A Review for PKD Awareness Day: The Mourner’s Bestiary by Eiren Caffall
Today is PKD Awareness Day. Because the author and I both have polycystic kidney disease, I’m doing something I rarely do and reprinting an early review of mine that has already appeared on Shelf Awareness. I could hardly believe it when I was trawling through the list of review book offers and saw that Eiren Caffall also has PKD, then even more astonished to learn that it is a major theme in her memoir, which also weaves in marine biology and environmental concerns. An altogether intriguing book that, of course, held personal interest for me.
The Mourner’s Bestiary by Eiren Caffall
Eiren Caffall’s debut is an ardent elegy for her illness-haunted family and for the ailing marine environments that inspire her.
For centuries, the author’s family has been subject to “the Caffall Curse.” Polycystic kidney disease, a degenerative genetic condition, causes fluid-filled cysts to proliferate in a person’s enlarged kidneys. PKD can involve pain, fatigue, high blood pressure, kidney failure, and a heightened risk of brain aneurysm. Given Caffall’s paternal family history, she expected to die before age 50.
Caffall’s melancholy memoir spotlights moments that opened her eyes to medical and environmental catastrophe. In 1980, when she was nine years old, she and her parents vacationed at a rental cottage on Long Island Sound. They nicknamed the pollution-ridden site “Dogshit Beach”—her mother spent idyllic summers there as a child, yet now “both the ecosystem and my father were slipping away.” For the first time, Caffall became aware of her father’s suffering and lack of energy. She realized that she, too, might have inherited PKD and could face similar struggles as an adult.
In 2014, Caffall, then a single mother, took her nine-year-old son, Dex, on vacation to the Gulf of Maine. During the trip, she had a fall that prompted a seizure, and she and Dex were evacuated from Monhegan Island by Coast Guard ship. Although no further seizures ensued and no clear cause emerged, the crisis served as a wake-up call, reminding her of how serious PKD is and that it might afflict her son as well.
The book draws fascinating connections between personal experiences and ecological threats. Caffall structures her story as a gallery of endangered marine animals such as the Longfin Inshore Squid and Humpback Whale, tracing their history and exposing the dangers they face in degraded environments. Red tides (massive algal blooms) and floods are apt metaphors for physical trials: “the Sound was dying, hypoxic … from an overwhelm of nutrients flooding an ecosystem—nitrogen, phosphorus, imbalanced saline—the same things that overwhelm a body when kidneys can no longer filter blood properly.”
Re-created scenes enliven accounts of family illness and therapeutic developments. The lyrical hybrid narrative, informed by scientific journals and government publications, is as impassioned about restoring the environment as it is about ensuring equality of access to health care. Personal and species extinction are just cause for “permanent mourning,” Caffall writes, but adapting to change keeps hope alive.
(Coming out in the USA from Row House Publishing on October 15th)
Posted with permission from Shelf Awareness.
[I couldn’t help but compare family members’ trajectories. Like her father, my mother was on dialysis for a time before getting a transplant, from her cousin. Like her aunt, my uncle died of a brain aneurysm, which is an associated risk. It sounds like Caffall has been much more severely affected than I have thus far. She is 53 and on Tolvaptan, a cutting-edge drug that slows the growth of cysts and thus the decline in kidney function. But even within families, the disease course is so varied. A cousin of mine was in her thirties when she had a transplant, whereas I am still very much in the early stages.]
A shout-out to the PKD Foundation in the States and the PKD Charity here in the UK.
A related post: In 2017 I reviewed four books for World Kidney Day.
From the supermarket last week: a plum that wanted to be a kidney.
Too Much (to Do) and Never Enough (Time to Read)
Adapting a Mary Trump title there for a feeling I’m sure many of us have periodically. House hunting and purchasing have taken up a lot of time over the last six months. Now that we finally have keys to the new place, the work has only begun. The old chap who lived there as a tenant for decades before moving to a care home had been existing in some squalor (e.g., no shower or central heating). This past weekend we did a basic clean, including clearing out all the rubbish left in the outdoor bins. It almost felt like trauma cleaning. We haven’t yet had the fortitude to tackle the kitchen and bathroom, which are so greasy and grimy we might hire someone to clean them for us.
