The 2019 Wellcome Book Prize: Shadow Panel and Wish List
On Tuesday the longlist for the 2019 Wellcome Book Prize will be announced. For the third year in a row I’m running a shadow panel, and it’s composed of the same four wonderful book bloggers who joined me last year: Paul Cheney of Halfman, Halfbook, Annabel Gaskell of Annabookbel, Clare Rowland of A Little Blog of Books, and Dr. Laura Tisdall.
This year we’re going to do things slightly differently: we plan to split up the longlist, taking two to three titles each, so that between us we will have read them all and can announce our own preferred shortlist before the official shortlist is announced in March. At that point we’ll catch up by (re)reading the six shortlisted books, each reviewing the ones we haven’t already. Essentially, I’m adding an extra stage of shadow panel judging, simply because I can. I hope it will be fun – and also less onerous, in that we should get a leg-up on the shortlist and not have to read all six books in March‒April, which has proved to be a challenge in the past.
My Wellcome Prize hopefuls are all the fiction or nonfiction titles I’ve read on a medical theme that were published in the UK in calendar year 2018. I have put asterisks beside the 12 books in this post that I predict for the longlist. (The combination of wishful thinking and likelihood means that these are not exclusively my personal favorites.)
Below is a list of the books I’ve already featured on the blog in some way, with links to my coverage and a few-word summary of their relevance.
Nonfiction
Gross Anatomy by Mara Altman: Female body woes
*Beneath the Skin: Great Writers on the Body: Essays on organs
*All that Remains by Sue Black: Forensic anthropology
Everything Happens for a Reason by Kate Bowler: Living with advanced cancer
Heal Me by Julia Buckley: Tackling chronic pain
*The Unmapped Mind by Christian Donlan: Adjusting to life with MS
From Here to Eternity by Caitlin Doughty: Funerary rites around the world
This Really Isn’t About You by Jean Hannah Edelstein: A genetic disease in the family
Natural Causes by Barbara Ehrenreich: Questioning the wellness culture
On Smaller Dogs and Larger Life Questions by Kate Figes: Pondering breast cancer
Shapeshifters by Gavin Francis: Instances of bodily change
The Reading Cure by Laura Freeman: Healing from an eating disorder
Nine Pints by Rose George: The story of blood
Waiting for the Last Bus by Richard Holloway: Ageing and death
*Heart: A History by Sandeep Jauhar: Heart disease and treatments
Sick by Porochista Khakpour: Chronic Lyme disease
Human Errors by Nathan Lents: Flawed bodies; evolutionary adaptations
Skybound by Rebecca Loncraine: Breast cancer; flying lessons
Amateur by Thomas Page McBee: Memoir of F2M transformation
*Face to Face by Jim McCaul: Tales of facial surgery
*Somebody I Used to Know by Wendy Mitchell: A firsthand account of early Alzheimer’s
*That Was When People Started to Worry by Nancy Tucker: Mental illness from the inside
*The Language of Kindness by Christie Watson: Nursing as a vocation
Fiction
Little by Edward Carey: Anatomical models in wax (thanks to Clare for the reminder!)
Orchid & the Wasp by Caoilinn Hughes: Non-epileptic seizures
*The Winter Soldier by Daniel Mason: Neurology, surgery during WWI
The Way of All Flesh by Ambrose Parry: Medicine in 1840s Edinburgh
Other eligible books that I have read but not happened to mention on the blog:
In Shock by Rana Awdish: The doctor became the patient when Awdish, seven months pregnant, was rushed into emergency surgery with excruciating pain due to severe hemorrhaging into the space around her liver, later explained by a ruptured tumor. Having experienced brusque, cursory treatment, even from colleagues at her Detroit-area hospital, she was convinced that doctors needed to do better. This memoir is a gripping story of her own medical journey and a fervent plea for compassion from medical professionals. 
