Almost accidentally, he ends up staying for the rest of the summer, clearing scrub and renovating her garden studio.

Dulcie is tall, outspoken and unconventional – I pictured her as (Meryl Streep as) Julia Child in the movie Julie & Julia. She introduces Robert to whole new ways of thinking: that not everyone believes in God, that Germans might not be all bad, that life can be about adventure and pleasure instead of duty. “The offing” is a term for the horizon, as well as the title of a set of poems Robert finds in the dilapidated studio, and both literature and ambition change his life forever. Bright, languid and unpredictable, the novel delights in everyday sensual pleasures like long walks with a dog, dips in the ocean and an abundance of good food. I can’t think of another book I’ve read that’s quite like it – how refreshing is that?

I pre-ordered the paperback using a Waterstones voucher I got for Christmas.

  

What recent releases can you recommend?

Wellcome Book Prize Shortlist Event

Five of the six shortlisted authors (barring Dublin-based Mark O’Connell) were at the Wellcome Collection in London yesterday to share more about their books in mini-interviews with Lisa O’Kelly, the associate editor of the Observer. She called each author up onto the stage in turn for a five-minute chat about her work, and then brought them all up for a general conversation and audience questions. Clare and I found it a very interesting afternoon. Here’s some context that I gleaned about the five books and their writers.

Ayobami Adebayo says sickle cell anemia is a massive public health problem in Nigeria, as brought home to her when some friends died of complications of sickle cell. She herself was tested for the gene and learned that she is a carrier, so her children would have a 25% chance of having the disease if her partner was also a carrier. Although life expectancy with the disease has improved to 45–50, a cure is still out of reach for most Nigerians because bone marrow/stem cell transplantation and anti-rejection drugs are so expensive. Compared to the 1980s, when her book opens, she believes polygamy is becoming less fashionable in Nigeria and people are becoming more open to other means of becoming parents, whether IVF or adoption. It’s a way of acknowledging, she says, that parenthood is “not just about biology.”

Sigrid Rausing started writing her book soon after her sister-in-law Eva’s body was found: just random paragraphs to make sense of what had happened. From there it became an investigation, a quest to find the nature of addiction. She thinks that as a society we still don’t quite understand what addiction is, and the medical research and public perception are very separate. In addition to nature and nurture, she thinks we should consider the influence of culture – as an anthropologist by training, she’s very interested in drug culture and how that drew in her brother, Hans. Although there have been many memoirs by ex-addicts, she can’t think of another one by a family member. Perhaps, she suggested, this is because the addict is seen as the ultimate victim. She referred to her book as a “collage,” a very apt description.

Kathryn Mannix spoke of how her grandmother, born in 1900, saw so much more death than we do nowadays: siblings, a child, and so on. Today, though, Mannix has encountered people in their sixties who are facing, with their parents, their very first deaths. Death is fairly “gentle” and “dull” if you’re not directly involved, she insists; she blames Hollywood and Eastenders for showing unusually dramatic deaths. She said once you understand what exactly people are afraid of about dying (e.g. hell, oblivion, pain, leaving their families behind) you can address their specific concerns and thereby “beat out the demon of terror and fear.” Mannix never intended to write a book, but someone heard her on the radio and invited her to do so. Luckily, from her medical school days onward, she’d been writing an A4 page about each of her most mind-boggling cases to get them out of her head and move on. That’s why, as O’Kelly put it, the characters in her 30 stories “leap off the page.”

Mannix, Adebayo, O’Kelly, Rausing, Wadman & Fitzharris

Lindsey Fitzharris called The Butchering Art “a love story between science and medicine” – it was the first time that the former (antisepsis) was applied to the latter. She initially thought Robert Liston was her man – he was so colorful, larger than life – but eventually found that the real story was with Joseph Lister, the quiet, persistent Quaker. (However, the book does open with Liston performing the first surgery under ether.) Fitzharris is also involved in the Order of the Good Death, author Caitlin Doughty’s initiative, and affirmed Mannix’s efforts to remove the taboo from talking about death. I think I heard correctly that she said there is a film of The Butchering Art in the works?! I’ll need to look into that some more.