Much more fun has been the garden: we’ve transplanted some hedge plants from our rental garden, planted some trees, pruned the rose bushes, and made a plan for path, meadow and pond.
In the six weeks or so before we actually move in, there is so much to think about. We have a couple of tradespeople already booked, but there are lots of other renovations to research and get quotes for. So much to book, order, buy … we’re going to be bleeding money for the rest of this year. We will take on a few smaller projects ourselves, with neighbours’ help, but it is a very daunting prospect for people with no DIY skills. (And I just want to read instead.)
I should be ecstatic to own a home for the first time, and I do know how lucky I am to have somewhere to live and spare cash for improvements, but right now it all feels overwhelming. I’ve also been glum because I was denied the life insurance we applied for at the same time as a mortgage. I knew my genetic kidney disease would make a policy more expensive, but I wasn’t expecting to be declined outright – especially after the company strung me along for four months. The doctor’s reports they requested said only positive things about how stable my health was, how good my renal function, blood pressure under control. In the end they just looked at the condition name and said no. And that has made me feel a little worthless.
Still, chin up. It’s turned into a beautiful spring with fun outings such as a tour and tasting at a gin factory and folk gigs, including one by living legend Peggy Seeger.
I’m also genuinely enjoying the packing and culling process. Look at this vintage tech I found in a drawer! The Discman and Texas Instruments calculator still work, so I will continue using them.
Will I ever finish another book again?
Work has taken a slight backseat these days. I also feel like I’ll never finish another book again (though, actually, I’ll probably finish a poetry volume later today). It’s not that I’m in a slump. It’s that I’m currently reading 36 books, though the number I actually spend time with on a daily basis is more like 15–20. The rest languish in a pile next to the coffee table, or on my bedside stack. I’m working towards various projects, but my progress is at a slow crawl:
Requested after me at the library: The Dangers of Smoking in Bed by Mariana Enríquez, If Not for You by Georgina Lucas, Wahala by Nikki May
March releases: You Tell the Stories You Need to Believe by Rebecca Brown, Ghosts of Spring by Luis Carrasco, Groundskeeping by Lee Cole, Brainspotting by A.J. Lees
Reading Ireland Month: Dance Move by Wendy Erskine, After You’d Gone by Maggie O’Farrell, Vinegar Hill by Colm Tóibín
April’s book club books: Paradise by Toni Morrison & Mr Pye by Mervyn Peake
Spring titles: Damnation Spring by Ash Davidson, The Beginning of Spring by Penelope Fitzgerald, Spring by Karl Ove Knausgaard, Sowing by Leonard Woolf
Jhalak Prize longlist: Honorifics by Cynthia Miller (with two more to start in April)
Women’s Prize longlist: Build Your House Around My Body by Violet Kupersmith, The Book of Form and Emptiness by Ruth Ozeki, The Final Revival of Opal & Nev by Dawnie Walton (with two more to start in April)
And so on.
That doesn’t count review books I’m trying to catch up on, a buddy read with my husband, a couple of e-books, and two other low-key thematic challenges I have in mind.
I’m inching towards my end-of-March targets for the current-month releases and Irish books. But most of my reading time has gone to one book I’ve been trying to read since January. By forcing myself to read a big chunk of Hanya Yanagihara’s To Paradise every day – first 40 pages, then 50, now 60 – I have finally passed the 500-page point and hope to finish and review it this weekend. Then I’ll rip up some nasty old carpets!
“People say that life is the thing, but I prefer reading.”
~Logan Pearsall Smith
Has there been more reading, or living, for you lately?
Three Books that Originated on the Radio
As the end of the year approaches and I try to get through a final handful of review books, I’m looking for ways to combine posts. It may seem like a fairly arbitrary connection, but all three of these books originated as essays or short stories that were aired on British radio. I never listen to the radio so I miss out on these projects the first time around, but I’ve been interested to note how short forms and conversational styles lend themselves to oral performance.
Beneath the Skin: Great Writers on the Body
These 15 pieces were commissioned for the BBC Radio 3 series “A Body of Essays.” Thomas Lynch, a small-town American undertaker and wonderful, unjustly obscure writer, opens and closes the volume. In his introduction he remarks – appropriately as Christmas draws near – that “We are an incarnate species”: we experience the world only through our bodies, which are made of disparate parts that work together as a whole. This project considers single organs by turn “in hopes that by knowing the part we might better know the whole of our predicament and condition.”