Doctor by Andrew Bomback: Part of the Bloomsbury Object Lessons series, this is a wide-ranging look at what it’s like to be a doctor. Bomback is a kidney specialist; his wife is also a doctor, and his father, fast approaching retirement, is the kind of old-fashioned, reassuring pediatrician who knows everything. Even the author’s young daughter likes playing with a stethoscope and deciding what’s wrong with her dolls. In a sense, then, Bomback uses fragments of family memoir to compare the past, present and likely future of medicine. 
A Moment of Grace by Patrick Dillon [skimmed]: A touching short memoir of the last year of his wife Nicola Thorold’s life, in which she battled acute myeloid leukemia. Dillon doesn’t shy away from the pain and difficulties, but is also able to summon up some gratitude.
Get Well Soon: Adventures in Alternative Healthcare by Nick Duerden: British journalist Nick Duerden had severe post-viral fatigue after a run-in with possible avian flu in 2009 and was falsely diagnosed with ME / CFS. He spent a year wholeheartedly investigating alternative therapies, including yoga, massage, mindfulness and meditation, visualization, talk therapy and more. He never comes across as bitter or sorry for himself. Instead, he considered fatigue a fact of his new life and asked what he could do about it. So this ends up being quite a pleasant amble through the options, some of them more bizarre than others.
*Sight by Jessie Greengrass [skimmed]: I wanted to enjoy this, but ended up frustrated. As a set of themes (losing a parent, choosing motherhood, the ways in which medical science has learned to look into human bodies and minds), it’s appealing; as a novel, it’s off-putting. Had this been presented as a set of autobiographical essays, perhaps I would have loved it. But instead it’s in the coy autofiction mold where you know the author has pulled some observations straight from life, gussied up others, and then, in this case, thrown in a bunch of irrelevant medical material dredged up during research at the Wellcome Library. 
*Brainstorm: Detective Stories From the World of Neurology by Suzanne O’Sullivan: Epilepsy affects 600,000 people in the UK and 50 million worldwide, so it’s an important condition to know about. It is fascinating to see the range of behaviors seizures can be associated with. The guesswork is in determining precisely what is going wrong in the brain, and where, as well as how medicines or surgery could address the fault. “There are still far more unknowns than knowns where the brain is concerned,” O’Sullivan writes; “The brain has a mind of its own,” she wryly adds later on. (O’Sullivan won the Prize in 2016 for It’s All in Your Head.)
I’m also currently reading and enjoying two witty medical books, The Mystery of the Exploding Teeth and Other Curiosities from the History of Medicine by Thomas Morris, and Chicken Unga Fever by Phil Whitaker, his collected New Statesman columns on being a GP.
Four additional books I have not read but think might have a chance of making the longlist:
Primate Change: How the World We Made Is Remaking Us by Vybarr Cregan-Reid
The Beautiful Cure: Harnessing Your Body’s Natural Defences by Daniel M. Davis
Because I Come from a Crazy Family: The Making of a Psychiatrist by Edward M. Hallowell
*She Has Her Mother’s Laugh: The Powers, Perversions, and Potential of Heredity by Carl Zimmer
Look out for the announcement of the longlist on Tuesday afternoon! I’ll report back, perhaps on Wednesday, with some reactions and the shadow panel’s reviewing strategy.
Have you read, or are you interested in, any of these books?
Can you think of other 2018 releases that might be eligible for the Wellcome Book Prize?
35 Years, 35 Favorite Books
I love book lists: ticking off what I’ve read from newspaper and website selections, comparing my “best-of” choices and prize predictions with other people’s, and making up my own thematic inventories. Earlier in the year I spotted Desert Island-style 100-book lists on Annabookbel and A life in books, as well as Lonesome Reader’s reconsideration of the 100 favorite books he’d chosen half a lifetime ago. For my 35th birthday today, I’ve looked back at my “Absolute Favorites” shelf on Goodreads and picked the 35 titles that stand out the most for me: some are childhood favorites, some are books that changed my thinking, some I have read two or three times (an extreme rarity for me), and some are recent discoveries that have quickly become personal classics. I’ve listed these in rough chronological order of when I first read them, rather than ranking them, which would be nigh on impossible! Perhaps I’ll revisit the list on future significant birthdays and see how things change. Interesting to note that this works out as about two-thirds fiction and one-third nonfiction.