Meredith Wadman started with a brief explanation of how immunization works and why the 1960s were ripe for vaccine research. This segment went really science-y, which I thought was a little unfortunate as it may have made listeners tune out and be less interested in her work than the others’. It was perhaps inevitable given her subject matter, but also a matter of the questions O’Kelly asked – with the others she focused more on stories and themes than on scientific facts. It was interesting to hear what Wadman has been working on recently: for the past 6–8 months, she’s been reporting for Science on sexual harassment in science. For her next book, though, she’s pondering the conflict between a congressman and a Centers for Disease Control scientist over funding into research that might lead to gun control.

 


The question time brought up the issues of medical misinformation online, the distrust people with chronic illnesses have of medical professionals, and euthanasia – Mannix rather dodged that one, stating that her book is about the natural dying process so that’s not really her area. (Though it does come up in a chapter of her book.) We also heard a bit about the projects up next for each author. Rausing’s next book will be a travel memoir about the Capetown drought, taking in apartheid and her husband’s family’s immigration. Adebayo is at work on a very nebulous novel “about people,” and possibly how privilege affects access to healthcare.

Wellcome Book Prize: Shortlist Recap

Tomorrow morning we will announce our Wellcome Book Prize 2018 shadow panel winner. Beforehand I wanted to do a quick recap of my reviews, especially for the two books that I read before the shortlist announcement. My full reviews are here:

Stay with Me by Ayobami Adebayo 

To Be a Machine by Mark O’Connell 

Mayhem by Sigrid Rausing  

The Vaccine Race by Meredith Wadman 

 

I give some extra thoughts on and favorite quotes from the other two below:

 

The Butchering Art by Lindsey Fitzharris

This is a great blend of medical history and popular science that should draw in readers who wouldn’t normally gravitate to either topic – provided they aren’t too squeamish. Fitzharris has recently returned to Oxford as a visiting academic, and this has also been nominated for the Wolfson History Prize. Follow her on Instagram (@drlindseyfitzharris) for a steady stream of gruesomely fascinating photos (I wish The Butchering Art had been illustrated!). Her next book will be much of a muchness, it seems, documenting the early years of plastic surgery after World War I through the story of pioneering surgeon Harold Gillies. 


In the days before Joseph Lister…

“Operating theaters were gateways to death. It was safer to have an operation at  home than in a hospital, where mortality rates were three to five times higher than they were in domestic settings.”

“The surgeon was very much viewed as a manual labourer who used his hands to make his living, much like a key cutter or plumber today.”

See what the rest of the shadow panel has to say about this book:

Annabel’s review: “[A]n extremely readable account of a ground-breaking career which led to real advances in hospital medicine. I enjoyed the whole, but particularly the grisly bits!”

Laura’s review: “It’s easy for me to feel a bit impatient with popular histories of periods or subjects that I know well, but Fitzharris strikes exactly the right note, writing clearly and accessibly with no dumbing down.”

Paul’s review: “It is one of the better books that I have read on medical history[;] Fitzharris writes in an engaging way on a subject that is not going to appeal to everyone, but in amongst all the blood is the fascinating story of Joseph Lister.”

 

With the End in Mind by Kathryn Mannix

“It’s time to talk about dying. This is my way of promoting the conversation,” Mannix writes in her introduction to this accessible and reassuring book about death. She believes we are afraid of death because of our misconception that it is inevitably painful and undignified. In her decades of working in hospice care, this has rarely been the case. (Thank goodness that, compared to the earlier nineteenth-century situation Fitzharris surveys, we have reliable pain control options.) Mannix sees the role of the hospice worker as being like a midwife for the dying, a helpful idea I first encountered in Henry Fersko-Weiss’s Caring for the Dying: The Doula Approach to a Meaningful Death