Naomi Alderman, musing on the intestines, draws metaphorical connections between food, sex and death, and gives thanks that digestion and excretion are involuntary processes we don’t have to give any thought. Ned Beauman reports on misconceptions about the appendix as he frets about the odds of his bursting while he’s in America without health insurance. The late Philip Kerr describes the checkered history of the lobotomy, which used to reduce patients to a vegetative state but can now quite effectively treat epilepsy.
The pieces incorporate anatomical knowledge, medical history, current research, cultural connections, and sometimes observation of a hospital procedure. These threads are elegantly woven together, as in Patrick McGuinness’s essay on the ear, which skips between Hamlet’s father’s death, the secretive delight of mining for earwax, Beethoven’s ear trumpet, and what we know about in utero sounds.
Most authors chose a particular organ because of its importance to their own health. Christina Patterson’s acne was so bad she went to the UK’s top skin specialist for PUVA light treatments, Mark Ravenhill had his gallbladder removed in an emergency surgery, and Daljit Nagra’s asthma led his parents to engage Sikh faith healers for his lungs. Two of my favorite chapters were by William Fiennes, whose extreme Crohn’s disease caused him to have a colostomy bag for two years in his early twenties, and poet Kayo Chingonyi, who has always been ashamed to admit that his parents both died of complications of HIV in Zambia. Such personal connections add poignancy to what could have been information dumps.
As is usual for essay collections, my interest varied somewhat. I had my hopes too high so was disappointed with a scattered piece on the kidneys. But the overall quality is terrific. If you enjoy medical reads to any extent, I recommend this as a bedside book to read occasionally.
Some favorite lines:
“It’s a strange and shifting thing – this sense I have that I am my body, of which some bits are essential and some expendable.” (Mark Ravenhill)
“There are things we only think about when they go wrong: the fan belt, the combi boiler, the bowel.” (William Fiennes)
“Like most of us, I take my body for granted. I live in the most complex, intricate machine and as long as it wakes up in the morning, and goes to bed at night, I am uninterested in its inner workings.” (Chibundu Onuzo, “Thyroid”)
My rating: 
Beneath the Skin was published by the Wellcome Collection imprint of Profile Books on October 25th. My thanks to the publisher for a free copy for review.
In Mid-Air by Adam Gopnik
New Yorker writer Gopnik contributed to BBC Radio 4’s A Point of View for over a decade. These essays date from 2012 to 2017 and are grouped into three loosely thematic sections on family, culture and politics. Gopnik self-deprecatingly sees himself as “offering measured ambivalences on everything.” As an American who was raised in Canada and has lived in Paris and spent significant time in London, he has a refreshingly cosmopolitan outlook and can appreciate the nuances in different countries’ identities. At the same time, he brings out what’s universal: being annoying to one’s teenage children, gauging the passing of time by family members’ changes, the desire to die with dignity (remembering his father-in-law’s death at age 95), and lessons in a happy marriage from Charles and Emma Darwin – he boils it down to lust, laughter and loyalty.
During the weeks that I spent with these essays I was frequently reminded of Jan Morris’s In My Mind’s Eye, which casts a similarly twinkling eye over the absurdities of modern life and the aging body. Gopnik endures shingles and shrugs over his funny last name (“drunken lout” in Russian) and short stature. He mostly ignores Twitter and decries our dependence on smartphones. As he’s never learned to drive, he’s amused by the idea of self-driving cars.
My favorite pieces were on significantly more trivial matters, though: the irony of famous Christmas songs being written by Jews, and a satire on society’s addiction to DVD box sets. Other arts references vary from the Beatles and Bob Dylan’s Nobel Prize to Cubism and literary festivals. It’s a quirky blend of high and low culture here. Bizarrely, Gopnik has recently written an oratorio on Alan Turing and a musical about a New York City restaurant.
The author is an unabashed liberal who prizes pluralism above all else but warns how fragile it is. In the final section he prophesies catastrophe under Trump and, afterwards, can only say that at least his election puts lesser issues into perspective. I valued the diagnosis of American insularity and British inwardness – this particular essay was written in 2013 but seems all the more relevant post-Brexit. This was my fifth book from Gopnik. While I didn’t engage with every essay and would have liked them to be chronological so there was a mix of topics all the way through, it was a pleasant and often thought-provoking read.
