February Releases by de Visser, George, Lawson, and Smiley
Nonfiction about doctors’ memorable patients and a life of chronic pain and disability; novels set in 1970s Canada and contemporary (but magically outside-of-time) Paris.
That One Patient: Doctors’ and nurses’ stories of the patients who changed their lives forever by Ellen de Visser
[Translated from the Dutch by Brent Annable]
Ellen de Visser is a science writer for the most popular newspaper in the Netherlands, De Volkskrant. Her “That One Patient” column, which began in the summer of 2017, turns interviews with medical professionals into punchy first-person narratives. A collection of them was published in Dutch in 2019. This English translation tacks on 10 additional pieces based on conversations with English and American practitioners (including Dr. Anthony Fauci, immunologist and presidential medical advisor), four of them explicitly reflecting on COVID-19.
Many of the cases are decades old yet stuck with the doctor or nurse in question because of a vital lesson learned. Overtreatment is regretted just as much as an omission of care. Again and again, these medical professionals conclude that it’s impossible to judge someone else’s decisions or quality of life. For instance, a surgeon admits he had a hard time empathizing with his obese patients undergoing stomach reduction until he followed up with a young woman who told him about how invisible she’d felt before her surgery. Premature and disabled children bring grief or joy, not always in the expected doses. A doctor resents the work his team puts into repairing a woman who jumped from an eighth-floor window – why the heroic measures for someone who wanted to die? – until he learns she was pushed. A cancer surgeon develops breast cancer and now knows exactly what her patients go through.
Some of these stories are disturbing: being stalked by a patient with a personality disorder, a man poisoning his girlfriend, a farmer predicting the very day and time of his death. A gynaecologist changes his mind about abortion after he meets a 15-year-old who gave birth at home and left her baby outside in a plastic bag to die of exposure. Other pieces are heart-warming: A paramedic delivers a premature, breech baby right in the ambulance. Staff throw a wedding at the hospital for a dying teen (as in Dear Life by Rachel Clarke). A woman diagnosed with cancer while pregnant has chemotherapy and a healthy baby – now a teenager. There’s even a tale from a vet who crowdfunded prostheses for a lively terrier.
One unique thing about the Netherlands is that euthanasia is legal and provided by doctors upon the express request of a patient suffering from a terminal illness. It is taken for granted in these essays, yet some interviewees express their discomfort with it as an option for young patients. De Visser is careful to note that, even with the situation as it is, only 4% of deaths in the Netherlands are by euthanasia, and the majority of these are end-stage cancer cases.
As with any collection of this nature, some stories are more enticing than others, but overall I found it a surprising and moving set of reflections that is alive to ethical complexities and grapples with tough issues like disability, doctor error, loneliness, pain, and sense of purpose.
Two quotes, in particular, stood out to me, one from a nurse – “We are only ever guests in other people’s lives, and that’s how we ought to behave” – and the other from Dr. Fauci’s piece. In 2014 he treated a doctor who had been volunteering in Sierra Leone after an Ebola outbreak but became ill with the virus and had to be evacuated. “He cited Hippocrates: ‘It is far more important to know what sort of person has the disease, rather than what sort of disease the person has.’ You treated me like a person, not a disease, he said. And that’s what medicine is all about.” 
With thanks to 4th Estate for the proof copy for review.
A Still Life: A Memoir by Josie George
Over a year of lockdowns, many of us have become accustomed to spending most of the time at home. But for Josie George, social isolation is nothing new. Chronic illness long ago reduced her territory to her home and garden. The magic of A Still Life is in how she finds joy and purpose despite extreme limitations. Opening on New Year’s Day and travelling from one winter to the next, the book is a window onto George’s quiet existence as well as the turning of the seasons. (My full review will appear in a forthcoming issue of the Times Literary Supplement. See also Eleanor’s thorough review.) This is top of my wish list for next year’s Barbellion Prize shortlist. 
With thanks to Bloomsbury for the proof copy for review.
A Town Called Solace by Mary Lawson
I discovered Mary Lawson in 2015 with Road Ends and caught up with Crow Lake in the summer of 2019. All four of her books are set in fictional locations inspired by the villages and rural areas of Northern Ontario, where the author grew up before moving to England in 1968. So Solace, while not a real town, is true to her memory and, despite the sometimes gruff or know-it-all locals, an emotional landmark for the three central characters, all of whom are processing trauma and looking for places of comfort where they can start over.
1972. First we meet Clara, a plucky seven-year-old sitting vigil. She’s waiting for the return of two people: her sixteen-year-old sister, Rose, who ran away from home; and their next-door neighbour, Mrs. Orchard, whose cat, Moses, she’s feeding until the old lady gets back from the hospital. As days turn into weeks, though, it seems less likely that either will come home, and one day Clara sees a strange man moving boxes around in Mrs. Orchard’s house. This is Liam Kane, who’s inherited the house from a family friend. In his thirties and recently divorced, he’s taking a break in this tiny town, never imagining that he might find a new life. The third protagonist, and only first-person narrator, is Elizabeth, who lies in a hospital bed with heart trouble and voices her memories as a monologue to her late husband.
As we cycle through these three characters’ perspectives in alternating chapters, we gradually come to understand the connections between them. There are satisfying parallels in that, on multiple occasions but in slightly different ways, a child attaches to an older person or an adult stands in as a guardian for a neglected child. All of Lawson’s creations, even the secondary figures, are dealing with distressing memories or a loss of some kind, the details of which might only emerge much later on. Solace offers myriad opportunities for recovery, whether kitty playtime at Mrs. Orchard’s or diner food and homemade ice cream.
Like Lawson’s other works, this is a slow burner featuring troubled families. Her characters, often full of regret and sorrow, take a shadowy past as a prompt to reset their lives. They’re charming in spite of their flaws. I recalled that Crow Lake also looks back to the climactic happenings experienced by a seven-year-old girl. And like Road Ends, A Town Called Solace makes a convincing case for present decisions being influenced by historical trauma. It’s a tender and inviting story I’d recommend to readers of Wendy McGrath and Anne Tyler, with Clever Girl by Tessa Hadley and Olive, Again by Elizabeth Strout as specific readalikes. (My dilemma now is whether to read my only remaining Lawson novel, The Other Side of the Bridge, right away or save it: she’s not the most prolific author, with four books in 19 years.)
A favorite passage:
[Liam’s] life prior to coming north seemed to be taking on the quality of an old movie, one in which he’d been deeply engrossed while watching it but which now seemed trivial, unconvincing and profoundly lacking in either colour or plot. Solace had colour and plot in spades, maybe too much. In every way it was coming to seem more real than Toronto, with its endless malls and traffic jams and high-powered jobs. Though maybe, if he went back to Toronto, the same would be true in reverse. Maybe when he’d been back for a couple of months he’d find that it was Solace that seemed unreal, its unremarkable streets and stores like something from a dream, its dramatic landscape fading to nothing, like a holiday photo left in the sun.
With thanks to Chatto & Windus for the free copy for review.
The Strays of Paris by Jane Smiley
(Published in the USA in December 2020 under the title Perestroika in Paris. It’s been given a The Boy, the Mole, the Fox and the Horse treatment for its UK release.)
My summary for Bookmarks magazine: “A racehorse, Perestroika—nicknamed Paras—strays from her unlocked suburban stable one day, carrying her groom’s purse in her mouth, and ends up in Paris’s Place du Trocadéro. Here she meets Frida the dog, Sid and Nancy the mallards, and Raoul the raven. Frida, whose homeless owner died, knows about money. She takes euros from the purse to buy food from a local market, while Paras gets treats from a baker on predawn walks. Etienne, an eight-year-old orphan who lives with his ancient great-grandmother, visits the snowy park to feed the wary animals (who can talk to each other), and offers Paras a home. A sweet fable for animal lovers.”