Many of the stories in this book are of peaceful deaths the patient and family had time to prepare for. Others are sad stories of denial. One, though, is quite gruesome, yet magnificently described. Alex, a young man with testicular teratoma, has a massive GI bleed:

“Alex’s head is thrown back, almost as though it is a voluntary movement. A huge, dark-red python slithers rapidly out of his mouth, pushing his head backwards as it coils itself onto the pillow beside him; the python is wet and gleaming and begins to stain the pillowcase and sheets with its red essence as Alex takes one snoring breath, and then stops breathing. His mother screams as he realises that the python is Alex’s blood. Probably all of his blood.”

See what the rest of the shadow panel has to say about this book:

Annabel’s review: “[I]t is helping patients, and their families and loved ones, to understand the process of dying, and dispelling the taboos around it that make this book such a valuable and compelling read. I wish I’d read something like this book before my mum died.”

Clare’s review: “For me, this enlightening book is a strong potential winner for the Wellcome Book Prize and I hope it brings comfort and guidance for those who need it.”

Laura’s review: “[The book is] written from her own experiences as a specialist in palliative care, and this proved, for me, both its strength and its downfall. … Mannix writes particularly well on the characteristic patterns of somebody who is entering a gradual decline.”

Paul’s review: “Can highly recommend this moving book and I think it should be essential reading for anyone who has any concerns about death.”

 


I wouldn’t be at all surprised to see either of these win the Wellcome Book Prize on Monday. Stay tuned for tomorrow’s shadow panel winner announcement, and Sunday’s write-up of a shortlist event I’m attending in London.

One More Wellcome Longlist Review & Shortlist Predictions

Tomorrow the six titles on the Wellcome Book Prize shortlist will be revealed. I’ve managed to read one more from the longlist since my last batch.

 

The Butchering Art: Joseph Lister’s Quest to Transform the Grisly World of Victorian Medicine by Lindsey Fitzharris

Surgery was a gory business with a notably high fatality rate well into the nineteenth century. Surgeons had the fastest hands in the West, but their victims were still guaranteed at least a few minutes of utter agony as they had a limb amputated or a tumor removed, and the danger wasn’t over after they were sewn up either: most patients soon died from hospital infections. The development of anesthetics and antiseptic techniques helped to change all that.

Fitzharris opens with the vivid and rather gruesome scene of a mid-thigh amputation performed by Robert Liston at University College Hospital in London in 1846. This surgery was different, though: it only took 28 seconds, but the patient felt nothing thanks to the ether he had been administered. He woke up a few minutes later asking when the procedure would begin. In the audience that day was Joseph Lister, who would become one of Britain’s most admired surgeons.

Lister came from a Quaker family and, after being educated at University College London, started his career in Edinburgh. Different to many medical professionals of the time, he was fascinated by microscopy and determined to find out what caused deadly infections. Carbolic acid and catgut ligatures were two of Lister’s main innovations that helped to fight infection. In fact, whether we realize it or not, his legacy is forever associated with antiseptics: Listerine mouthwash (invented in 1879) is named after him, and the Johnson brothers of Johnson & Johnson fame started their business mass-producing sterile surgical dressings after attending one of Lister’s lectures.

My interest tailed off a bit after the first third, as the book starts going into more depth about Lister’s work and personal life: he married his boss’s daughter and moved from Edinburgh to Glasgow and then back to London. However, the best is yet to come: the accounts of the surgeries he performed on his sister (a mastectomy that bought her three more years of life) and Queen Victoria (removing an orange-sized abscess from under her arm) are terrific. The chapter on treating the queen in secret at Balmoral Castle in 1871 was my overall favorite.

It probably wasn’t the best idea to start this book over my lunch one day!

I was that kid who loved going to Civil War battlefields and medical museums and looking at all the different surgical saws and bullet fragments in museum cases, so I reveled in the gory details here but was not as interested in the biographical material. Do be sure you have a strong stomach before you try reading the prologue over a meal. This is a comparable read to The Remedy, about the search for a cure to tuberculosis.