Some favorite lines:
“Watching the people we love die bit by bit is the hardest thing life demands until we recall that watching the people we love die bit by bit is in a certain sense what life simply is. It just usually takes more time for the bits to go by.”
“We should never believe that people who differ from us about how we ought to spend public money want to commit genocide or end democracy, and we should stop ourselves from saying so, even in the pixellated heat of internet argument. But when we see the three serpents of militarism, nationalism and hatred of difference we should never be afraid to call them out, loudly, by name”
My rating: 
In Mid-Air was published by riverrun, a new Quercus imprint, on October 18th. My thanks to the publisher for a free copy for review.
Turbulence by David Szalay
These 12 linked short stories, commissioned for BBC Radio 4, focus on travel and interconnectedness. Each is headed by a shorthand route from one airport to another, and at the destination we set out with a new main character who has crossed paths with the previous one. For instance, in “YYZ – SEA” the writer Marion Mackenzie has to cancel a scheduled interview when her daughter Annie goes into labor. There’s bad news about the baby, and when Marion steps away from the hospital to get Annie a few necessaries from a supermarket and is approached by a pair of kind fans, one of whom teaches Marion’s work back in Hong Kong, she’s overcome at the moment of grace-filled connection. In the next story we journey back to Hong Kong with the teacher, Jackie, and enter into her dilemma over whether to stay with her husband or leave him for the doctor she’s been having an affair with.
As he ushers readers around the world, Szalay invites us to marvel at how quickly life changes and how – improbable as it may seem – we can have a real impact on people we may only meet once. There’s a strong contrast between impersonal and intimate spaces: airplane cabins and hotel rooms versus the private places where relationships start or end. The title applies to the characters’ tumultuous lives as much as to the flight conditions. They experience illness, infidelity, domestic violence, homophobia and more, but they don’t stay mired in their situations; there’s always a sense of motion and possibility, that things will change one way or another.
My favorite story was “DOH – BUD,” in which Ursula goes to visit her daughter Miri and gains a new appreciation for Miri’s fiancé, Moussa, a Syrian refugee. I also liked how the book goes full circle, with the family from the final story overlapping with that of the first. Though a few of the individual stories are forgettable, I enjoyed this more than Szalay’s Booker-shortlisted All that Man Is, another globe-trotting set of linked stories.
Like Beneath the Skin, this acknowledges the many parts making up the whole of humanity; like In Mid-Air, it encourages a diversity of opinion and experience rather than narrow-mindedness. Maybe the three books had more in common than I first thought?
A favorite line:
“In fact it was hard to understand quite what an insignificant speck this aeroplane was, in terms of the size of the ocean it was flying over, in terms of the quantity of emptiness which surrounded it on all sides.”
My rating:
Turbulence is published by Jonathan Cape today, December 6th. My thanks to the publisher for a free copy for review.
Out and About in Edinburgh
After going to Wigtown in April, I never expected I’d be back in Scotland this year. This was a fairly last-minute trip we booked so that my husband could attend a short rewilding workshop for PhD students. They all met up in Edinburgh and proceeded by bus into the Cairngorms to see sites of habitat restoration and potential future wildlife releases. I stayed behind at our Airbnb flat and kept up a reduced work load while enjoying the city break.
Day 1, Wednesday the 19th: A travel day. Our journey – two train rides plus a short walk at either end – should have taken just over 7 hours. Instead, it took 14. Recent storms had taken down wires at Durham and left debris on the line, so our original train was terminated at York. We managed to get a connection to Newcastle, queued outside for two hours for rail replacement buses that never came, and finally got a very delayed train through to Edinburgh. Our poor Airbnb hostess’s parents had to wait up for us until 12:40 a.m.
Day 2, Thursday the 20th: After just a few hours of sleep, we were up early so that Chris could leave by 7:15 for his meet-up on the Edinburgh campus. The props and sketches scattered about suggest that the flat owner is a theatre costume and set designer. The view overlooking Holyrood Park and Arthur’s Seat is spectacular – a great place to put in a few hours of proofreading before heading out to town after lunch.
