Tag Archives: multiple sclerosis
Recent Poetry Releases by Allison Blevins, Kit Fan, Lisa Kelly and Laura Scott
I’m catching up on four 2023 poetry collections from independent publishers, three of them from Carcanet Press, which so graciously keeps me stocked up with work by contemporary poets. Despite the wide range of subject matter, style and technique, nature imagery and erotic musings are links. From each I’ve chosen one short poem as a representative.
Cataloguing Pain by Allison Blevins
Last year I reviewed Allison Blevins’ Handbook for the Newly Disabled. This shares its autobiographical consideration of chronic illness and queer parenting. Specifically, she looks back to her MS diagnosis and three IVF pregnancies, and her spouse’s transition. Both partners were undergoing bodily transformations and coming into new identities, the one as disabled and the other as a man. In later poems she calls herself “The shell”, while “Elegy for My Wife,” which closes Part I, makes way for references to “my husband” in Part II.
“I won’t wail for your dead name. I don’t mean that violence. I wish for a word other than elegy to explain how some of this feels like goodbye.”
In unrhymed couplets or stanzas and bittersweet paragraphs, Blevins marshals metaphors from domestic life – colours, food, furniture, gardening – to chart the changes that pain and disability force onto their family’s everyday routines. “Fall Risk” and “Fly Season” are particular highlights. This is a potent and frankly sexual text for readers drawn to themes of health and queer family-making (see also my Three on a Theme post on that topic).
Published by YesYes Books on 19 April. With thanks to the author for the advanced e-copy for review.
The Ink Cloud Reader by Kit Fan
Kit Fan was raised in Hong Kong and moved to the UK as an adult. This is his third collection of poetry. “Suddenly” tells a version of his life story in paragraphs or single lines that all incorporate the title word (with an ironic nod, through the epigraph, to Elmore Leonard’s writing ‘rule’ that “suddenly” should never be used). The “IF” statements of “Delphi” then ponder possible future events; a trip to hospital sees him contemplating his mortality (“Glück,” written as a miniature three-act play) and appreciating tokens of beauty (“Geraniums in May”). “Yew,” unusually, is a modified sonnet where every line rhymes.
As the collection’s title suggests, it is equally interested in the natural and the human. There are poems describing the cycles of the moon (the lines of “Moon Salutation” curve into a half-moon parabola) and the wind. Ink pulls together calligraphy, the Chinese zodiac and literature. “The Art of Reading,” which commemorates important moments, real and imaginary, of the poet’s reading life, was a favourite of mine, as was “Derek Jarman’s Garden.” Fan also writes of memory and travels – including to the underworld. His relationship with his husband is a subtle background subject. (“Even though we’ve lived together for nearly twenty years and are always reading sometimes I can’t read you at all which I guess is a good thing”). It’s an opulent and allusive work that has made me eager to try more by Fan. Luckily, I have his debut novel (passed on to me by Laura T.) on the shelf.
Readalike: Moving House by Theophilus Kwek
Published on 27 April. With thanks to Carcanet Press for the advanced e-copy for review.
The House of the Interpreter by Lisa Kelly
Lisa Kelly’s concern with deafness is sure to bring to mind Raymond Antrobus and Ilya Kaminsky, but I prefer her work. Kelly is half-Danish and has single-sided deafness, and in Part I of this second collection, entitled “Chamber,” her poems engage with questions of split identity:
Is this what it is like for us all? Always having to relearn home
with a strange tongue and alien hands, prepared to open our mouths
as if to beg, to touch tongue-tip with fingertip to reveal ourselves?
The title poem relishes the absurdities of telephone communication, closing with:
In the House of the Interpreter,
Oralism and Manualism, like Passion and Patience,
are rewarded differently and at different times.
Hello, this is your Interpreter. What is your wishlist?
This section ends with “#WhereIsTheInterpreter,” about the Deaf community’s outrage that the Prime Minister’s Covid briefings were not simultaneously translated into BSL.
Bizarrely but delightfully, Kelly then moves onto “Oval Window,” a sequence of alliteration-rich poems about fungi. “Mycology Abecedarian” is a joyful list of species’ common names, while “Mycelium” notes how mushrooms show that different ways of evolution and reproduction are possible. “Darning Mushroom” even combines images of fungi and holey socks. Part III, “Canal,” is a miscellany of autobiographical poems and homages to Faith Ringgold, full of references to colour, language, nature and travel.
Readalike: In the Quaker Hotel by Helen Tookey
Published on 27 April. With thanks to Carcanet Press for the advanced e-copy for review.