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- Miss Rumphius by Barbara Cooney
- The Silver Chair by C.S. Lewis
- Watership Down by Richard Adams
- Anne of Green Gables by L.M. Montgomery
- David Copperfield by Charles Dickens
The Scarlet Letter by Nathaniel Hawthorne- Far from the Madding Crowd by Thomas Hardy
- Jane Eyre by Charlotte Brontë
- A Portrait of the Artist as a Young Man by James Joyce
- Possession by A.S. Byatt
- Flaubert’s Parrot by Julian Barnes
- Sixpence House by Paul Collins
A History of God by Karen Armstrong- Conundrum by Jan Morris
- The Heart of Christianity by Marcus Borg
- The Blind Assassin by Margaret Atwood
- My Family and Other Animals by Gerald Durrell
- On Beauty by Zadie Smith
- Heaven’s Coast by Mark Doty
Secrets in the Dark by Frederick Buechner- A Prayer for Owen Meany by John Irving
- American Wife by Curtis Sittenfeld
- Middlesex by Jeffrey Eugenides
- Caribou Island by David Vann
- To Travel Hopefully by Christopher Rush
- We, the Drowned by Carsten Jensen
The Emperor of All Maladies by Siddhartha Mukherjee- Leaving Alexandria by Richard Holloway
- An Exact Replica of a Figment of My Imagination by Elizabeth McCracken
- A Tale for the Time Being by Ruth Ozeki
- Want Not by Jonathan Miles
- Journal of a Solitude by May Sarton
- F by Daniel Kehlmann
Dinner at the Homesick Restaurant by Anne Tyler- March by Geraldine Brooks
Are any of these among your favorites, too?
Wellcome Book Prize Shadow Panel & Two Longlist Reviews
I’m delighted to announce the other book bloggers on my Wellcome Book Prize 2018 shadow panel: Paul Cheney of Halfman, Halfbook, Annabel Gaskell of Annabookbel, Clare Rowland of A Little Blog of Books, and Dr. Laura Tisdall. Once the shortlist is announced on Tuesday the 20th, we’ll be reading through the six nominees and sharing our thoughts. Before the official winner is announced at the end of April we will choose our own shadow winner.
I’ve been working my way through some of the longlisted titles I was able to access via the public library and NetGalley. Here’s my latest two (both 
):
Plot 29: A Memoir by Allan Jenkins
This is an unusual hybrid memoir: it’s a meditative tour through the gardening year, on a plot in London and at his second home in his wife’s native Denmark. But it’s also the story of how Jenkins, editor of the Observer Food Monthly, investigated his early life. Handed over to a Barnardo’s home at a few months of age, he was passed between various family members and a stepfather (with some degree of neglect: his notes show scabies, rickets and TB) and then raised by strict foster parents in Devon with his beloved older half-brother, Christopher. It’s interesting to read that initially Jenkins intended to write a simple gardening diary, with a bit of personal stuff thrown in. But as he got further into the project, it started to morph.
This cover image is so sweet. It’s a photograph from Summer 1959 of Christopher and Allan (on the right, aged five), just after they were taken in by their foster parents in Devon.
The book has a complicated chronology: though arranged by month, within chapters its fragments jump around in time, a year or a date at the start helping the reader to orient herself between flashbacks and the contemporary story line. Sections are often just a paragraph long; sometimes up to a page or two. I suspect some will find the structure difficult and distancing. It certainly made me read the book slowly, which I think was the right way. You take your time adjusting to the gradual personal unveiling just as you do to the slow turn of the seasons. When major things do happen – meeting his mother in his 30s; learning who his father was in his 60s – they’re almost anticlimactic, perhaps because of the rather flat style. It’s the process that has mattered, and gardening has granted solace along the way.
I’m grateful to the longlist for making me aware of a book I otherwise might never have heard about. I don’t think the book’s mental health theme is strong enough for it to make the shortlist, but I enjoyed reading it and I’ll also take a look at Jenkins’s upcoming book, Morning, about the joys of being an early riser. (Ironic after my recent revelations about my own sleep patterns!)