On Clare’s recommendation I started with the Surgeons’ Hall Museums on the Royal College of Surgeons campus. They have several collections covering the history of surgery, dentistry, and pathology specimens. Many of the names and developments were familiar to me from Lindsey Fitzharris’s The Butchering Art. Joseph Lister’s frock coat is on display, and in one corner rare video footage plays of Sir Arthur Conan Doyle (who was initially a practicing physician) explaining how he based Sherlock Holmes on his university mentor, Joseph Bell.
It’s not a place for the squeamish as there are mummified skeletons, details about Burke and Hare’s grave-robbing, surgical tools, and tumors and other anatomical deformities in jars everywhere. I found it all fascinating and spent a good two hours poking around. My favorite bits were the case full of foreign bodies removed from noses, stomachs and intestines and the temporary exhibition, “A Quest for Healing” by Zhang Yanzi, who had a residency at the museums in the summer of 2017. Her pieces included a 2D mountain made of pill packets, a cotton and gauze sculpture bristling with acupuncture needles, a matching hanging sculpture of capillaries, two surgical beds, and various silk screen panels.
The pathology museum, spread across two floors, was a little overwhelming and almost distressingly faceless – so many human beings reduced to the conditions that had defined and perhaps killed them. The most striking specimen for me, then, was one that actually included a face. I think it was a First World War soldier whose nose had been sewn back together, and what was so remarkable was that you could see his ginger whiskers and eyebrows, and his eyes were closed as if he was just taking a nap. (For ever. In a museum case.)
The sculpture outside is From Here Health by Denys Mitchell (1994).
There are only explanatory panels about a select few samples, so it can be hard to spot just what’s wrong with the organs unless you have specialist medical knowledge. I appreciated the few places where notes have been added along the lines of “see your doctor if…” There were four polycystic kidneys on display in various cases, so including mine there were at least six present in the building that day. “More lives would be saved if more people carried kidney donor cards,” one caption read. Amen.
Clare also recommended the university area for its charity shops. I had a good trawl around Nicolson Street and bought one book, but a lot of the shops are geared towards vintage and High Street fashion. I had better luck at the Salvation Army store on Forrest Road (near the National Museum), where I found three books and two classical CDs.
On to the Writers’ Museum, which commemorates Robert Burns, Sir Walter Scott and Robert Louis Stevenson. I was most interested in the Stevenson material, including memorabilia from his later life on Samoa, especially as I’m currently reading a novel about his relationship with the American divorcee Fanny Osbourne. By now I was museum-ed out and headed back to the flat for a leftovers dinner and some reading before an early bedtime.
Day 3, Friday the 21st: Another morning of work followed by an afternoon of wandering on foot between free attractions and charity shops and avoiding the drizzle. I visited the unusual Scottish Parliament building (which cost a cool £414 million) and saw inside the debating chamber. Four books from the Lothian Cat Rescue charity shop; quick jaunts around the Museum of Childhood, the Museum of Edinburgh, Canongate Kirk, the Music Museum, and the Central Library. When it came to it I couldn’t be bothered to pay £14 to go around Holyrood Palace, but I enjoyed a reasonably priced cappuccino and carrot cake at their café. Chris was back in the evening for a dinner of frozen pizza with local beer and cider.
Day 4, Saturday the 22nd: Our one full day in the City together. We weren’t feeling up to the Arthur’s Seat walk, so we did a gentle stroll up the Salisbury Crags and back instead. Then we caught a bus out to the Stockbridge area for more charity shopping (two more books) and a scrumptious brunch at The Pantry. This was a recommendation on chef David Lebovitz’s food blog and it more than lived up to expectations. It’s no wonder we had to wait half an hour for a table. I could have eaten anything on the menu, but in the end I had smoked salmon eggs Benedict followed by a cherry and Nutella brownie.
After a brief browse at Golden Hare Books, we went on along the Water of Leith to the lovely Royal Botanic Garden. It’s free to walk around, but we also paid to tour the Glasshouses, which recreate the flora of 10 different climates. The RBG is also home to the National Memorial for Organ and Tissue Donors, a peaceful circular space set back in the woods and marked out by a few benches and stone monuments. As I have organ donors to thank for the continued life and health of my mother and several other relatives, it was well worth a visit.