The Fourth Sister by Laura Scott
Back in 2019 I reviewed Laura Scott’s debut collection, So Many Rooms. Her second book reflects some of the same preoccupations: art, birds, colour and Russian literature. Chekhov is a recurring point of reference across the two; here, for instance, we have a found poem composed of excerpts from his letters. Scott also writes about the deaths of her parents, voicing resentment towards her father and remarking on life’s irony. As the title suggests, her family constellation includes sisters. Her godparents loom surprisingly large; her godmother was, apparently, a spy. My favourite of the poems, “Still Life,” imagines the whole of life being prized as a glass in an exhibit, appealingly pristine and praiseworthy in comparison to what we usually perceive: “the raggy sprawl of a life … the wrong turns and longing of it.” Elsewhere, metaphors are drawn from the theatre: performing lines, taking items from a wardrobe. I loved the way the pull of nostalgia is set up in opposition to the now.
Published on 23 February. With thanks to Carcanet Press for the advanced e-copy for review.
Read any good poetry recently?
Barbellion Prize Shortlist: Book of Hours by Letty McHugh
The Barbellion Prize shortlist, announced yesterday, consists of the short story collection Polluted Sex and the novel Chouette, both of which I’m still keen to read; and two nonfiction works, Hybrid Humans, which I reviewed last year, and Letty McHugh’s hybrid memoir, Book of Hours: An Almanac for the Seasons of the Soul.
I’m saving up tiny joys the way a bear fattens up for the coming winter
A patchwork quilt of ordinary leftover happiness
to keep me warm through the darkest part of the night.
In medieval times, a book of hours was a devotional book that set out the day’s prayers. Usually an illuminated manuscript, it was a precious object for laypeople, and a way of marking time. For Letty McHugh, a Yorkshire-based visual artist who lives with chronic pain and illness, this book of hours is many things: a journal, a scrapbook, an enquiry into the monastic impulse, and an interrogation of the potential meanings of physical suffering.
In April 2020, McHugh experienced a relapse of MS so bad she had to move back in with her parents and was sleeping 20 hours a day. Her sphere had contracted to a single room. If only, she wished, there was “something to concentrate on that wasn’t my unravelling body or the unravelling world.” A Catholic upbringing and childhood holidays in Northumberland made her think about the early Christian hermits and saints like Aidan, Cuthbert and Julian of Norwich who salvaged something from solitude, who out of the privations of monasticism made monuments of faith and, sometimes, written documents, too.
This was the inspiration behind her own book of hours, which intersperses poems and photographs of found objects (wildflowers, animal skulls, sea glass and shells) with biographical sketches of saints, short autobiographical essays about her childhood and career, and musings on faith and pain. Metaphors of magic and outer space contrast with the claustrophobia of “the illness place,” somewhere she knows she’ll return to again and again. Although she knows she will never be perfectly holy or perfectly productive, she is encouraged to know that even those with confined lives (such as Emily Dickinson) can have a rich inner existence. While she resists the desire for a cure, or for a simple meaning to suffering, she bears witness to the fact that creativity can emerge in spite of everything.
I enjoyed spending time with this meticulously crafted and meditative work that engages with the present moment but also the eternal. It’s perfect onward reading for fans of the inaugural Barbellion Prize winner, Golem Girl by Riva Lehrer, and A Still Life by Josie George, a shortlistee from last year.
Book of Hours was self-published with assistance from Disability Arts Online. You can buy a signed copy of the handmade book from her Etsy shop, or read the text for free here.
With thanks to Letty McHugh for sending a free e-copy for review.
This year’s Barbellion Prize judges are Dr Emmeline Burdett, Lynn Buckle (last year’s winner) and scholar Ray Davis. The winner will be announced in February.
Review Catch-Up: Jhalak and Women’s Prize Nominees, Etc.
Another in an ongoing series as I catch up on the current and previous year releases I’ve been sent for review. Today I have four books by women: a poetry collection about living between countries and languages, a magic realist novel about vengeful spirits in Vietnam, a memoir in verse about the disabled body and queer parenting, and a novel set in gentrifying Puerto Rican neighbourhoods of New York City.
From the Jhalak Prize longlist:
Honorifics by Cynthia Miller (2021)
Miller is a Malaysian American poet currently living in Edinburgh. Honorifics was also shortlisted for the Forward Prize for Best First Collection. Its themes resonate with poetry I’ve read by other Asian women like Romalyn Ante and Jenny Xie and with the works of mixed-race authors such as Jessica J. Lee and Nina Mingya Powles: living between two or more countries and feeling like an exile versus finding a sense of home.
Nightly, you rosary American synonyms for success learned the hard way: suburb – 10-year visa – promotion – carpool – mortgage – parent-teacher conference – nuclear family – assimilation … Homecoming is the last, hardest thing you’ll ask yourself to do.