Favorite lines:
“Solitude plus community, the constant I search for, the same as the allotment”
“The last element to be released from Pandora’s box, they say, was hope. So I will mourn the children we once were and I will sow chicory for bitterness. I will plant spring beans and alliums. I’ll look after them.”
“As a journalist, I have learned the five Ws – who, what, where, when, why. They are all needed to tell a story, we are taught, but too many are missing in my tale.”
With the End in Mind: Dying, Death and Wisdom in an Age of Denial by Kathryn Mannix
This is an excellent all-round guide to preparation for death. It’s based around relatable stories of the patients Mannix met in her decades working in the fields of cancer treatment and hospice care. She has a particular interest in combining CBT with palliative care to help the dying approach their remaining time with realism rather than pessimism. In many cases this involves talking patients and their loved ones through the steps of dying and explaining the patterns – decreased energy, increased time spent asleep, a change in breathing just before the end – as well as being clear about how suffering can be eased.
I read the first 20% on my Kindle and then skimmed the rest in a library copy. This was not because I wasn’t enjoying it, but because it was a two-week loan and I was conscious of needing to move on to other longlist books. It may also be because I have read quite a number of books with similar themes and scope – including Caitlin Doughty’s two books on death, Caring for the Dying by Henry Fersko-Weiss, Being Mortal by Atul Gawande, and Waiting for the Last Bus by Richard Holloway. Really this is the kind of book I would like to own a copy of and read steadily, just a chapter a week. Mannix’s introductions to each section and chapter, and the Pause for Thought pages at the end of each chapter, mean the book lends itself to being read as a handbook, perhaps in tandem with an ill relative.
The book is unique in giving a doctor’s perspective but telling the stories of patients and their families, so we see a whole range of emotions and attitudes: denial, anger, regret, fear and so on. Tears were never far from my eyes as I read about a head teacher with motor neurone disease; a pair of women with metastatic breast cancer who broke their hips and ended up as hospice roommates; a beautiful young woman who didn’t want to stop wearing her skinny jeans even though they were exacerbating her nerve pain, as then she’d feel like she’d given up; and a husband and wife who each thought the other didn’t know she was dying of cancer.
Mannix believes there’s something special about people who are approaching the end of their life. There’s wisdom, dignity, even holiness surrounding them. It’s clear she feels she’s been honored to work with the dying, and she’s helped to propagate a healthy approach to death. As her children told her when they visited her dying godmother, “you and Dad [a pathologist] have spent a lifetime preparing us for this. No one else at school ever talked about death. It was just a Thing in our house. And now look – it’s OK. We know what to expect. We don’t feel frightened. We can do it. This is what you wanted for us, not to be afraid.”
I would be happy to see this advance to the shortlist.
Favorite lines:
“‘So, how long has she got?’ I hate this question. It’s almost impossible to answer, yet people ask as though it’s a calculation of change from a pound. It’s not a number – it’s a direction of travel, a movement over time, a tiptoe journey towards a tipping point. I give my most honest, most direct answer: I don’t know exactly. But I can tell you how I estimate, and then we can guesstimate together.”
“we are privileged to accompany people through moments of enormous meaning and power; moments to be remembered and retold as family legends and, if we get the care right, to reassure and encourage future generations as they face these great events themselves.”
Longlist strategy:
Currently reading: The Butchering Art by Lindsey Fitzharris: a history of early surgery and the fight against hospital infection, with a focus on the life and work of Joseph Lister.
Up next: I’ve requested review copies of The White Book by Han Kang and Mayhem by Sigrid Rausing, but if they don’t make it to the shortlist they’ll slip down the list of priorities.