Back into town for gelato (I had a delicious poached plum and cinnamon sorbet) at Mary’s Milk Bar, which is on Grassmarket across from the Castle and was another Lebovitz recommendation. A quick circuit of the animal hall at the National Museum before it closed, a stroll along the Royal Mile, and a rest with tea and books back at the flat before going back out for a veggie curry.
Airbnb bedroom reading nook
Day 5, Sunday the 23rd: Return travel day. No major issues, but still enough of a delay to apply for compensation – refunds from LNER and my husband’s work will have made the journey very cheap indeed.
I was sad to leave Edinburgh this time. I loved our Airbnb flat and felt very at home in it. If I had a bicycle to get into town a little faster, I could easily live there. The tourists would probably drive me mad, but Edinburgh is a wonderful place with so much to see and do and such incredible scenery within a short drive.
Thank you to everyone who offered suggestions of what to see and do. I managed to fit in most of what you recommended!
What I read:
The bulk of Unsheltered, Barbara Kingsolver’s bold new novel about distrust and displacement in America then (the 1870s) and now (during the rise of Trump), and Come to Me by Amy Bloom, a wonderful story collection about people who love who they shouldn’t love. More about this one in my upcoming round-up of short stories I’ve read this month.
A Ladder to the Sky by John Boyne is a delicious piece of literary suspense with a Tom Ripley-like hero you’ll love to hate: Maurice Swift, who wants nothing more than to be a writer but doesn’t have any ideas of his own, so steals them from other people. I loved how we see this character from several outside points of view – first Erich Ackerman, whose Nazi-era history provides the basis for Maurice’s first novel; then Gore Vidal, to whose Italian home Maurice pays a visit with his new mentor; and finally Maurice’s wife Edith, a celebrated author in her own right – before getting Maurice’s own perspective. By this point we know enough about him to understand just how unreliable a narrator he is. My one criticism is that I would have binned the whole subplot about Edith’s sister and brother-in-law. (A nice touch: at one point Maurice buys a reprint copy of Maude Avery’s Like to the Lark, which should ring a bell from The Heart’s Invisible Furies.)
I also read over half of Jenny Diski’s Stranger on a Train, a memoir about two long train journeys she took across America in the late 1990s that also incorporates memories from a troubled adolescence – she started smoking at 14 and was in and out of mental hospitals at 15 – in which she loved nothing more than to read while riding the Circle line all day long. I’m a quarter of the way through both Nancy Horan’s Under the Wide and Starry Sky, about Stevenson and his wife, and Peter Hill’s Stargazing, a memoir about dropping out of art school to become a Scottish lighthouse keeper in 1973; he started on Pladda, a tiny island off of Arran. And on my Nook I read a good bit of All You Can Ever Know, Nicole Chung’s forthcoming memoir about being raised by adoptive white parents in Oregon and meeting members of her Korean family in her mid-twenties, just as she became a mother herself.
Third Blog Anniversary
Hard to believe, but I’ve only been blogging for three years as of today. It feels like something I’ve been doing forever, but at the same time I still consider myself a newbie. This is my 382nd post, so I’ve been keeping up an average of 2.5 posts a week.
By Joey Gannon from Pittsburgh, PA (Candles) [CC BY-SA 2.0 (http://creativecommons.org/licenses/by-sa/2.0)%5D, via Wikimedia Commons.
I’ve particularly enjoyed doing author Q&As and highlighting seasonal reads, novellas, books about cats, and physical book traits. I especially like writing up bookshop visits and other literary travels, and discussing literary prizes. My supply of graphic novels seems to have dried up; for new releases I focus on literary fiction, historical fiction and memoirs.
Straightforward book reviews have always been less popular than book lists and other more tangentially book-related posts. Library Checkout posts are consistently well-liked, as were the “Books in Brief” sets of five mini-reviews I used to do. As I’ve noted before, my posts on abandoned books are always perversely popular.
Some of my favorite posts from the past year were on World Kidney Day, Mother–Daughter Author Pairs, and Book Hoarding, and my review in verse of Jonathan Eig’s Ali: A Life.