Yes, this is a talking animal book, but the animals only talk to each other; they communicate with humans through their gestures and soulful eyes. Kindly shopkeepers work out what Frida wants to buy based on what she stares at or points to with a paw; the baker whose window Paras passes on her early morning walks intuits that the horse is hungry; Etienne, who gives a couple of the stray animals a home during a chill winter, learns to understand when Paras needs to go out to relieve herself, after piles of dung build up in the sitting room.
I liked how patiently and convincingly Smiley builds the portrait of each character – human or animal – and the overall situation of kindness and good fortune. Raoul is particularly amusing for his birdsplaining: “It is a feature of age. I have learned so many things in my life that they just force their way out of my beak,” he says. However, a crow would be much more realistic for Paris (or any city) than a raven, and, overall, this was a little twee and farfetched for my tastes. It was nice to read something a bit different from Smiley, who I haven’t tried since her Last Hundred Years Trilogy. She has a sideline in YA horse novels; this should probably have been lumped with those. 
(Annabel liked it a bit more.)
I was sent an unsolicited review copy by Picador/Mantle.
What recent releases can you recommend?
Ex Libris x 2: Who Wears It Better, Anne Fadiman or Michiko Kakutani?
When I heard about the new book by Michiko Kakutani, former chief book critic of the New York Times, I rushed to put it on my wish list – though I ended up accessing it via the library instead. I also felt a hankering to reread Anne Fadiman’s essay collection by the same title, so I ordered myself a secondhand copy earlier this year. Both books are by (more or less) famous New York City bibliophiles and take old-fashioned bookplate designs as an inspiration. Here’s how the two fared in a head-to-head battle.
Ex Libris: Confessions of a Common Reader by Anne Fadiman (1998)
Like many a bibliophile, I have a soft spot for books about books. However, I’m also a real stickler about them, because all too often they make common mistakes: they’re too generic or too obscure in their points of reference, they slip into plot summary and include spoilers, or they alienate the reader by presenting the author as being on another echelon.
Fadiman, though, is a very relatable narrator in these expanded versions of 18 essays originally written for publication in Civilization, the Library of Congress magazine published from 1994 to 2000. (Can you imagine, your own bookish column in which you could write whatever you like?!) Her father was the well-known intellectual Clifton Fadiman. Theirs was a family of book-obsessed, vocabulary-loving, trivia-spouting readers, and she was also crafting her own with her husband and two young children.
I saw my family – especially my mother and me – in a number of these pieces: in “The Joy of Sesquipedalians,” about the love of obscure words and word games played on a board or along with the TV (I was a spelling bee champion, and we’re all Scrabble fiends to a greater or lesser extent), in “Insert a Caret [Inset a Carrot],” about compulsive proofreading, in “The Catalogical Imperative,” about a build-up of print catalogues and the different selves one can imagine using the products therein, and in “Secondhand Prose,” about collecting used books.
There’s one respect in which I differ from the Fadiman family, though. Tom Mole’s The Secret Life of Books had reminded me of Fadiman’s division of readers into “courtly” and “carnal” lovers of books: the courtly ones keep a book pristine, while the carnal ones use and abuse them however they wish. She introduces this piece with an episode from a family trip to Copenhagen when she was a teenager. Her brother left a book open, facedown, on the bedside table at their hotel and the next day they found that the chambermaid had carefully put a marker at the right page, closed the book, and set a note on top reading, “Sir, you must never do that to a book.” I wholeheartedly agree. While I always say “your books, your rules” to other readers, I would have to suppress a cringe if I witnessed dog-earing, reading in the bath, cracking the spine, tearing out pages, doodling in the margins, and so on.
What I can get on board with, though, is the love of books as both narratives and physical objects. In the former camp, you get essays on books about polar exploration, sonnets, outdated guides to femininity, food literature, and reading aloud. On the latter, you’ll hear about her New York City apartment groaning with books absorbed from her husband’s and father’s collections, the good and bad of inscriptions, and Prime Minister William Gladstone’s tips for storing books.
Two essays have not aged well: one on a beloved pen (though she acknowledges that this was already multiply outdated by that time, by the typewriter and then by the computer she now uses for composition) and especially one on the quandary of gender-neutral pronouns (as opposed to “every man for himself” types of constructions) – nowadays we have no qualms about employing “them” for the unknown and the nonbinary.
My favorite essay overall was “You Are There,” about the special joy of reading on location. Additional irony points for Joe Biden being mentioned in the piece on plagiarism! I’d read this from a library some years before. I enjoyed it just as much the second time around, and certain essays will reward additional future rereadings, too.
My original rating (c. 2008):
My rating now:
Ex Libris: 100+ Books to Read and Reread by Michiko Kakutani (2020)
In my more morbid moments, when I imagine how I would approach the remainder of my life if I knew that I was going to die young of a terminal illness, I think about self-publishing a selection of my best blog posts and book reviews. A personal greatest hits, if you would, and anyone could forgive the self-indulgence because, hey, she’s probably going to die soon. But then I open a book like this and realize that a collection of book reviews can actually be pretty tedious, even when written by one of the greats.
“Like all lists and anthologies, the selections here are subjective and decidedly arbitrary,” Kakutani warns in her introduction. What this means in practice is that: a) if I’d read a particular book, I didn’t need to read a ~1000-word review of it; b) if I hadn’t read the book but wanted to, I avoided the essay in fear of spoilers (e.g. she does reveal some specific incidents from Mary Karr’s The Liars’ Club, which I have on the shelf and was looking forward to; I’ll just wait until I’ve forgotten); and c) if I hadn’t read the book and didn’t want to (there is LOTS of history and politics here, with plenty of Trump jabs shoehorned in; you do know her only previous book was a diatribe against Trump, right?), I wasn’t interested. So, while there were a few pieces I appreciated, such as one on the enduring appeal of The Great Gatsby, which I recently read a third time for book club, not many caught my eye as I skimmed the book.
In any case, it’s not a book for reading all the way through but one for having on the coffee table to read the occasional essay. It is gorgeously put together, what with Dana Tanamachi’s illustrations in the style of vintage bookplates, so would still be a lovely reference book to have around. Think of it as a collection of amuse-bouches to whet your appetite to read the books you’ve always meant to pick up but haven’t managed yet (for me, that would be As I Lay Dying and Mason & Dixon). See Susan’s more judicious review here.
My rating:
I found plenty of other books on Goodreads with the title Ex Libris, such as this one, a compendium of library-themed fantasy and science fiction stories. (Yes, really.)
Have you read one of these? Which did you prefer?
Three on a Theme: “Heart”
From a vibrant novel about trauma and second chances to a cultural history of our knowledge of the organ and its symbols, via a true story of the effects of being struck by lightning, what might these three disparate books have to tell us about the human heart on Valentine’s Day?
America Is Not the Heart by Elaine Castillo (2018)
This was criminally overlooked a few years ago, though I do remember Naomi F. featuring it on The Writes of Womxn. Set in the early 1990s in the Filipino immigrant neighborhoods of the Bay Area in California, it throws you into an unfamiliar culture at the deep end. There are lots of different ethnicities mentioned, and snippets of various languages (not just Tagalog, the one I knew of previously) run through the text, sometimes translated but often not. It’s a complex, confident debut novel that references episodes from the history of the Philippines of which I was mostly ignorant – genocide and reforms, dictatorship and a Marxist resistance.
Geronima is a family name for the De Veras; not many realize that Hero, in her mid-thirties and newly arrived in the USA as an undocumented immigrant, and her cousin Roni, her uncle Pol’s seven-year-old daughter, share the same first name. Hero is estranged from her wealthy parents: they were friendly with the Marcos clan, while she ran away to serve as a doctor in the New People’s Army for 10 years. We gradually learn that she was held in a prison camp for two years and subjected to painful interrogations. Still psychologically as well as physically marked by the torture, she is reluctant to trust anyone. She stays under the radar, just taking Roni to and from school and looking after her while her parents are at work.