(from “Homecoming”)
“Loving v. Virginia” celebrates interracial love: “Look at us, improper. Look at us, indecent. Look at us, incandescent and loving.” Food is a vehicle for memory, as are home videos. Like Ante, Miller has a poem based on her mother’s voicemail messages. “Glitch honorifics” gives the characters for different family relationships, comparing Chinese and Hokkien. The imagery is full of colour and light, plants and paintings. A terrific central section called “Bloom” contains 10 jellyfish poems (“We bloom like nuclear hydrangea … I’m an unwound chandelier, / a 150-foot-long coil of cilia, // made up of a million gelatinous foxgloves.”).
Miller incorporates a lot of unusual structures, some of them traditional forms (“Sonnet with lighthouses,” “Moon goddess ghazal,” “Persimmon abecedarian”) and others freer forms like a numbered list, columns, dictionary definitions or prose paragraphs. Six of the poems cite an inspiration; I could particularly see the influence in “The Home Office after Caroline Bird” – an absurdist take on government immigration policy.
There’s much variety here, and so many beautiful lines and evocative images. “Malaysiana,” a tour through everything she loves about the country of her birth, was my single favourite poem, and a couple more passages I loved were “the heart measuring breaths like levelling sugar / for a batter, the heart saying / why don’t you come in from the cold.” (from “The impossible physiology of the free diver”) and the last two stanzas of “Lupins”: “Some days / their purple spines // are the only things / holding me up.” Flora and fauna references plus a consideration of the expat life meant this was custom made for me, but I’d recommend it to anyone looking to try out different styles of contemporary poetry.
With thanks to Nine Arches Press for the free copy for review.
From the Women’s Prize longlist:
Build Your House around My Body by Violet Kupersmith (2021)
Back in 2014, I reviewed Kupersmith’s debut collection, The Frangipani Hotel, for BookBrowse. I was held rapt by its ghostly stories of Vietnam, so I was delighted to hear that she had written a debut novel, and it was one of my few correct predictions for the Women’s Prize nominees. The main action takes place between when Winnie – half white and half Vietnamese – arrives in Saigon to teach English in 2010, and when she disappears from the house she shared with her boyfriend of three months, Long, in March 2011. But the timeline darts about to tell a much more expansive story, starting with the Japanese invasion of Vietnam in the 1940s. Each date is given as the number of months or years before or after Winnie’s disappearance.
Winnie starts off living with a great-aunt and cousins, and meets a family friend, Dr. Sang, who’s been experimenting on a hallucinogenic drug made from cobra venom. Long and his brother, Tan, a policeman, were childhood friends with a fearless young woman named Binh – now a vengeful ghost haunting them both. Meanwhile, the Saigon Spirit Eradication Company, led by the Fortune Teller, is called upon to eradicate a ghost – which from time to time seems to inhabit a small dog – from a snake-infested highland estate. These strands are bound to meet, and smoke and snakes wind their way through them all.
I enjoyed Kupersmith’s energetic writing, which reminded me by turns of Nicola Barker, Ned Beauman, Elaine Castillo and Naoise Dolan, and the glimpses of Cambodia and Vietnam we get through meals and motorbike rides. What happens with Belly the dog towards the end is fantastic. But the chronology feels needlessly complex, with the flashbacks to colonial history and even to Binh’s story not adding enough to the narrative. While I’d still like to see Kupersmith make the shortlist, I can recommend her short stories that bit more highly.
With thanks to Oneworld for the free copy for review.
Handbook for the Newly Disabled: A Lyric Memoir by Allison Blevins (2022)
Allison Blevins, a poet, has published five chapbooks or collections and has another forthcoming. Based in Missouri and the director of an indie press, she tells her story of chronic illness and queer parenting in 10 “chapters” composed of multi-part poems. She moves through brain fog and commemorates pain and desire, which cannot always coexist (as in “How to F**k a Disabled Body”).
I’ll never
ride a bike again, hike, carry my children. I’m learning to number what I’ve lost.
Because of the pills, I no longer fall into sleep, I stop. I used to hate queer at 19
when I was a dyke. I can’t be disabled. I need a better word. I need a body that floats—
translucent and liquid—to my daughter’s bed, to cover her like cotton-red quilted stars.
(from “Brain Fog”)
Sometimes the title is enough: “My Neurologist (Who Doesn’t Have MS) Explains Pain Is Not a Symptom of MS.” Other times, what is left out, or erased (as in “Five by Five”) is what matters the most. For instance, the Photo Illustrations promised in the titles of two chapters are replaced by Accessibility Notes. That strategy reminded me of one Raymond Antrobus has used. Alliteration, synesthesia and the language of the body express the complexities of a friend’s cancer, having a trans partner, and coming to terms with sexuality (“I think now that being queer was easy, easy as forgetting / being born”). A really interesting work and an author I’d like to read more from.