Waiting for the Last Bus by Richard Holloway
Theology rarely appears on this blog, though I have a dual degree in English and Religion and read a fair number of books with religious themes. Never fear: it’s not your average pie-in-the-sky Christian talk in Waiting for the Last Bus, Richard Holloway’s brand-new book about old age and death. Holloway was a career priest and has written nearly 30 theological works, but he comes at things from a refreshingly different angle. In Leaving Alexandria (2012), one of my all-time favorite memoirs, he recorded his drift away from orthodoxy – even as he rose through the ranks of the Church of Scotland to become Bishop of Edinburgh. He recognizes morality as provisional (like in another of his books I’ve read, Godless Morality (1999)) – the Church has changed its mind about women and gay people, for instance – and doesn’t waste time pondering the supernatural or the chance of eternal life, but he still thinks religion has lessons to teach us about how we can approach death with dignity.
The thematic scaffolding of this short book, which grew out of a Radio 4 series that aired in 2016, is acceptance versus denial. For Holloway, going prematurely bald was like a preview of ageing, and the futility of the quack hair restoration pills he ordered from a magazine was his first lesson in accepting what you cannot change about yourself. Seeing ourselves as we really are is a lifelong struggle, Holloway acknowledges; some only grasp their identity right at the end, as death approaches. Predestination is a doctrine common to Christianity and Islam, but he is more inclined to mix free will and fate. His recurring metaphor is of a deck of cards: life is a hand that you are dealt, but you get to choose exactly how to play it.
This is a richly allusive book, full of snatches of literature (especially poetry), as well as excerpts from obituaries and from funeral addresses Holloway has given. He also discusses the fear of death, the dystopian possibilities of cryogenic freezing, countering regrets with forgiveness, and how the way we face death could redeem a disappointing life. Holloway’s is a voice of wisdom worth heeding, and he is honest and humble instead of giving pat answers to life’s enormous questions. I would be particularly likely to recommend this to readers of Julian Barnes’s Nothing to Be Frightened Of who want a contrasting perspective.
A couple of favorite passages:
“I have ministered [Last Rites] myself and seen the peace they can bring at the end. I have sent good friends into the arms of a merciful God I was no longer sure I believed in. And I was convinced not only of the efficacy but of the honesty of what I was doing. I was not there to ventilate my doubts but to help the dying find the strength to cast off and take the tide that was pulling them out.”
“Religion is at its most compelling when it restrains the urge to explain death away and contents itself with voicing our sorrow and defiance that [death] keeps beating us into the ground. It feels most authentic when it stops preaching and becomes, instead, our song, our protest, the handkerchief waved against the immense tank looming at the corner of the street.”
My rating:
Waiting for the Last Bus is published in the UK today, March 1st. With thanks to Canongate for the free copy for review.
Books that (Should Have) Literally Changed My Life
(Following on from my posts Landmark Books from My Early Life and Landmark Books in My Life, Part II.)
Every once in a while you’ll hear someone claim that a certain book will change your life. I think of a scene in Garden State, still one of my favorite movies of all time, where Natalie Portman’s character tells Zach Braff’s character “this song will change your life” and puts The Shins’ “New Slang” on his headphones. (Ok, it’s a good song, but not that great.)
Are there any books that have literally changed my life? I can think of a handful that have been extremely influential on my worldview and, in a couple of cases, also changed my behavior. As it happens, they’re all nonfiction.
Religion
After I got back to the States from my year abroad, I spent a few years doing some intensive reading about progressive Christianity (it was sometimes also called the emergent church) and other religions, trying to decide if it was worth sticking with the faith I’d grown up in. Although I still haven’t definitively answered this for myself, and have drifted in and out of lots of churches over the last 12 years, two authors were key to me never ditching Christianity entirely: Brian McLaren and Marcus Borg.
McLaren founded the church we attend whenever we’re back in Maryland and is the author of over a dozen theology titles, including the New Kind of Christian trilogy of allegorical novels. For me his best book is A New Kind of Christianity, which pulls together all his recurrent themes. Borg, who died in 2015, wrote several books that made a big impression on me, but none more so than The Heart of Christianity, which is the best single book I’ve found about what Christianity can and should be, going back to Jesus’ way of peace and social justice and siphoning off the unhelpful doctrines that have accumulated over the centuries.