When Roni’s mother Paz, a medical professional, turns to traditional practices for help with Roni’s extreme eczema, Hero takes Roni to the Boy’s BBQ & Grill / Mai’s Hair and Beauty complex to see Adela Cabugao, a Filipina faith healer. The restaurant becomes a refuge for Hero and Roni – a place where they hang out with Adela’s granddaughter, Rosalyn, and her friends in the long hours Paz is away at her hospital jobs, eating and watching videos or reading Asian comics. Over the next few years Rosalyn introduces Hero to American holidays and customs. Castillo is matter-of-fact about Hero’s hook-ups with guys and girls but never strident about a bisexuality label. Hero pursues sex but remains wary of romance.
The everydayness of life here – car rides, cassette tapes, job applications, foil trays of food – contrasts with too-climactic memories. Though the plot can meander, there’s forward motion in that Hero shifts from a survival mindset into an assurance of safety that allows her to start rebuilding her life. I loved the 1990s as a setting. The characters shine and the dialogue (not in speech marks) feels utterly authentic in this fresh immigration story. My only minor disappointment was that second-person narration does not recur beyond a chapter about Paz and one about Rosalyn. The title riffs on a classic of Filipino American literature, America Is in the Heart (1946) by Carlos Bulosan, though I didn’t explore that comparison; it’s a novel that opens up real Google wormholes, should you take up the challenge. Castillo’s vibrant, distinctive voice reminded me of authors from Chimamanda Ngozi Adichie to Viet Thanh Nguyen. Please tell me she has another book in the works.
Favorite line: “Baggage means no matter how far you go, no matter how many times you immigrate, there are countries in you you’ll never leave.”
Words about the heart:
“Hero had no truck with people for whom the heart was a dreamt-up thing, held together by divine saliva, a place where gods of love still made their beds. A heart was something you could buy on the street, six to a skewer … served with garlicky rice and atsuete oil.”
“Hero had never even felt ambivalence toward Pol … She’d only ever known what it felt like to love him, to keep the minor altar of admiration for him in her heart well cleaned, its flowers rotless and blooming. What she hadn’t known was that her love was a room, cavernous, and hate could enter there, too; curl up in the same bed, blanketed and sleep-warm.”
“May tinik sa puso. You know what that means? Like she has a fishbone in the heart. She’s angry about something.”
Source: Free from a neighbor
My rating: 
A Match to the Heart by Gretel Ehrlich (1994)
In August 1991, as a summer thunderstorm approached her Wyoming ranch, Ehrlich was struck by lightning. Although she woke up in a pool of blood, her dogs stayed by her side and she was able to haul herself the quarter-mile home and call 911 before she collapsed completely. Being hit by so much electricity (10–30 million volts) had lasting effects on her health. Her heart rhythms were off and she struggled with fatigue for years to come. In a sense, she had died and come back to a subtly different life.
After relocating to the California coast, she shadows her cardiologist and observes open-heart surgery, attends the annual Lightning Strike and Electric Shock Conference, and explores a new liminal land of beaches and islands. Again and again, she uses metaphors of the bardo and the phoenix to make sense of the in-between state she perhaps still inhabits. Full-on medical but also intriguingly mystical, this is another solid memoir from a phenomenal author. I know of her more as a nature/travel writer (This Cold Heaven is fantastic) and have another of her books on the shelf, The Solace of Open Spaces.
Words about the heart:
“Above and beyond the drama of cardiac arrest, or the threat of it, is the metaphorical territory of the heart: if love desists, if passion arrests, if compassion stops circulating through the arteries of society, then civilization, such as it is, will stop.”
“The thoracic cavity must have been the place where human music began, the first rhythm was the beat of the heart, and after that initial thump, waltzes and nocturnes, preludes and tangos rang out, straight up through flesh and capillary, nerve ganglion and epidermal layer, resonating in sternum bone: it wasn’t light that created the world but sound.”
Source: Birthday gift (secondhand) a couple years ago
My rating:
Heart: The Story of Its Myths and Meanings by Gail Godwin (2001)
I’d read one novel and one memoir by Godwin and was excited to learn that she had once written a wide-ranging study of the religious and literary meanings overlaid on the heart. While there are some interesting pinpricks here, the delivery is shaky: she starts off with a dull, quotation-stuffed, chronological timeline, all too thorough in its plod from the Epic of Gilgamesh to the Industrial Revolution. I quickly resorted to skimming and my eye alighted on Chinese philosophy (“True knowledge, Confucius taught, lies in the heart. He created and taught an ethical system that emphasized ‘human-heartedness,’ stressing balance in the heart”) and Dickens’s juxtaposition of facts and emotion in Hard Times.
Part Two, “Heart Themes in Life and Art,” initially seemed more promising in that it opens with the personal stories of her half-brother’s death in a murder–suicide and her mother’s fatal heart attack while driving a car, but I didn’t glean much from her close readings of, e.g. Joseph Conrad and Elizabeth Bowen. Still, I’ll keep this on the shelf as a reference book for any specific research I might do in the future.
Source: Bookbarn International on February 2020 visit (my last time there)
My rating: 
If you read just one … It’s got to be America Is Not the Heart. (Though, if you’re also interested in first-person medical accounts, add on A Match to the Heart.)
Finishing Off the Barbellion Prize Shortlist: Sam Mills and Dr Amit Patel
The Barbellion Prize 2020 will be awarded tomorrow “to an author whose work has best represented the experience of chronic illness and/or disability.” (See also my reviews of Golem Girl by Riva Lehrer and Sanatorium by Abi Palmer.)
These two memoirs, though very different outwardly, both draw attention to the practical and emotional challenges of life with disability or a mental illness, and call for compassion from individuals and a commitment to help from governing bodies.
The Fragments of My Father: A memoir of madness, love and being a carer by Sam Mills
One in eight people in the UK cares for an ill or disabled relative. Sam Mills has been a carer for a parent – not once, but twice. The first time was for her mother, who had kidney cancer that spread to her lungs and died one Christmas. A few years later, Mills’s father, Edward, who has paranoid schizophrenia, started having catatonic episodes, as with the incident she opens her memoir on. In 2016, on what would have been her mother’s 70th birthday, Edward locked himself in the toilet of the family home in Surrey. Her brother had to break in with a screwdriver and ambulance staff took him away to a hospital. It wasn’t the first time he’d been institutionalized for a mental health crisis, nor would it be the last. It was always excruciating to decide whether he was better off at home or sectioned on a ward.
Mills darts between past and present as she contrasts her father’s recent condition with earlier points in their family life. She only learned about his diagnosis from her mother when, at age 14, she saw him walk down the stairs naked and then cry when he burned the chips. While schizophrenia can have a genetic element, relatives of a schizophrenic are also more likely to be high achievers. So, although Mills went through a time of suicidal depression as a teenager, meditation got her through and she exhibits more of the positive traits: An author of six books and founder of the small press Dodo Ink, she is creative and driven. Still, being her father’s full-time carer with few breaks often leaves her exhausted and overwhelmed.
The book’s two main points of reference are Leonard Woolf and F. Scott Fitzgerald, who cared for mentally ill wives and had to make difficult choices about their treatment and housing. In a nutshell, Mills concludes that Woolf was a good carer while Fitzgerald was a terrible one. Leonard was excused World War I service due to his nervous exhaustion from being a carer, and he gave up on the idea of children when doctors said that motherhood would be disastrous for Virginia. Virginia herself absolved Leonard in her suicide note, reassuring him that no couple could have been happier and that no one could have looked after her better. Scott, on the other hand, couldn’t cope with Zelda’s unpredictable behaviour – not least because of his own alcoholism – so had her locked up in expensive yet neglectful institutions and censored her work when it came too close to overlapping with his own plots.
The Fragments of My Father brings together a lot of my favourite topics to read about: grief, physical and mental illness, and literary biography. It had already been on my wish list since I first heard about it last year, but I’m glad the Barbellion Prize shortlisting gave me a chance to read it. It helps to have an interest in the Fitzgeralds and Woolfs – though in my case I had read a bit too extensively about them for this strand to feel fully fresh. (I also had a ‘TMI’ response to some revelations about the author’s relationships and sex life.)