The numbers of likes seem to be less than informative as they simply reflect a growing number of followers – many of my recent posts have averaged 20–25 likes – so I prefer to look at comments, as it means people are truly reading and engaging. In terms of numbers of comments, my top posts of all time appeared in the last year and were:
- Bibliotherapy appointment
- Books in Brief, May 2017 (featuring books by Sebastian Barry, Tracy Chevalier, Thomas H. Cook, Nicole Gulotta and Elizabeth Hay)
- (Tied for 3rd) Booker Longlist 2017 & Jacob’s Room Is Full of Books review
Thanks to everyone who has supported me this past year, and/or all three years, by visiting the site, commenting, re-tweeting, and so on. You’re the best!
Four Books for World Kidney Day
Today, March 9th, is World Kidney Day. “The kidneys are like the Rodney Dangerfield of vital organs—they get no popular respect,” Vanessa Grubbs (whose memoir I discuss below) wryly comments. Chances are you rarely have occasion to think about your kidneys. But I’m honoring them with a reading list because several years ago I was diagnosed with polycystic kidney disease, a degenerative condition that runs in my family. My maternal grandmother had it – we’ve never definitively traced it further back than her – and four of her six children have it, too. (If you took a high school genetics class, you might remember that with an autosomal dominant condition offspring have a 50% chance of inheriting the gene for the disease.) A few cousins of my generation also have PKD, and starting with my mom we’ve had a few successful kidney transplants in the family so far.
I must mention the excellent work done by the PKD Foundation in the States and the PKD Charity here in the UK. Both are a great support and source of information for me and my wider family.
The Plimsoll Line by Juan Gracia Armendáriz
As soon as I read Melissa’s review at The Book Binder’s Daughter, I knew I had to get this one. “The Plimsoll line” is a maritime term indicating how low a cargo-laden ship can sit in the water without sinking; here it’s used metaphorically to ask just how much one man can take. Gabriel Ariz is a 52-year-old art professor who lives not far from the city yet surrounded by oak woods. He’s divorced from Ana, who’s pressuring him to sell the house, and their young adult daughter Laura died a few years ago in a car accident. Now this pack-a-day smoker who gets drunk with his brother, traveling photographer Óscar, learns that he has end-stage renal disease and his life will have to change. On indefinite leave from work, he attends a dialysis clinic several times a week and joins the organ transplant list.
At times this was a bit overwritten for my tastes – some paragraphs stretch to several pages, and I’ve had to look up words, including “lentitude” and “logomachy” – but I did love the author’s trick of jumping into different perspectives. On multiple occasions he employs an “anonymous observer,” and in various chapters the point-of-view shifts to a member of the animal kingdom: Polanski the cat, a black kite flying overhead, a mole popping up in the garden, or a beetle winging across the detritus of Gabriel’s untidy household. We also get an extended section from Laura’s journals that reveals a disturbing family secret.
This is not one for the squeamish as it gives an unflinching account of dialysis: “His forearm throbbed, lacerated by needle marks. Sara had taken a while to find the fistula, and now the pain spread under the surgical tape like a jellyfish sting.” But for every passage that makes you cringe there’s a beautiful one that captures things perfectly: “he is living in constant deferment, between parentheses” and “If the succubus of his bad dreams were to say to him, ‘Make a wish,’ he would ask to be able to mold himself to the geological quietude of stones.”
The Plimsoll Line won Spain’s Premio Tiflos de Novela in 2008 and first appeared in English translation in 2015. It is part of a “Trilogy of Illness”; I presume the other volumes are not yet available in English, though I’ve enquired of the translator, Jonathan Dunne, via a Facebook message just in case. Forget Ferrante and Knausgaard; this is the semi-autobiographical series I’ll be awaiting the next installment of with bated breath.
My rating:
Hundreds of Interlaced Fingers by Vanessa Grubbs
Grubbs is a nephrologist and assistant professor of medicine at San Francisco General Hospital. Well before she made the kidneys her clinical area of expertise, a personal encounter made them special to her. In 2003 she met Robert Phillips when she was an attending trying to get support for her Office of Diversity Affairs; he was a hospital trustee. She only later learned, after they started dating, that due to FSGS his kidneys had failed in his twenties and he’d been on dialysis for years. In 2005 she donated him one of her kidneys. Robert’s health was touch-and-go for a little while there, but he proposed to her soon afterwards. I read about a third of this and then skimmed the rest because I wasn’t all that interested in their separate histories. However, I did like the context Grubbs gives, such as a brief history of dialysis, nephrology case studies, and a great set of FAQs. She also notes that minorities are less likely to get organ transplants, a disparity she is working to rectify.