Published by BlazeVOX [books] on 22 March. With thanks to the author for the e-copy for review.
Olga Dies Dreaming by Xóchitl González (2022)
This was on my radar thanks to a starred Kirkus review. It would have been a good choice for the Women’s Prize longlist, with its bold heroine, Latinx and gay characters, and blend of literary and women’s fiction. The Puerto Rican immigrant community and gentrifying neighbourhoods of New York City are appealing locales, and Olga is a clever, gutsy protagonist. As the novel opens in 2017, she’s working out how best to fleece the rich families whose progeny’s weddings she plans. Today it’s embezzling napkins for her cousin Mabel’s wedding. Next: stockpiling cut-price champagne. Olga’s brother Prieto, a slick congressman inevitably nicknamed the “Latino Obama,” is a closeted gay man. Their late father was a drug addict; their mother left to be part of a revolutionary movement back in PR and sends her children occasional chiding letters when they appear to be selling out.
The aftermath of Hurricane Maria coincides with upheaval in Olga’s and Prieto’s personal and professional lives. The ins and outs of Puerto Rican politics went over my head somewhat, and the various schemes and conspiracy theories get slightly silly. The thread that most engaged me was Olga’s relationship with Matteo, a hoarder. I hoped that, following the satire of earlier parts (“Olga realized she’d allowed herself to become distracted from the true American dream—accumulating money—by its phantom cousin, accumulating fame. She would never make that mistake again”), there might be a message about the emptiness of the pursuit of wealth. So I ended up a little disappointed by a late revelation about Matteo.
However, I did appreciate the picture of how Olga is up against it as both a woman and a person of colour (“no person of color serious about being taken seriously was ever late to meet white people”). This debut was perhaps a little unsure of what it wanted to be, but the novelty of the main elements was enough to make it worth reading.
With thanks to Fleet for the free copy for review.
Would you be interested in reading one or more of these?
The Inevitable: Dispatches on the Right to Die by Katie Engelhart
Why, she wanted to know, was I so interested in the subject?
“Why isn’t everyone?” I asked.
The fact that I read a lot more books about death than the average person is something I attribute not to some morbid curiosity, but to pragmatism. As the title of Canadian reporter and documentary filmmaker Katie Engelhart’s book makes clear, this is the one subject none of us can avoid indefinitely, so why not learn about and understand it as much as possible? The Inevitable focuses on the controversial matter of assisted dying, also known as assisted suicide, euthanasia, or physician-assisted death. It’s a topic that’s already come up in my reading a couple of times this year: in the Dutch context of That One Patient by Ellen de Visser, and as a key part of the narrative in Darke Matter by Rick Gekoski.
Engelhart spends time with doctors and patients who are caught up in the assisted dying argument, chiefly in Western Europe and the United States. Ten states plus Washington, D.C. have assisted dying laws, sparked by Oregon’s Death with Dignity Act in 1994. In California, the author follows Dr. Lonny Shavelson for a month, observing all the meticulous regulations surrounded a physician-assisted death: patients with a terminal diagnosis and less than six months to live have to complete multiple forms, give many signatures, deliver oral testimony, and be able to drink the fatal concoction by themselves (whereas in other countries doctors can administer lethal injections). And if, when the time comes, a patient is too far gone to give spoken consent, the procedure is cancelled.
Other chapters consider specific cases that are not generally covered by current legislation but can drive people to seek assisted suicide: the ravages of old age, chronic degenerative illnesses, dementia, and severe mental illness. Each of these is given its own long chapter, like an extended magazine profile.
- Meet Avril Henry, a former Exeter University professor in her eighties, now living alone with a failing body but no specific diagnosis that would qualify her for AD. Pain has long since outweighed pleasure in her life, so she illegally imports Nembutal from a veterinary supplier in Mexico and makes a careful plan for what will happen with her body, home, and possessions after she takes the drug in the bathtub.
- Meet Maia Calloway, a 39-year-old former filmmaker confined to a wheelchair by multiple sclerosis. Her medicines cost $65,000 a year, not all covered by Medicare, and she can no longer rely on the patience of her boyfriend, who acts as her carer. She decides to raise the money to travel from Taos to a Swiss assisted dying clinic.
- Meet Debra, a 65-year-old widow so rapidly declining with dementia that she knows she has to make her arrangements at once. She contacts the Final Exit Network, which gives advice and equipment (e.g. a nitrogen tank) that can make a death look unexplained or like a standard suicide.
- Meet Adam, a 27-year-old in daily distress from OCD, anxiety, and depersonalization disorder. Though he’s lobbied for the inclusion of mental illness, he doesn’t qualify for AD under Canada’s laws. In 2017 he starts a Facebook livestream from a hotel room, intending to take poison off-screen. He loses his nerve this time, but is determined to try again.