Ultimately, I most appreciated the information on being a carer, including the mental burden and the financial and social resources available. (Although there is a government allowance for carers, Mills wasn’t eligible because of her freelance earnings, so she had to apply for Society of Authors grants instead.) With caring so common, especially for women, we need a safety net in place for all whose earnings and relationships will be affected by family duties. I read this with an eye to the future, knowing there’s every possibility that one day I’ll be a carer for a parent(-in-law) or spouse.
Readalikes I have also reviewed:
- Labours of Love: The Crisis of Care by Madeleine Bunting
- All the Lives We Ever Lived: Seeking Solace in Virginia Woolf by Katharine Smyth
Favorite lines:
“had I ever made a conscious choice? Caring felt like something that was happening to me, as though my father’s illness had been an eruption that had flowed like lava over my life. … I can’t think of any other job where someone defines your role by conferring its title on you, as though they are holding out a mould that you must fill.”
“caring is rarely simple because its nature is not static. It creates routines, crafts the days into set shapes, lulls you into states of false security, and then mutates, slaps you with fresh challenges, leaves you lost just when you feel you have gained wisdom.”
With thanks to Fourth Estate for the free copy for review.
Kika & Me: How one extraordinary guide dog changed my world by Dr Amit Patel with Chris Manby
Dr Patel grew up in Guildford, studied medicine at Cambridge, and specialised in trauma medicine as a junior doctor in London. Diagnosed with keratocornus, which changes the shape of the cornea (it affects 1 in 450), he required first special contact lenses and then a series of cornea transplants. By the time of his eighth transplant, he’d remortgaged his house to pay an American specialist. Meeting and marrying Seema was a time of brightness before, in November 2013, he completely lost his vision within 36 hours. Blindness meant that he could no longer do his job, and constant eye pain and inactivity exacerbated his depression. While white cane and Braille training, plus the Royal National Institute of Blind People’s “Living with Sight Loss” course, started to boost his independence, it was being paired with his guide dog, Kika the Labrador, in 2015 that truly gave Patel his life back.
Trying out guide dogs sounds a little bit like speed dating. The Guide Dogs for the Blind Association (founded in the UK in 1931) warned that Kika was a “Marmite dog,” moody and likely to push boundaries; there was no guarantee she and Patel would get along. But from the start Kika was just right for him. More than once, what seemed like her pure stubbornness – lying on his feet and refusing to move – kept him from dangerous situations, like getting trapped between a busy road and a building site on an unfamiliar route. After a 10-day core skills training course, during which man and dog stayed at a hotel together, Kika was ready to join them at home. In the days to come, she would learn all Patel’s usual routes around their neighbourhood and into the City – with the help of smears of mackerel pâté.
If you’re like me, you’ll be most curious to learn about the nitty-gritty of life for a visually impaired person. I loved hearing about how Patel practiced his Braille letters with an egg container and ping pong balls. Since he went blind, he and his wife have had two children, and with Kika’s help manoeuvring a baby buggy is no problem. Guide dogs are trained to be predictable, e.g., doing their business in the same spot at the same times so it’s much easier to find and clean up. Some dog training tricks also worked for children, like putting a bell on a Labrador or a toddler to know when they wandered off!
Patel has had some unfortunate experiences since he went blind, particularly on the London Underground: teenagers picking him up and spinning him around on a train platform, busy commuters barging past him and Kika on an escalator, and an impatient woman hitting Kika with her handbag. While Patel doesn’t like being negative on social media, he finds that posting video clips of these incidents raises awareness of the challenges VIPs face. Every time he hits a setback, he uses it as an opportunity. For instance, one Diwali he was excited to visit Neasden Temple, only to be dismayed that they wouldn’t allow Kika inside. Since then, he has worked with temples around the world to improve disability services. He is also involved in London’s “Transport for All” work, and advises companies on access issues.
More so than the rest of the shortlist, Kika & Me is illuminating about daily life with a disability and has a campaigning focus. It’s an easy read, and not just for animal lovers. Judging the book by the cover, I might not have picked it up otherwise, so I’m grateful that the Barbellion put it on my radar. I’m deeply impressed by what Patel has achieved and the positive attitude he maintains. (Kika has her own Twitter account! @Kika_GuideDog)
With thanks to Pan Macmillan for the free copy for review.
(Fellow bloggers John Fish and Jackie Law have also been reading along with the Barbellion Prize shortlist. See their reviews thus far: John—Mills and Palmer; Jackie—Mills and Palmer.)
Next year the Barbellion Prize hopes to award more money, including to all nominated authors. They are accepting submissions for 2021, and are grateful for any Paypal donations via their website (see the page footer). I’ve donated to the cause. Can you help, too?
Barbellion Prize Shortlist: Golem Girl by Riva Lehrer
Three memoirs remain on the shortlist; three windows onto living with disability or caring for a relative with an incapacitating mental illness.
First up is a visual artist’s account of growing up with spina bifida, entering Disabled culture, and forming a collaborative style all her own.
Golem Girl: A Memoir by Riva Lehrer (2020)
“My first monster story was Frankenstein,” Lehrer writes. Like Dr. Frankenstein’s creation or the Golem of medieval Jewish legend, she felt like a physical monstrosity in search of an animating purpose. Born with spina bifida, she spent much of her first two years in Cincinnati Children’s Hospital and would endure dozens of surgeries in years to come to repair her spine and urinary tract and attempt to make her legs the same length. In 1958, when she was born, 90% of children with her condition died before age two. Lehrer’s mother, Carole, who grew up in a family pharmacy business and had worked as a medical researcher, was her daughter’s dogged health advocate. Carole fought for Riva even though she was caught up in her own chronic pain after a botched back surgery that left her addicted to painkillers.
Lehrer went to a special school for the disabled in Ohio. It was racially integrated (rare at that time) and offered children physical therapy and normal experiences like Girl Scouts and day camp. But it was clear the teachers didn’t expect these children to achieve anything or have a family life; home ec classes just taught how to wash up from a wheelchair and make meals for one. One horrible day, a substitute teacher locked a classroom door and hectored the children, saying their parents must have drunk and fornicated and they were the wages of sin.
Between the routine or emergency surgeries and family heartaches, Lehrer grew up to attend art school at the University of Cincinnati and Art Institute of Chicago. Professors (most of them male) found her work grotesque and self-indulgent, and she struggled with how to depict her body. There were boyfriends and girlfriends, even a wife (though in the late 1980s, before same-sex marriage was legally recognized). In 1996 she joined the Chicago Disabled Artists Collective and it was a revelation. She learned that Disabled (like Deaf) is a cultural identity as much as a physical reality, adopted vocabulary like crip (a reclaimed term, like queer) and ableism, and began painting fellow artists with dwarfism, prostheses, or wheelchairs.
Becoming a member of the Medical Humanities faculty as well as a visiting artist at two Chicago universities, the School of the Art Institute and Northwestern, gave Lehrer access to Gross Anatomy Labs, where she found in the historical collections – just as she had at the Mütter Museum of medical curiosities in Philadelphia – a fetus in a jar with her very condition. Knowing that she might be the first Disabled person her budding doctors met, she was determined to give them an “inclusive vision” of “the reality of human divergence.” She would have the medical students draw one of the jarred specimens, not as an oddity but as an individual, and give a 15-minute presentation about someone who lives with that disability.
Golem Girl is a touching family memoir delivered in short, essay-like chapters, most of them named after books or films. It is also a primer in Disability theory and – what truly lifts it above the pack – a miniature art gallery, with reproductions of paintings from various of Lehrer’s series as well as self-portraits, family portraits, and photographs. “I fiercely wanted to see a gallery filled with portraits of luminous crips,” she writes; “I suspected I was going to have to make them myself.” And that is just what she has done. The “Circle Stories” featured the Chicago Disabled Artists Collective and “Mirror Shards” included animal daimons, while “The Risk Pictures” of some of her personal heroes were daringly collaborative: she would give the subject an hour alone in her studio with their portrait in progress and allow them to amend it as they wished. Much of her work has bright colors and involves anatomical realism and symbols personal to herself and/or the subject – with Frida Kahlo an acknowledged influence.