My rating:

 


Shortlist Predictions

Now, I’ve still only read half of the longlisted titles so far, so it’s hard to make any solid guesses. However, the below fall somewhere between wishes and informed predictions:

  1. In Pursuit of Memory by Joseph Jebelli: A definitive treatment of an epidemic of our time, Alzheimer’s disease. The neuroscientist author achieves the right balance between history and research on the one hand and personal stories readers can relate to on the other.
  2. The White Book by Han Kang: The only fiction title from the longlist that I haven’t read at least part of. This is also on this year’s Man Booker International Prize longlist and has been well received. From what I can tell, the health theme seems stronger than that of Stay with Me or Midwinter Break, and it would also be nice for one title in translation to make the shortlist.
  3. With the End in Mind by Kathryn Mannix: As I said in my review last week, this is an excellent all-round guide to preparation for death, based around touching patient stories plus the author’s experience in palliative care and CBT. Practical, compassionate and helpful.
  4. I Am, I Am, I Am by Maggie O’Farrell: For me, this book stands out as the one that most clearly illuminates the effects of illness, medical treatment, and other threats to life and limb in the course of an ordinary existence. I’d be very happy to see it win the whole thing.
  5. EITHER The Butchering Art by Lindsey Fitzharris OR The Vaccine Race by Meredith Wadman: I reckon one history of science title deserves to be on there; I think Wadman might have the slight edge.
  6. EITHER To Be a Machine by Mark O’Connell OR Behave by Robert Sapolsky: The Wellcome Prize loves big books investigating human tendencies and possibilities. I find the thought of either of these daunting, but I know they would also be illuminating. I’d prefer to read the O’Connell, but I’d give the edge to Sapolsky.

Any predictions of your own to make?

Wellcome Book Prize Shadow Panel & Two Longlist Reviews

I’m delighted to announce the other book bloggers on my Wellcome Book Prize 2018 shadow panel: Paul Cheney of Halfman, Halfbook, Annabel Gaskell of Annabookbel, Clare Rowland of A Little Blog of Books, and Dr. Laura Tisdall. Once the shortlist is announced on Tuesday the 20th, we’ll be reading through the six nominees and sharing our thoughts. Before the official winner is announced at the end of April we will choose our own shadow winner.

I’ve been working my way through some of the longlisted titles I was able to access via the public library and NetGalley. Here’s my latest two (both ):

Plot 29: A Memoir by Allan Jenkins

This is an unusual hybrid memoir: it’s a meditative tour through the gardening year, on a plot in London and at his second home in his wife’s native Denmark. But it’s also the story of how Jenkins, editor of the Observer Food Monthly, investigated his early life. Handed over to a Barnardo’s home at a few months of age, he was passed between various family members and a stepfather (with some degree of neglect: his notes show scabies, rickets and TB) and then raised by strict foster parents in Devon with his beloved older half-brother, Christopher. It’s interesting to read that initially Jenkins intended to write a simple gardening diary, with a bit of personal stuff thrown in. But as he got further into the project, it started to morph.

This cover image is so sweet. It’s a photograph from Summer 1959 of Christopher and Allan (on the right, aged five), just after they were taken in by their foster parents in Devon.

The book has a complicated chronology: though arranged by month, within chapters its fragments jump around in time, a year or a date at the start helping the reader to orient herself between flashbacks and the contemporary story line. Sections are often just a paragraph long; sometimes up to a page or two. I suspect some will find the structure difficult and distancing. It certainly made me read the book slowly, which I think was the right way. You take your time adjusting to the gradual personal unveiling just as you do to the slow turn of the seasons. When major things do happen – meeting his mother in his 30s; learning who his father was in his 60s – they’re almost anticlimactic, perhaps because of the rather flat style. It’s the process that has mattered, and gardening has granted solace along the way.