These stories are so wrenching, but so compassionately told. Engelhart explores the nuances of each situation, crafting expert portraits of suffering people and the medical professionals who seek to help them, and adding much in the way of valuable context. Hers is a voice of reason and empathy. She mostly stays in the background, as befits a journalist, but occasionally emotional responses or skepticism come through – Exit International’s Philip Nitschke, vilified as a “Dr. Death” like Jack Kevorkian, is too much of a maverick for her.
And while her sympathy for the AD cause is evident, she also presents opposing arguments: from hospice doctors, from those afraid that the disabled will be pushed into assisted suicide to free up resources, from the family members of her subjects, and from those who have witnessed abuses of the system. There are those who frame this as a question of rights, and others who recognize a rare privilege; some who scorn the notion of escape, and others who speak of dignity and the kindness one would show a dying pet. The book is a vital contribution to an ongoing debate, with human stories at its heart.
With thanks to Atlantic Books for the free copy for review. The Inevitable was published in the UK on March 11th and is available from St. Martin’s Press in the USA.
Introducing the Barbellion Prize & A Review of Sanatorium by Abi Palmer
New this year, the Barbellion Prize will be awarded annually “to an author whose work has best represented the experience of chronic illness and/or disability.” It’s named after W.N.P. Barbellion (the pen name of Bruce Frederick Cummings), the English author of The Journal of a Disappointed Man, which he started writing at 13. A self-taught naturalist, he specialized in lice when he worked for the British Museum’s department of natural history in London. He was rejected for war service in 1915 after a doctor found him to have multiple sclerosis. At that time, the diagnosis was like a death sentence; indeed, Cummings died at age 30 in 1919, though by then he had managed to produce two volumes of memoirs as well as a daughter.
Here’s some more information on the prize criteria from the website: “Eligibility for the prize is predicated on the author’s presentation of life with a long-term chronic illness or disability, whether that be in the form of blindness, MS, cystic fibrosis, dwarfism, or another comparable condition that may substantially define one’s life. Authors – such as those in a carer’s capacity – who themselves are not ill may be considered for the prize if their work is truly exceptional as an articulation of life with illness, but authors who themselves deal personally with illness or disability will take priority in any selection for the prize.”
Especially in the absence of the Wellcome Book Prize, which has been on hiatus since the announcement of the 2019 winner, I’m delighted that there is a new prize with a health slant, particularly one that will lead to greater visibility for disabled writers and their stories. From a longlist of eight, in January the Barbellion Prize judges chose a shortlist of four titles: three memoirs and a work of autofiction. The publishers kindly agreed to send me the shortlist for review. Two have arrived so far (there have been postal delays in the UK, as in many places).
I have already read one of the nominees and will do my best to review the rest before the £1000 prize is awarded on the 12th. The others are:
- Golem Girl by Riva Lehrer – An illustrated memoir by a visual artist born with spina bifida.
- The Fragments of My Father by Sam Mills – A memoir of being a carer for her father, who has paranoid schizophrenia; also includes musings on Leonard Woolf and F. Scott Fitzgerald, who cared for mentally ill wives. I’m currently reading this one.
Kika & Me by Amit Patel – Patel was a trauma doctor and lost his sight within 36 hours due to a rare condition. He was paired with his guide dog, Kika, in 2015.
Sanatorium by Abi Palmer (2020)
Water is a source of comfort and delight for Abi, the narrator of Sanatorium (whose experiences may or may not be those of the author; always tricky to tell with autofiction). Floating is like dreaming for her – an intermediate state between the solid world where she’s in pain and the prospect of vanishing into the air. In 2017 she spends a few weeks at a sanatorium in Budapest for water therapy; when she returns to London she buys a big inflatable plastic bathtub to keep up the exercises as she tries to wean herself off of opiates.
Abi feels fragile due to a whole host of body issues, some in her past but most continuing into the present: an autoimmune connective tissue disorder, psoriatic arthritis, Crohn’s disease, and sexual assaults. Her knee is most immediately problematic, leading her to use a mobility scooter. As her health waxes and wanes, other people – unable to appreciate any internal or incremental changes – judge her by whether or not she is able to walk well.
The book is in snippets, often of just a paragraph or even one sentence, and cycles through its several strands: Abi’s time in Budapest and how she captures it in an audio diary; ongoing therapy at her London flat, custom-designed for disabled tenants (except “I was the only cripple who could afford it”); the haunted house she grew up in in Surrey; and notes on plus prayers to St. Teresa of Ávila, accompanied by diagrams of a female figure in yoga poses.