I’ve now (just about) read the whole Barbellion Prize shortlist. For how it illuminates a life of being different – through queerness in addition to disability, engages with the academic fields of anatomy and Disability studies, and showcases the achievements of Disabled artists, this would be my clear winner of the inaugural award, with Sanatorium my backup choice. It is also a finalist for the National Book Critics Circle Award for Autobiography.
Readalikes I have also reviewed:
- Constellations by Sinéad Gleeson
- I Am, I Am, I Am by Maggie O’Farrell
Favorite lines:
“The hospital demands surrender. You accept the piercing, the cutting, the swallowing of noxious chemicals. You roll over and stand up even when it’s as impossible as flying around the ceiling. Whoever has authority can remove your clothes and display your stitched-up monster body to crowds of young white-coated men. You’re an assemblage of parts that lack gender and those elusive things called feelings.”
“‘Normal’ beauty is unmarked, smooth, shiny, upright; but my gaze began to slip past normal beauty as if it was coated in baby oil. I wanted crip beauty—variant, iconoclastic, unpredictable. Bodies that were lived in with intentionality and self-knowledge. Crip bodies were fresh.”
With thanks to Virago for the free copy for review.
See my introductory post for more about the Barbellion Prize, which is in its first year and will be awarded on Friday “to an author whose work has best represented the experience of chronic illness and/or disability.”
I will review the final two on the shortlist, The Fragments of My Father by Sam Mills and Kika & Me by Amit Patel, tomorrow.
Three on a Theme: “Love”
I’m really not a Valentine’s Day person, yet this is the fifth year in a row that I’ve put together a themed post featuring books that have “Love” or a similar word in the title in the run-up to mid-February. (Here are the 2017, 2018, 2019 and 2020 posts. I’m also at work on a set of three “Heart” titles to post about on the 14th.) All three of the below books reflect, in their own ways, on how love perplexes and sustains us at different points in our lives.
The Emma Press Anthology of Love, ed. Rachel Piercey and Emma Wright (2018)
I read my first book from the publisher (Tiny Moons by Nina Mingya Powles) last summer and loved it, so when this one popped up in the Waterstones sale in January I snapped it up. Your average love poetry volume would trot out all the standards from Shakespeare’s sonnets to Carol Ann Duffy, whereas this features recent work from lesser-known contemporary poets. Of the 56 poets, I’d heard of just two before: Stephen Sexton, because I reviewed his collection, If All the World and Love Were Young, last year; and Rachel Long, because I was simultaneously reading her Costa Award-shortlisted debut, My Darling from the Lions.
What I most appreciated about the book is that it’s free of cliché. You can be assured there will be no ‘Roses are red, violets are blue’ simplicity of theme or style. It must be nigh on impossible to write about romantic and erotic love without resorting to the same old symbols, but here there is a fresh, head-turning metaphor every few pages. Rachel Plummer describes her first crush, on a video game character, in “Luigi.” Love is conveyed through endless cups of tea or practical skills that favor postapocalyptic survival; desire is sparked by the downy hair on a woman’s back or the deliberate way a lover pulls on a pair of tights. Anything might be a prelude to seduction: baking, preparing lab specimens, or taking a taster at the off-license.
There are no real duds here, but a couple of my overall favorites were “Note from Edinburgh” by Stav Poleg and “Not the Wallpaper Game” by Jody Porter (“her throat was a landmine grown over with roses / and her arms were the antidote to the sufferings of war”). I’m running low on poetry, so I’ve gone ahead and ordered three more original anthologies direct from The Emma Press (poems on the sea, illness, and aunts!). After all, it’s #ReadIndies month and I’m delighted to support this small publisher based in Birmingham.
Favorite lines:
I have a friend who always believed
love was like being touched
by a livewire or swimming
on her back in a lightning storm.
I want to tell her it’s homesickness,
how longing pulls us in funny ways.
(from “Falooda” by Cynthia Miller)
It’s today already
and we have only the rest of our lives.
Long may we dabble our feet in the clear Italian lakes.
Long may we mosey through the graveyards of the world.
(from “Romantic” by Stephen Sexton)
Love After Love by Ingrid Persaud (2020)
I saw the author read from this in November as part of a virtual Faber Live Fiction Showcase. My interest was then redoubled by the book winning the Costa First Novel Award. All three narrators – Betty, her son Solo, and their lodger Mr Chetan – are absolutely delightful, and I loved the Trini slang and the mix of cultures (for example, there is a Hindu temple where locals of Indian extraction go to practice devotion to the Goddess). Early on, I was reminded most, in voice and content, of Mr Loverman by Bernardine Evaristo.
But the lightness of Part One, which ends with a comically ill-fated tryst, soon fades. When Solo moves to New York City to make his own way in the world, he discovers that life is cruel and not everyone is good at heart. Indeed, my only hesitation in recommending this book is that it gets so very, very dark; the blurb and everything I had heard did not prepare me. If easily triggered, you need to know that there are many upsetting elements here, including alcoholism, domestic violence, self-harm, attempted suicide, sadomasochism, and gruesome murder. Usually, I would not list such plot elements for fear of spoilers, but it seems important to note that what seems for its first 100 pages to be such a fun, rollicking story becomes more of a somber commentary on injustices experienced by both those who leave Trinidad and those who stay behind.
A beautiful moment of reconciliation closes the story, but man, getting to that point is tough. The title speaks of love, yet this novel is a real heartbreaker. What that means, though, is that it makes you feel something. Not every author can manage that. So Persaud is a powerful talent and I would certainly recommend her debut, just with the above caveats.
Readalikes:
- Golden Child by Claire Adam
- A Little Life by Hanya Yanagihara
Love’s Work: A Reckoning with Life by Gillian Rose (1995)
The English philosopher’s memoir-in-essays got on my radar when it was mentioned in two other nonfiction works I read in quick succession (one of my Book Serendipity incidents of late 2019): Notes Made while Falling by Jenn Ashworth and My Year Off by Robert McCrum. I had in mind that it was a cancer memoir, and while receiving a terminal diagnosis of ovarian cancer in her early forties is indeed an element, it is a wide-ranging short book that includes pen portraits of remarkable friends – an elderly woman, a man with AIDS – she met in New York City, musings on her Jewish family history and the place that religious heritage holds in her life, and memories of the contrast between the excitement of starting at Oxford and the dismay at her mother’s marriage to her stepfather (from whom she got her surname, having changed it by deed poll at age 16 from her father’s “Stone”) falling apart.
The mishmash of topics and occasional academic jargon (e.g., “These monitory anecdotes indicate, however, the anxiety of modernity” and “Relativism of authority does not establish the authority of relativism: it opens reason to new claimants”) meant I didn’t enjoy this as much as I’d expected to.
Words about love:
“However satisfying writing is—that mix of discipline and miracle, which leaves you in control, even when what appears on the page has emerged from regions beyond your control—it is a very poor substitute indeed for the joy and the agony of loving.”
“There is no democracy in any love relation: only mercy. … each party … is absolute power as well as absolute vulnerability. … I am highly qualified in unhappy love affairs. My earliest unhappy love affair was with Roy Rogers.”
“To grow in love-ability is to accept the boundaries of oneself and others, while remaining vulnerable, woundable, around the bounds. Acknowledgement of conditionality is the only unconditionality of human love.”
If you read just one … Make it The Emma Press Anthology of Love. (But, if you’re feeling strong, add on Love After Love, too.)
Have you read any books about love lately?
Snow and Winter Reads, Part I
We’ve only had a couple of inches of snow, plus another afternoon of flurries, so far this winter, but January was the UK’s coldest month since 2013. As usual, I’m charting the season’s passage through books as well as by taking walks and looking out the window. I have a few more wintry books on the go that I’ll hope to report on at the end of the month. Today I have a few short works, ranging from poetry to nonfiction, plus a novel set partly in frigid Nebraska.