I’m grateful to the longlist for making me aware of a book I otherwise might never have heard about. I don’t think the book’s mental health theme is strong enough for it to make the shortlist, but I enjoyed reading it and I’ll also take a look at Jenkins’s upcoming book, Morning, about the joys of being an early riser. (Ironic after my recent revelations about my own sleep patterns!)

 

Favorite lines:

“Solitude plus community, the constant I search for, the same as the allotment”

“The last element to be released from Pandora’s box, they say, was hope. So I will mourn the children we once were and I will sow chicory for bitterness. I will plant spring beans and alliums. I’ll look after them.”

“As a journalist, I have learned the five Ws – who, what, where, when, why. They are all needed to tell a story, we are taught, but too many are missing in my tale.”

 


With the End in Mind: Dying, Death and Wisdom in an Age of Denial by Kathryn Mannix

This is an excellent all-round guide to preparation for death. It’s based around relatable stories of the patients Mannix met in her decades working in the fields of cancer treatment and hospice care. She has a particular interest in combining CBT with palliative care to help the dying approach their remaining time with realism rather than pessimism. In many cases this involves talking patients and their loved ones through the steps of dying and explaining the patterns – decreased energy, increased time spent asleep, a change in breathing just before the end – as well as being clear about how suffering can be eased.

I read the first 20% on my Kindle and then skimmed the rest in a library copy. This was not because I wasn’t enjoying it, but because it was a two-week loan and I was conscious of needing to move on to other longlist books. It may also be because I have read quite a number of books with similar themes and scope – including Caitlin Doughty’s two books on death, Caring for the Dying by Henry Fersko-Weiss, Being Mortal by Atul Gawande, and Waiting for the Last Bus by Richard Holloway. Really this is the kind of book I would like to own a copy of and read steadily, just a chapter a week. Mannix’s introductions to each section and chapter, and the Pause for Thought pages at the end of each chapter, mean the book lends itself to being read as a handbook, perhaps in tandem with an ill relative.

The book is unique in giving a doctor’s perspective but telling the stories of patients and their families, so we see a whole range of emotions and attitudes: denial, anger, regret, fear and so on. Tears were never far from my eyes as I read about a head teacher with motor neurone disease; a pair of women with metastatic breast cancer who broke their hips and ended up as hospice roommates; a beautiful young woman who didn’t want to stop wearing her skinny jeans even though they were exacerbating her nerve pain, as then she’d feel like she’d given up; and a husband and wife who each thought the other didn’t know she was dying of cancer.

Mannix believes there’s something special about people who are approaching the end of their life. There’s wisdom, dignity, even holiness surrounding them. It’s clear she feels she’s been honored to work with the dying, and she’s helped to propagate a healthy approach to death. As her children told her when they visited her dying godmother, “you and Dad [a pathologist] have spent a lifetime preparing us for this. No one else at school ever talked about death. It was just a Thing in our house. And now look – it’s OK. We know what to expect. We don’t feel frightened. We can do it. This is what you wanted for us, not to be afraid.”

I would be happy to see this advance to the shortlist.

 

Favorite lines:

“‘So, how long has she got?’ I hate this question. It’s almost impossible to answer, yet people ask as though it’s a calculation of change from a pound. It’s not a number – it’s a direction of travel, a movement over time, a tiptoe journey towards a tipping point. I give my most honest, most direct answer: I don’t know exactly. But I can tell you how I estimate, and then we can guesstimate together.”

“we are privileged to accompany people through moments of enormous meaning and power; moments to be remembered and retold as family legends and, if we get the care right, to reassure and encourage future generations as they face these great events themselves.”

 


Longlist strategy:

Currently reading: The Butchering Art by Lindsey Fitzharris: a history of early surgery and the fight against hospital infection, with a focus on the life and work of Joseph Lister.

Up next: I’ve requested review copies of The White Book by Han Kang and Mayhem by Sigrid Rausing, but if they don’t make it to the shortlist they’ll slip down the list of priorities.