Locations are given in small letters in the top corner of the page, apart from for the more dreamlike segments that can’t be pinned down to any one place. For instance, I was reminded of a George Saunders story by the surreal interlude in which Abi imagines Van Gogh’s Starry Night reproduced in the hair on a detached pair of legs mounted on a wall as a work of art.
The different formats and short chunks of prose generally keep the voice from becoming monotonous, though I did wonder if occasional use of the third person (and some more second person) could have been effective, too. Far from a straightforward memoir, the book incorporates passages that are closer to fantasy and poetry, and the visual elements and fertile imagery attest to Palmer’s background as a mixed-media artist.
Sanatorium is a fascinating work – matter-of-fact, playful and sensual – that vividly conveys the reality of life with a chronic illness. It was already on my wish list, but I’m so glad that this shortlisting gave me a chance to read it. Though I haven’t read the other nominees yet, the passages below are proof that this would be a deserving Barbellion Prize winner.
You go through life as a chronically ill person with so many different people who have so many different opinions about how your treatment should be. They’re not always useful or right. You have to build your own narrative and your own sense of what feels appropriate. You have to learn to trust your body to tell you what’s working. But that’s hard too, when your body keeps changing the rules.
I am one of the more privileged ones and still I’m screaming. God, it would be so nice just to dissolve into nothing and wash up onto a lonely beach.
I wonder if what I’ve learned about chronic illness, more than anything, is that it’s a constant cycle. You fall apart, then you try your best to rebuild again. I wonder what would happen if I stopped trying.
Readalikes I have also reviewed:
- Heal Me by Julia Buckley
- Bodies of Water by V. H. Leslie
- My Year of Rest and Relaxation by Ottessa Moshfegh
With thanks to Penned in the Margins for the free copy for review.
The 2019 Wellcome Book Prize: Shadow Panel and Wish List
On Tuesday the longlist for the 2019 Wellcome Book Prize will be announced. For the third year in a row I’m running a shadow panel, and it’s composed of the same four wonderful book bloggers who joined me last year: Paul Cheney of Halfman, Halfbook, Annabel Gaskell of Annabookbel, Clare Rowland of A Little Blog of Books, and Dr. Laura Tisdall.
This year we’re going to do things slightly differently: we plan to split up the longlist, taking two to three titles each, so that between us we will have read them all and can announce our own preferred shortlist before the official shortlist is announced in March. At that point we’ll catch up by (re)reading the six shortlisted books, each reviewing the ones we haven’t already. Essentially, I’m adding an extra stage of shadow panel judging, simply because I can. I hope it will be fun – and also less onerous, in that we should get a leg-up on the shortlist and not have to read all six books in March‒April, which has proved to be a challenge in the past.
My Wellcome Prize hopefuls are all the fiction or nonfiction titles I’ve read on a medical theme that were published in the UK in calendar year 2018. I have put asterisks beside the 12 books in this post that I predict for the longlist. (The combination of wishful thinking and likelihood means that these are not exclusively my personal favorites.)
Below is a list of the books I’ve already featured on the blog in some way, with links to my coverage and a few-word summary of their relevance.
Nonfiction
Gross Anatomy by Mara Altman: Female body woes
*Beneath the Skin: Great Writers on the Body: Essays on organs
*All that Remains by Sue Black: Forensic anthropology
Everything Happens for a Reason by Kate Bowler: Living with advanced cancer
Heal Me by Julia Buckley: Tackling chronic pain
*The Unmapped Mind by Christian Donlan: Adjusting to life with MS
From Here to Eternity by Caitlin Doughty: Funerary rites around the world
This Really Isn’t About You by Jean Hannah Edelstein: A genetic disease in the family
Natural Causes by Barbara Ehrenreich: Questioning the wellness culture
On Smaller Dogs and Larger Life Questions by Kate Figes: Pondering breast cancer
Shapeshifters by Gavin Francis: Instances of bodily change
The Reading Cure by Laura Freeman: Healing from an eating disorder
Nine Pints by Rose George: The story of blood
Waiting for the Last Bus by Richard Holloway: Ageing and death
*Heart: A History by Sandeep Jauhar: Heart disease and treatments
Sick by Porochista Khakpour: Chronic Lyme disease
Human Errors by Nathan Lents: Flawed bodies; evolutionary adaptations
Skybound by Rebecca Loncraine: Breast cancer; flying lessons
Amateur by Thomas Page McBee: Memoir of F2M transformation
*Face to Face by Jim McCaul: Tales of facial surgery
*Somebody I Used to Know by Wendy Mitchell: A firsthand account of early Alzheimer’s
*That Was When People Started to Worry by Nancy Tucker: Mental illness from the inside
*The Language of Kindness by Christie Watson: Nursing as a vocation
Fiction
Little by Edward Carey: Anatomical models in wax (thanks to Clare for the reminder!)