“The Snows of Kilimanjaro” by Ernest Hemingway (1936)
During a laughably basic New Testament class in college, a friend and I passed endless notes back and forth, discussing everything but the Bible. I found these the last time I was back in the States going through boxes. My friend’s methodical cursive looked so much more grown-up than my off-topic scrawls. Though she was only two years older, I saw her as a kind of mentor, and when she told me the gist of this Hemingway story I took heed. We must have been comparing our writing ambitions, and I confessed a lack of belief in my ability. She summed up the point of this story more eloquently than Hem himself: if you waited until you were ready to write something perfectly, you’d never write it at all. Well, 19 years later and I’m still held back by lack of confidence, but I have, finally, read the story itself. It’s about a writer on safari in Africa who realizes he is going to die of this gangrene in his leg.
Now he would never write the things that he had saved to write until he knew enough to write them well. Well, he would not have to fail at trying to write them either. Maybe you could never write them, and that was why you put them off and delayed the stating. Well, he would never know, now.
he had always thought that he would write it finally. There was so much to write. He had seen the world change; not just the events; although he had seen many of them and had watched the people, but he had seen the subtler change and he could remember how the people were at different times. He had been in it and he had watched it and it was his duty to write of it; but now he never would.
This duty: to be a witness, to crystallize your perspective and experience as a way of giving back to the world that has sustained you – it’s a compelling vision. Of course, Hemingway was a chauvinist and so the protagonist is annoyingly dismissive of the woman in his life; she might as well be a servant. I still found this everyday tragedy affecting. I couldn’t, however, be bothered to read any further in the volume (mostly Nick Adams autobiographical stories).
The World Before Snow by Tim Liardet (2015)
I couldn’t resist the title and creepy Magritte cover, so added this to my basket during the Waterstones online sale at the start of the year. Liardet’s name was unfamiliar to me, though this was the Bath University professor’s tenth poetry collection. Most of the unusual titles begin with “Self-Portrait” – for instance, “Self-Portrait as the Nashua Girl’s Reverse Nostalgia” and “Self-Portrait with Blind-Hounding Viewed in Panoramic Lens.” Apparently there is a throughline here, but if it weren’t for the blurb I would have missed it entirely. (“During a record-breaking blizzard in Boston, two poets met, one American and one English. This meeting marked the beginning of a life-transforming love affair.”) There were some turns of phrase and alliteration I liked, but overall I preferred the few poems that were not part of that pretentious central plot, e.g. “Ommerike” (part I) about mysterious mass deaths of birds and fish, “Nonagenaria,” a portrait of an old woman, and “The Guam Fever,” voiced by an ill soldier. 
The Magician’s Assistant by Ann Patchett (1997)
I’d only seen covers with a rabbit and top hat, so was confused that the secondhand copy I ordered with a birthday voucher featured a lit-up farmhouse set back into snowy woods. The first third of the novel takes place in Los Angeles, where Sabine lived with her husband Parsifal, the magician she assisted for 20 years, but the rest is set in winter-encased Nebraska. The contrast between the locations forms a perfect framework for a story of illusions versus reality.
SPOILERS FOLLOW – impossible to avoid them.
Patchett opens with the terrific lines “Parsifal is dead. That is the end of the story.” Ironically, his brain aneurysm burst while he was inside a hospital MRI machine, but it’s a mercy that he died quickly; he could have lingered for years with AIDS – like his lover, Phan, who died 14 months before. You see, while Parsifal while Sabine’s best friend, and in some ways the love of her life, their marriage was only a formality so that she could receive his assets. She knows little of his past; in taking on the name and persona of Parsifal the magician, he created a new life for himself. Only after his death does she learn from the will that his real name was Guy Fetters and that he has a mother, Dot, and sisters, Kitty and Bertie, back in Nebraska.
Dot and Bertie come out to L.A. to see how Guy lived and pay their respects at the cemetery, and then Sabine, lost without a magician to assist, flies out to Nebraska to stay with them for the week leading up to Bertie’s wedding. There is a tacit understanding among the family that Guy was gay, and Sabine assumes that’s why he was sent off to a boys’ reformatory. In fact, it’s because he was involved in his father’s accidental death. This kitchen has seen more than its fair share of climactic events.
END OF SPOILERS
The long section set in Nebraska went in directions I wasn’t expecting. It’s mostly based around late-night kitchen table and bedroom conversations; it’s a wonder it doesn’t become tedious. Patchett keeps the tension high as revelations emerge about what went on in this family. There are two moments when threat looks poised to spill into outright violence, in an echo of previous domestic violence.
For a long time I didn’t know what to make of the novel. It’s odd that all the consequential events happened before the first page and that we never truly meet Parsifal. Yet I loved the way that Sabine’s dreams and flashbacks widen the frame. Magic initially appears to be an arbitrary career choice, but gradually becomes a powerful metaphor of deception and control. Parsifal’s family are obsessed with a Johnny Carson performance he and Sabine once gave: they watch the video recording nightly, longing for the magic to be real. Maybe it is in the end?
Snow by Marcus Sedgwick (2016)
This Little Toller book is, at just over 100 pages, the perfect read for a wintry afternoon. It’s a lot like The Snow Tourist by Charlie English, though that book is travel-based, whereas for this one Sedgwick stayed put at his home in the Haute-Savoie, an alpine region of eastern France (and was even snowed in for part of the time), and wandered in his memory instead.
He writes that snow is “a form of nostalgia” for him, bringing back childhood days off school when he could just stay home and play – he loves it for “the freedom it represented.” He asks himself, “did it snow more when I was young, or is it just my desire and recreated memory?” Looking at weather statistics from Kent, he is able to confirm that, yes, it really did snow more in the 1960s and 70s.
Sedgwick briefly considers the science, history, art, and literature of snow, including polar expeditions and film, music, and paintings as well as Thomas Mann’s The Magic Mountain et al. He also likens the blank page to a snow-covered field, such that writers should not be daunted by it but excited by the possibility of creation.
In the Winter Dark by Tim Winton (1988)
A taut early novella (just 110 pages) set in an Australian valley called the Sink. Animals have been disappearing: a pet dog snatched from its chain; livestock disemboweled. Four locals are drawn together by fear of an unidentified killer. Maurice Stubbs is the only one given a first-person voice, but passages alternate between his perspective and those of his wife Ida, Murray Jaccob, and Veronica, a pregnant teen. These are people on the edge, reckless and haunted by the past. The malevolent force comes to take on a vengeful nature. I was reminded of Andrew Michael Hurley’s novels. My first taste of Winton’s fiction has whetted my appetite to read more by him – I have Cloudstreet on the shelf.
Have you been reading anything particularly wintry this year?
January’s Nonfiction Releases: Clarke, Heminsley and Lalkhen
Three new books with medical themes (no surprise there), including the first Covid wave in the UK; fertility and body issues in a new queer family; and pain management strategies.
Breathtaking: Inside the NHS in a Time of Pandemic by Rachel Clarke
Clarke is a palliative care doctor based in Oxfordshire. She runs the Katharine House hospice but during the coronavirus pandemic has also been on active duty in the Oxford University Hospitals system. If you’re on social media you have likely come across some of her postings as she has been equally vocal in her praise of the NHS and her criticism of Boris Johnson’s faltering policies, which are often of the too little, too late variety. So I was eager to read her insider’s account of hospital treatment of the first wave of Covid in the UK, especially because her previous book, Dear Life, was one of my top two nonfiction releases of last year.
The focus is on the first four full months of 2020, and the book originated in Clarke’s insomniac diaries and notes made when, even after manically busy shifts, she couldn’t rest her thoughts. Her pilot husband was flying to China even as increasingly alarming reports started coming in from Wuhan. She weaves in the latest news from China and Italy as well as what she hears from colleagues and disease experts in London. But the priority is given to stories: of the first doctor to die in China; of a Yorkshire ICU nurse’s father, who comes down with Covid and is on a ventilator in an Oxford hospital; and of her patients there and in the hospice. She is touched that so many are making great sacrifices, such as by deciding not to visit loved ones at the end of their lives so as not to risk spreading infection.