This memoir grew out of an essay for Health Affairs, “Good for Harvest, Bad for Planting.” Releases June 13th.
My rating: 
The A to Z of You and Me by James Hannah
(First reviewed in November 2015; here’s a shortened version.) Lying in a hospice bed, 40-year-old Ivo looks back on his life. Even after just four short decades and a modest career at a garden center, he has plenty to regret. Hard partying and drug use exacerbated his diabetes and prompted kidney failure. His lifestyle also led indirectly to his girlfriend, nursing student Mia (the “you” he often addresses directly), leaving him. He’s estranged from his sister and his friends from school days, especially Mal. How did he mess up so badly and cut himself off so completely that he’s now dying alone? And how much can he put right before he goes?
There’s plenty of affecting writing in Hannah’s debut novel. I liked how he captures the routines of institutional life. Nurse Sheila’s A to Z game, encouraging Ivo to think of a memory attached to body parts starting with each letter of the alphabet, provides a hokey but effective structure. Keeping in mind that in British English Z is pronounced ‘zed’, the title doesn’t rhyme, but this is still somewhat sappy. I’d recommend it to fans of Mark Haddon and David Nicholls. I’ll follow Hannah’s career and hope he avoids melodrama and a contrived setup – the two near-pitfalls of this one – in the future.
My rating: 
The Reluctant Donor by Suzanne F. Ruff
A sepia-toned photograph at the centerfold tells a solemn tale: six of these eight members of Ruff’s Irish-Catholic Chicago family died, directly or indirectly, as a result of PKD. I’ve always known there’s a long waiting list for transplant kidneys, but I was surprised to learn that dialysis machines used to be rare; demand far exceeded supply, and the procedure was not covered by Medicare until 1973. Ruff’s aunt, Sister Mike, decided the lives of people with children were more important than her own, so didn’t press for dialysis; when her kidneys failed in her forties, death followed just a few months later.
Things had greatly improved by the time Ruff’s mother needed a transplant. Joan sounds like a feisty, lovable character, with plenty of good advice on being a patient: fight for your rights (the meek ones often end up being carried out feet first), get up and walk as soon after surgery as you possibly can, and appreciate the joy of an entirely ordinary day. Ruff’s parents had her and her sisters tested for PKD when they were teenagers. Having gone to the trouble, they then lied about the results! They said no one had PKD, but in the end two out of three did; only Ruff was spared. This is how she ended up donating a kidney to her younger sister, JoAnn. The more interesting sections of the book are about Ruff’s family history; her internal struggle to convince herself to commit to organ donation makes for pretty repetitive moaning.
In general, the writing isn’t great. Skimming through, I found a page with 16 of my proofreading marks; on most pages it’s more like 2–3. There’s also a tendency to over-write when portraying emotion: “Genetic disease. Those two words made my spine shiver, my ears ring, my throat close, and my heart pound; I became lightheaded and faint. Terror crept into my core and gripped me in its vice [sic].” While I’m not sure I could recommend this to someone who doesn’t have a personal stake in organ donation, for those who are interested in an autobiographical account of genetic disease/transplant surgery, it’s a quick, pleasant read.
My rating:
Plus two more kidney-themed novels I’m on the look-out for:
- Useful, Debra Oswald, about a man who decides to donate a kidney to a stranger
- The Kidney Hypothetical: Or How to Ruin Your Life in Seven Days, Lisa Yee, a YA comedy in which a girl asks her boyfriend if he’d give her a kidney. Hypothetically, right?
I’m on the fence about:
- Larry’s Kidney: Being the True Story of How I Found Myself in China with My Black Sheep Cousin and His Mail-Order Bride, Skirting the Law to Get Him a Transplant—and Save His Life, Daniel Asa Rose (I think the subtitle says it all!)
- I, Kidney, Chris Six: a self-published, semi-autobiographical novel
Bookish Beck = Rebecca Foster. American transplant to England. Freelance proofreader and book reviewer.
Bookish Beck 