Orchid & the Wasp by Caoilinn Hughes: Non-epileptic seizures
*The Winter Soldier by Daniel Mason: Neurology, surgery during WWI
The Way of All Flesh by Ambrose Parry: Medicine in 1840s Edinburgh
Other eligible books that I have read but not happened to mention on the blog:
In Shock by Rana Awdish: The doctor became the patient when Awdish, seven months pregnant, was rushed into emergency surgery with excruciating pain due to severe hemorrhaging into the space around her liver, later explained by a ruptured tumor. Having experienced brusque, cursory treatment, even from colleagues at her Detroit-area hospital, she was convinced that doctors needed to do better. This memoir is a gripping story of her own medical journey and a fervent plea for compassion from medical professionals.
Doctor by Andrew Bomback: Part of the Bloomsbury Object Lessons series, this is a wide-ranging look at what it’s like to be a doctor. Bomback is a kidney specialist; his wife is also a doctor, and his father, fast approaching retirement, is the kind of old-fashioned, reassuring pediatrician who knows everything. Even the author’s young daughter likes playing with a stethoscope and deciding what’s wrong with her dolls. In a sense, then, Bomback uses fragments of family memoir to compare the past, present and likely future of medicine.
A Moment of Grace by Patrick Dillon [skimmed]: A touching short memoir of the last year of his wife Nicola Thorold’s life, in which she battled acute myeloid leukemia. Dillon doesn’t shy away from the pain and difficulties, but is also able to summon up some gratitude.
Get Well Soon: Adventures in Alternative Healthcare by Nick Duerden: British journalist Nick Duerden had severe post-viral fatigue after a run-in with possible avian flu in 2009 and was falsely diagnosed with ME / CFS. He spent a year wholeheartedly investigating alternative therapies, including yoga, massage, mindfulness and meditation, visualization, talk therapy and more. He never comes across as bitter or sorry for himself. Instead, he considered fatigue a fact of his new life and asked what he could do about it. So this ends up being quite a pleasant amble through the options, some of them more bizarre than others.
*Sight by Jessie Greengrass [skimmed]: I wanted to enjoy this, but ended up frustrated. As a set of themes (losing a parent, choosing motherhood, the ways in which medical science has learned to look into human bodies and minds), it’s appealing; as a novel, it’s off-putting. Had this been presented as a set of autobiographical essays, perhaps I would have loved it. But instead it’s in the coy autofiction mold where you know the author has pulled some observations straight from life, gussied up others, and then, in this case, thrown in a bunch of irrelevant medical material dredged up during research at the Wellcome Library.
*Brainstorm: Detective Stories From the World of Neurology by Suzanne O’Sullivan: Epilepsy affects 600,000 people in the UK and 50 million worldwide, so it’s an important condition to know about. It is fascinating to see the range of behaviors seizures can be associated with. The guesswork is in determining precisely what is going wrong in the brain, and where, as well as how medicines or surgery could address the fault. “There are still far more unknowns than knowns where the brain is concerned,” O’Sullivan writes; “The brain has a mind of its own,” she wryly adds later on. (O’Sullivan won the Prize in 2016 for It’s All in Your Head.)
I’m also currently reading and enjoying two witty medical books, The Mystery of the Exploding Teeth and Other Curiosities from the History of Medicine by Thomas Morris, and Chicken Unga Fever by Phil Whitaker, his collected New Statesman columns on being a GP.
Four additional books I have not read but think might have a chance of making the longlist:
Primate Change: How the World We Made Is Remaking Us by Vybarr Cregan-Reid
The Beautiful Cure: Harnessing Your Body’s Natural Defences by Daniel M. Davis
Because I Come from a Crazy Family: The Making of a Psychiatrist by Edward M. Hallowell
*She Has Her Mother’s Laugh: The Powers, Perversions, and Potential of Heredity by Carl Zimmer
Look out for the announcement of the longlist on Tuesday afternoon! I’ll report back, perhaps on Wednesday, with some reactions and the shadow panel’s reviewing strategy.
Have you read, or are you interested in, any of these books?
Can you think of other 2018 releases that might be eligible for the Wellcome Book Prize?
Best Nonfiction Books of 2018
Below I’ve chosen my 12 favorite nonfiction books published in 2018. You’ll be unsurprised to learn that half of them have a medical theme. Many have already featured on my blog in some way over the course of the year. To keep things simple, as I’ve done in previous years, I’m limiting myself to two sentences per title: a potted summary plus why you should read it. Let the countdown begin!