A shortage of PPE remained a major issue, though Dominic Pimenta (whose Duty of Care was my first COVID-19 book) pulled through for her with an emergency shipment for the hospice – without which it would have had to close. Clarke marvels at the NHS’s ability to create an extra 33,000 beds within a month, but knows that this comes at a cost of other services, including cancer care, being stripped back or cancelled, meaning that many are not receiving the necessary treatment or are pushing inescapable problems further down the road.
From January 26, 2021
A comparison with Gavin Francis’s Intensive Care, published earlier in the month, is inevitable. Both doctors bounce between headlines and everyday stories, government advice and the situation on the ground. Both had their own Covid scare – Clarke didn’t meet the criteria to be tested so simply went back to work two weeks later, when she felt well enough – and had connections to regions that foreshadowed what would soon happen in the UK. Both give a sense of the scope of the crisis and both lament that, just when patients need compassion most, full PPE leads to their doctors feeling more detached from them than ever.
However, within the same page count, Francis manages to convey more of the science behind the virus and its transmission, and helpfully explores the range of effects Covid is having for different groups. He also brings the story more up to the minute with a look back from November, whereas Clarke ends in April and follows up with an epilogue set in August. A book has to end somewhere, yes, but with this crisis ongoing, the later and more relevant its contents can be, the better. And in any book that involves a lot of death, mawkishness is a risk; Clarke so carefully avoided this in Dear Life, but sometimes succumbs here, with an insistence on how the pandemic has brought out the best in people (clapping and rainbows and all that). Her writing is as strong as ever, but I would have appreciated a sharper, more sombre look at the situation a few months later. Perhaps there will be a sequel.
From January 6, 2021
With thanks to Little, Brown UK for the free copy for review.
Some Body to Love: A Family Story by Alexandra Heminsley
From Heminsley’s previous book, Leap In, I knew about her getting married and undergoing IVF. It was also a book about outdoor swimming; I appreciated her words on acquiring a new skill as an adult and overcoming body issues. This memoir continues the story: in 2017, after a gruelling journey through infertility treatment, Heminsley finally got the baby she wanted. But not before a couple more heart-wrenching moments: the lab made an error and notified her that she shared no DNA with this last embryo, and while heavily pregnant she was assaulted by a drunk man on a train. Both incidents left her feeling a loss of agency. “Why was I consistently being deemed the least reliable witness of my own reality?” she asks.
As they adjusted to new life with a baby, Heminsley started to notice that she wasn’t connecting with her husband, D, like she used to. She felt emotionally unsupported and, in fact, jealous of D’s relationship with their son, L. And while they’d never been the most conventional couple, D’s changes of appearance and wardrobe seemed like a sign of something bigger. Indeed, when L was six months old, D told Heminsley, “this body doesn’t represent who I am” and announced a decision to begin transitioning.
As D moved towards having a body that fit their identity, Heminsley, too, needed to get back in touch with her body. After books like Running Like a Girl, she was considered an exercise guru, but she didn’t see herself in the new obsession with Instagram-ready images of fitness perfection. This is not, then, primarily a memoir of queer family-making, because D’s transitioning was not Heminsley’s story to tell and mostly occurs in the background. Instead she focuses on what she does know and can control: her relationship to her own body.
However, this entails what can feel like irrelevant flashbacks to her teenage years of undergoing rehab at a military clinic in Germany for hypermobility, trips to Trinidad and Italy, and the genesis of her two sporting memoirs. Much as I applaud the sensitivity to trans and body issues, the book ends up feeling scattered. Still, the writing is so candid and the narrative so eventful that you’ll race through this even if you don’t normally pick up nonfiction. (For a bit more information, see my short write-up of the virtual book launch.)
With thanks to Chatto & Windus for the free copy for review.
Pain: The Science of the Feeling Brain by Abdul-Ghaaliq Lalkhen
Originally from South Africa, Dr Lalkhen is an anaesthesiology and pain specialist based in Manchester. In a nutshell, his approach is “biopsychosocial,” meaning that he seeks to understand pain not just as a physical phenomenon resulting from acute injury or damage but as an ongoing process that is affected by emotional and psychological factors. Particularly in the context of chronic syndromes, he acknowledges that pain can continue even when its immediate cause has been repaired. Mental preparation can come into the equation: if a patient assumes they’ll wake up from surgery healed, they may be alarmed if pain persists. Lalkhen talks about managing patient expectations, perhaps with something as simple as the promise, “we’ll aim to get your pain down to a 4 after surgery.” In part, he blames Western society’s Cartesian philosophy for treating mind and body as separate rather than a system.
There are genetic and psychological reasons people might be predisposed to chronic pain. Pain itself can then change the brain chemistry, making the body more alert to pain signals. People can choose one of three paths, Lalkhen observes: “You can spend your time agitating about the alarm going off, you can try to ignore it (but the ignoring of it actually takes up more energy), or the final alternative is to learn to live with this deeply unpleasant situation.” Those who opt for pharmacological solutions can become addicted to opiates, which are less effective over time. Non-drug-related therapies involve the desensitization of nerves, the injection of anaesthetics or steroids, or the implanting of spinal cord stimulators. But all of these strategies have their limitations, and can diminish in efficacy. The patients he sees in his pain clinics may be disappointed that, rather than offering a panacea, he wants to wean them off their current pain relief and help them develop a new way of thinking about pain.
I felt I learned a lot from reading this. Lalkhen is careful to state that he is only referring to non-cancer pain (cancer pain in terminal patients will take all the morphine you can throw at it). Like many physicians, he worries about the modern epidemic of overtreatment and our obsession with wellness. I especially enjoyed the discussion of the understanding of pain and its treatment from the ancient world onward, and in particular the history of opiates. The prose is not literary, but this is an accessible and informational read if the subject matter draws you.
With thanks to Atlantic Books for the free copy for review.
What recent nonfiction releases can you recommend?
Review Book Catch-Up: Bamforth, McGrath, Mertz
Today I have a book of medico-philosophical musings, a triptych of novels about the resonant moments of a Canadian childhood, and a varied collection of ekphrastic poems.
Scattered Limbs: A Medical Dreambook by Iain Bamforth (2020)
A doctor based in Strasbourg, Iain Bamforth offers a commonplace book full of philosophical musings on medicine and wellness from the ancient world to today. All through December I would read just a few pages at a time as a palate cleanser between larger chunks of other books. Most of the entries are under three pages in length, with some one-sentence dictums interspersed. The point of reference is broadly European, with frequent allusions to English, French, and German literature (Charles Dickens, Marcel Proust, and Thomas Mann) and to Greek thinkers like Aristotle and Plato. The themes include memory, overtreatment, technology, and our modern wellness culture. If you’re equally interested in medicine and philosophy, this is a perfect bedside book for you; if you only gravitate towards one or the other, it’s possible that you could run low on patience for the high-brow rumination. My favourite piece was on “panicology,” and two stand-out lines are below.
“Prognostication is where writers and doctors resemble each other most.”
“A proper attitude to death can be a source of life. That is medicine’s only profundity.”
With thanks to Galileo Publishers for the free copy for review.
The Santa Rosa Trilogy by Wendy McGrath (2011–19)
I’m indulging in one last listen to our holiday music compilations as I write, before putting everything away until a hoped-for ‘Christmas in July’ with family and friends. Yesterday I devoured Broke City, the third novella in Wendy McGrath’s Santa Rosa Trilogy, in one sitting and treasured all the Christmas and pine tree references: they bind the book together but also connect it satisfyingly back to Book 1, Santa Rosa, which opened with Christine’s neighbour preparing a Christmas cake one summer. That annual ritual and its built-in waiting period take on new significance when the adult Christine’s life changes suddenly.