Any number of other Christian books and authors have been helpful to me over the years (Secrets in the Dark by Frederick Buechner, How (Not) to Speak of God by Peter Rollins, Falling Upward by Richard Rohr, An Altar in the World by Barbara Brown Taylor, Without Buddha I Could Not be a Christian by Paul Knitter, Unapologetic by Francis Spufford, and various by Kathleen Norris, Rowan Williams, Richard Holloway and Anne Lamott), reassuring me that it’s not all hellfire/pie in the sky mumbo-jumbo for anti-gay Republicans, but Borg and McLaren were there at the start of my journey.
Sexuality
Reading is my primary means of examining society as well as my own life, so it’s no wonder that I have turned to books to learn from some gender pioneers. Hanne Blank’s accessible social history Straight (2012) is particularly valuable for its revelation of the surprisingly short history of heterosexuality as a concept – the term has only existed since the 1860s. But the book that most helped me adjust my definitions of gender and broaden my tolerance was Conundrum by Jan Morris (1974).
James Morris, born in 1926, was a successful reporter, travel writer, husband and father. Yet all along he knew he was meant to be female; it was something he had sensed for the first time as a young child sitting under the family piano: “I was three or perhaps four years old when I realized that I had been born into the wrong body, and should really be a girl … the conviction was unfaltering from the start.” In 1954 he began taking hormones to start his transition to womanhood, completed by a sex reassignment surgery in Morocco in 1972. This exceptional memoir of sex change evokes the swirl of determination and doubt, as well as the almost magical process of metamorphosing from one thing to another. Morris has been instrumental in helping me see sexuality as a continuum rather than a fixed entity.
Food
Apart from Michael Pollan, can you guess who’s had the greatest influence on my eating habits? You might be surprised to learn it’s American novelist Jonathan Safran Foer. In 2009 he published a provocative book called Eating Animals. I’m still surprised by how powerful and challenging I found it, considering that I knew pretty much what to expect: anti-meat rhetoric from a trendy vegetarian, with plenty of arresting statistics and horrifying behind-the-scenes accounts of factory farming and slaughter. But I set aside my jaded approach to potential propaganda and let it all saturate me, and it was devastating.
The fact that I still haven’t completely given up meat is proof of how difficult it is to change, even once you’ve been convicted. We’ve gone from eating meat occasionally to almost never, and then mostly when we’re guests at other people’s houses. But if I really reminded myself to think about where my food was coming from, I’m sure we’d be even more hardline. Foer didn’t answer all my questions – what about offal and wild game, and why not go all the way to veganism? – but I appreciated that he never characterizes the decision to be vegetarian as an easy one. He recognizes the ways food is bound up with cultural traditions and family memories, but still thinks being true to one’s principles outweighs all. (He’s brave enough to suggest to middle America that it’s time to consider a turkey-free Thanksgiving!)
Daily Life
There’s nothing more routine than brushing your teeth, and I never thought I would learn a new way to do it at age 32! But that’s just what Ignore Your Teeth and They’ll Go Away by Sheldon Dov Sydney gave me. He advises these steps: (1) brushing with a dry brush to remove bits of food and plaque, (2) flossing, and (3) brushing with toothpaste as a polish and to freshen breath. It takes a little bit longer than your usual quick brush and thus I can’t often be bothered to do it, but it does always leave my mouth feeling super-clean.
I frequently succumb to negative self-talk, thinking “I can’t cope” or “There’s no way I could…” Feel the Fear and Do It Anyway by Susan Jeffers helped me see that I need to be more positive in my thought life. Originally published in 1987, the self-help classic says that at the base of every fear is a belief that “I can’t handle it.” Our fears are either of things that can happen to us (aging and natural disasters) or actions we might take (going back to school or changing jobs). You can choose to hold fear with either pain (leading to paralysis) or power (leading to action). This is still a struggle for me, but whenever I start to think “I can’t” I try to replace it with Jeffers’ mantra, “Whatever it is, I’ll handle it.”
Bookish Beck = Rebecca Foster. American transplant to England. Freelance proofreader and book reviewer.
Bookish Beck 