12. The Line Becomes a River by Francisco Cantú: Francisco Cantú was a U.S. Border Patrol agent for four years in Arizona and Texas. Impressionistic rather than journalistic, his book is a loosely thematic scrapbook that, in giving faces to an abstract struggle, argues passionately that people should not be divided by walls but united in common humanity.
11. Bookworm by Lucy Mangan: Mangan takes us along on a nostalgic chronological tour through the books she loved most as a child and adolescent. No matter how much or how little of your early reading overlaps with hers, you’ll appreciate her picture of the intensity of children’s relationship with books – they can completely shut out the world and devour their favorite stories over and over, almost living inside them, they love and believe in them so much – and her tongue-in-cheek responses to them upon rereading them decades later.
10. Everything Happens for a Reason: And Other Lies I’ve Loved by Kate Bowler: An assistant professor at Duke Divinity School, Bowler was fascinated by the idea that you can claim God’s blessings, financial and otherwise, as a reward for righteous behavior and generosity to the church (“the prosperity gospel”), but if she’d been tempted to set store by this notion, that certainty was permanently fractured when she was diagnosed with stage IV colon cancer in her mid-thirties. Bowler writes tenderly about suffering and surrender, about living in the moment with her husband and son while being uncertain of the future.
9. Gross Anatomy by Mara Altman: Through a snappy blend of personal anecdotes and intensive research, Altman exposes the cultural expectations that make us dislike our bodies, suggesting that a better knowledge of anatomy might help us feel normal. It’s funny, it’s feminist, and it’s a cracking good read.
8. The Unmapped Mind by Christian Donlan: Donlan, a Brighton-area video games journalist, was diagnosed with (relapsing, remitting) multiple sclerosis in 2014; he approaches his disease with good humor and curiosity, using metaphors of maps to depict himself as an explorer into uncharted territory. This is some of the best medical writing from a layman’s perspective I’ve ever read.
7. Skybound by Rebecca Loncraine: For Rebecca Loncraine, after treatment for breast cancer in her early thirties, taking flying lessons in an unpowered glider (everywhere from Wales to Nepal) was a way of rediscovering joy and experiencing freedom by facing her fears in the sky. Each year seems to bring one exquisite posthumous memoir about facing death with dignity; this is a worthwhile successor to When Breath Becomes Air et al.
6. Face to Face by Jim McCaul: Eighty percent of a facial surgeon’s work is the removal of face, mouth and neck tumors in surgeries lasting eight hours or more; McCaul also restores patients’ appearance as much as possible after disfiguring accidents. This is a book that inspires wonder at all that modern medicine can achieve.
5. That Was When People Started to Worry by Nancy Tucker: Tucker interviewed 70 women aged 16 to 25 for a total of more than 100 hours and chose to anonymize their stories by creating seven composite characters who represent various mental illnesses: depression, bipolar disorder, self-harm, anxiety, eating disorders, PTSD and borderline personality disorder. Reading this has helped me to understand friends’ and acquaintances’ behavior; I’ll keep it on the shelf as an invaluable reference book in the years to come.
4. Free Woman by Lara Feigel: A familiarity with the works of Doris Lessing is not a prerequisite to enjoying this richly satisfying hybrid of biography, literary criticism and memoir. Lessing’s The Golden Notebook is about the ways in which women compartmentalize their lives and the struggle to bring various strands into harmony; that’s what Free Woman is all about as well.
3. Implosion by Elizabeth W. Garber: The author endured sexual and psychological abuse while growing up in a glass house designed by her father, Modernist architect Woodie Garber – a fascinating, flawed figure – outside Cincinnati in the 1960s to 1970s. This is definitely not a boring tome just for architecture buffs; it’s a masterful memoir for everyone.
2. Educated by Tara Westover: Westover writes with calm authority, channeling the style of the scriptures and history books that were formative in her upbringing and education as she tells of a young woman’s off-grid upbringing in Idaho and the hard work that took her from almost complete ignorance to a Cambridge PhD. This is one of the most powerful and well-written memoirs I’ve ever read.
It was a real toss-up between Westover and this one, but since Educated has already gotten a ton of attention this year, I’ve awarded the title of nonfiction book of the year to:
1. Under the Rock by Benjamin Myers: A spell-bindingly lyrical book that ranges from literature and geology to true crime but has an underlying autobiographical vein. Its every sentence is well-crafted and memorable; this isn’t old-style nature writing in search of unspoiled places, but part of a growing interest in the ‘edgelands’ where human impact is undeniable but nature is creeping back in.

My 2018 nonfiction books of the year (the ones I own in print, anyway).
What were some of your top nonfiction reads of the year?
Upcoming posts:
27th: Best fiction of the year
28th: Runners-up
29th: Best backlist reads
30th: Other superlatives and some early 2019 recommendations
31st: Library Checkout & Final statistics on my 2018 reading