In this trio of linked narratives about Christine’s 1960s Edmonton childhood, totem objects and smells evoke memories that persist for decades: Pine-Sol, her parents’ cigarettes, the local meat-packing plant. Even at age seven, Christine is making synaesthetic links between colours and scents as she ponders language and imagines other lives. That her recollections – of a carnival, the neighbourhood grocery store, queasy road trips to her grandmother’s in Saskatchewan, a drive-in movie, and Christmas Eve with her father’s side of the family – so overlap with my late-1980s mental flipbook proves not that suburban Maryland and upstate New York (where I grew up and my mother’s home turf, respectively) are so similar to Alberta, but that this is the universal stuff of a later 20th-century North American childhood.
The other night, discussing The Light Years by Elizabeth Jane Howard, my book club noted how difficult it is to capture childhood in all its joy and distress. McGrath does so superbly, exploiting the dramatic irony between what Christine overhears and what she understands. Readers know her parents’ marriage is in trouble because she never sees them laughing or happy, and she hears her mother complain to her father about his drinking. We know the family is struggling because a man from the City delivers a box of Spam, standard issue to all those who are out of work over the winter. A simple mishearing (“clatteral,” “brain tuber”; thinking that an abattoir sounds “like a fancy ballroom”) can be a perfect example of the child perspective, too. Meanwhile, the pop culture references situate the story in the time period.
Towards the end of Broke City, young Christine declares, “I shall be unusual.” As we root for the girl to outrun her sadder memories and forge a good life, we hope that – like all of us – she’ll find a balance between the ordinary and the exceptional through self-knowledge. While Broke City was my favourite and could probably stand alone, it’s special to chart how moments turn into memories across the three books. I’d recommend the trilogy to readers of Tove Ditlevsen, Tessa Hadley, and Elizabeth Hay. I particularly loved the hybrid-poetry style of the Prologue to Santa Rosa (similar to what Bernardine Evaristo employs), so I would also be interested to try one of McGrath’s two poetry collections.
Some favourite passages:
“he walks at the same time everyday summer and winter
early morning when the day still makes promises” (Santa Rosa)
“Christine thought of herself as a child, with no idea of the world but all the ideas in the world. … Christine is the girl that used to live here, but the girl has disappeared. Her ghost is here, existing parallel to the person she is now. How did this happen? There must have been something she wasn’t paying attention to, something she didn’t see coming.” (Broke City)
With thanks to Wendy McGrath and Edmonton’s NeWest Press for the e-copies for review. I learned about the books from Marcie; see her appreciation of McGrath’s work at Buried in Print.
Color and Line by Carole Mertz (2021)
“Ekphrastic” was a new vocabulary word for me – or, if I’d heard it before, I needed a reminder. It refers to poetry written to describe or respond to artworks. Many of Carole Mertz’s poems, especially in the first section, attest to her love of the visual arts. This is the Ohio church organist’s first full-length collection after the 2019 chapbook Toward a Peeping Sunrise and extensive publication in literary magazines. She was inspired by art ranging in date from 1555 to 2019. “Come Share a Glass with Me,” for instance, is a prose poem that imagines the story behind a Van Gogh. I loved the line “The ewer sits expectant” in a short poem capturing The Staircase by Xavier Mellery.
One could look up all of the artworks discussed, but the descriptions here are so richly detailed that I often didn’t feel I needed to. Two paintings in a row depict sisters. A poem about Salome and the beheading of John the Baptist draws on the Bible story, but also on its many portrayals through art history. Other topics include concern for the Earth and beloved works of literature. I particularly enjoyed “The Word in Joseph’s Hand,” a Christmas hymn that can be sung to the tune of “Lo, How a Rose E’er Blooming,” and a haiku about a cardinal, “a flash of bright red / … in the garden”. Below is my favourite of the poems; it incorporates the titles of 14 books, nine of them by Anne Tyler. See if you can spot them all!
Color and Line was released by Kelsay Books on the 2nd. My thanks to Carole Mertz for the e-copy for review.
Would you be interested in reading one or more of these?
And, just for fun, put a description of or link to your favourite Bernie-in-mittens meme in the comments.
Review: Intensive Care by Gavin Francis
I finally finished a book in 2021! And it’s one with undeniable ongoing relevance. The subtitle is “A GP, a Community & COVID-19.” Francis, a physician who is based at an Edinburgh practice and frequently travels to the Orkney Islands for healthcare work, reflects on what he calls “the most intense months I have known in my twenty-year career.” He draws all of his chapter epigraphs from Daniel Defoe’s A Journal of the Plague Year and journeys back through most of 2020, from the day in January when he and his colleagues received a bulletin about a “novel Wuhan coronavirus” to November, when he was finalizing the book and learned of promising vaccine trials but also a rumored third wave and winter lockdown.
In February, no one knew whether precautions would end up being an overreaction, so Francis continued normal life: attending a conference, traveling to New York City, and going to a concert, pub, and restaurant. By March he was seeing more and more suspected cases, but symptoms were variable and the criteria for getting tested and quarantining changed all the time. The UK at least seemed better off than Italy, where his in-laws were isolating. Initially it was like flu outbreaks he’d dealt with before, with the main differences being a shift to telephone consultations and the “Great Faff” of donning full PPE for home visits and trips to care homes. The new “digital first” model left him feeling detached from his patients. He had his own Covid scare in May, but a test was negative and the 48-hour bug passed.
Through his involvement in the community, Francis saw the many ways in which coronavirus was affecting different groups of people. He laments the return of mental health crises that had been under control until lockdown. Edinburgh’s homeless, many in a perilous immigration situation thanks to Brexit, were housed in vacant luxury hotels. He visited several makeshift hostels, where some residents were going through drug withdrawal, and also met longtime patients whose self-harm and suicidal ideation were worsening.
Children and the elderly were also suffering. In June, he co-authored a letter begging the Scottish education secretary to allow children to return to school. Perhaps the image that will stick with me most, though, is of the confused dementia patients he met at care homes: “there was a crushing atmosphere of sadness among the residents … [they were] not able to understand why their families no longer came to visit. How do you explain social distancing to someone who doesn’t remember where they are, sometimes even who they are?”
Francis incorporates brief histories of vaccination and the discovery of herd immunity, and visits a hospital where a vaccine trial is underway. I learned some things about COVID-19 specifically: it can be called a “viral pneumonia”; it has two phases, virological (the virus makes you unwell) and immunological (the immune system misdirects messages and the lungs get worse); and it affects the blood vessels as well as the lungs, with one in five presenting with a rash and some developing chilblains in the summer. Amazingly, as the year waned, Francis only knew three patients who had died of Covid, with many more recovered. But in August, a city that should have been bustling with festival tourists was nearly empty.
Necessarily, the book ends in the middle of things; Francis has clear eyes but a hopeful heart. While this is not the first COVID-19 book I’ve encountered (that was Duty of Care by Dominic Pimenta) and will be far from the last – next up for me will be Rachel Clarke’s Breathtaking, out at the end of this month – it is an absorbing first-hand account of a medical crisis as well as a valuable memorial of a time like no other in recent history. A favorite line was “One of the few consolations of this pandemic is its grim camaraderie, a new fellowship among the fear.” Another consolation for me is reading books by medical professionals who can compassionately bridge the gap between expert opinion and everyday experience.
Intensive Care was published by the Wellcome Collection/Profile Books on January 7th. My thanks to the publisher for the free copy for review.
Gavin Francis’s other work includes:
Previously reviewed: Shapeshifters
Also owned: Adventures in Human Being
I’m keen to read: Empire Antarctica, about being the medical officer at the British research centre in Antarctica – ironically, this was during the first SARS pandemic. (In July 2020, conducting medical examinations on the next batch of scientists to ship out there, he envied them the chance to escape: “By the time they came home it would be 2022. Surely we’d have the virus under control by then?”)
Bookish Beck = Rebecca Foster. American transplant to England. Freelance proofreader and book reviewer.
Bookish Beck 